I certainly didn't think newspapers have copyright priviledges. My son sent me that story, I had to get the link from him.
This is the link. I can't write like the newspaper writers did. This news article covers more than I know about. http://www.statesman.com/search/content/news/stories/local/05/24/0524prostate.html
My PSA from the health fair was 9.2 My brother had had prostate cancer just a few years ago, he had advised me not to do anything if I ever got it, he is not happy with his surgery.
I found healingwell quite easily after searching prostate cancer but after reading all the awful stories here after surgery or radiation I wasn't going to do anything about my dismal PSA score. However, I told my son there was some mention of a new treatment called HIFU & someone thought it good. He looked into it and was excited. So, I went to my doctor, who is a young fella. I had my PSA taken again, this time it was 8.6 Then I was talked into the dreaded biopsy, which wasn't that bad. It was positive, my Gleason was 6. I went back in for a talking to, he told me all about my options, never mentioned HIFU, so I asked, he said I couldn't enter the trials as my gland was over the size limit. However, he has a patient who went the HIFU route and he gave me his phone number. I called him and I was totally sold on HIFU as the least likely to cause all the complications. I booked with his doctor.
Glad I looked around first, as it gave me time to think it through. My doctor also told me he is on the list to learn HIFU later this year, as when it is approved he wants to be ready, he has heard it has great possibilities. My son did most of the research, it sounded logical to him, he was so excited. I was still a bit skeptical, not doing anything at my age seemed better. In the interest of science I went ahead, ah, maybe in my son's interest.
My wife faxed in all my results and exchange info for a couple weeks with them and paid in advance the $25,000. I am self insured. The day prior to treatment I couldn't eat anything solid, so my wife fixed me jello and I drank chicken and beef broth, apple juice, cranberry juice, being my salt and sugar were taken care of I wasn't in agony. That evening we went to the hospital and met the doctor and nurse that would be treating me, I signed some papers, filled out questioneers and they went over the details of what to expect and gave me lists of their phone numbers and pages of instructions. There were 3 other men there from the US for treatment. The following day I woke up and inserted a Fleet enema, then again another enema. Then I went to the hospital, I met everyone who was going to be involved in my treatment. Then the nurses put anti-embolic stockings on me, and gave me an IV to put me to sleep. I woke up 3 hours later, had some more jello!, a little sandwich and was taught how to deal with the catheter coming out of my stomach, then I was discharged. The American nurse who had accompanied the HIFU doctor rode with us back to our hotel and instructed me to phone any time if I had any questions. Everyone who worked at the hotel knew that I had been treated for cancer and they were over the top nice to us. We just went out to eat at the hotel restaurant, I was nervous, but had no troubles. I was surprised I couldn't feel anything had been done. I discovered I had been shaved. They told me not to drink alcohol, but I had a beer. The nurse phoned us in the morning to check on me. They told me to take it easy for a month, not to drink alcohol (but I had beer everyday). The catheter wasn't great, but it was it, I dealt with it. I flew home a day later wearing sweat pants on the hottest day of summer, but to be comfortable around the tube and conceal the catheter they were needed. I was told to wash the site everyday and never use anything else, like ointments or alcohol, tape down the tube with gauze under it. I found that wrapping some stretch elastic bandage all the way around my waist several times worked best, no tape on my skin. One night I forgot to clamp the bottom of the bag, but I won't go into detail of what a mess I created!
I had the catheter in for 17 days, there were little pieces of prostate and blood in there. I was told to drink 9 glasses of water a day, that was the worst part of the entire thing. I was in contact with the HIFU doctor by email or phone, he instructed me (this was in my instruction papers too) to clamp off the tube and urinate normally on the forth day for a hour, that was fine, I was happy, I started and stopped just fine, no leaks. The next day I was to do the same only increasing the time to 2 hours, and so on until it was removed. He never told me why I was to do this, as I never asked, but I guess it was to exercise my muscles. I had been doing the kegal exercises for weeks while awaiting my treatment, I feel this helped me. When I could drain my bladder to 2oz left in the bag it was time for the catheter to be removed. My hometown doctor was great, he took real interest in the experience I had and removing the tube was no big deal. I had no other reason to see him.
I also was taking Vesicare for two weeks & Flomax for a month. My erections weren't strong before the treatment, and they were no better afterwards, most likely they were less, I wilted soon, and so I started taking cialis a couple weeks afterwards, it works! I guess I'll be on low dose cialis for as long as my wife will let me. I had my PSA taken this last week and was told the results were excellent for after HIFU 0.4 He gave me a DRE and said, yup it's gone! I can empty my bladder much faster now, I pee like a teenager.
I know that I am fortunate and I am happy with my decision to be my son's experiment!
I feel like this fella who said in the article,
"I'm still thrilled beyond belief," Schwab said. "I feel I have a strong obligation to help people learn about this."
I am extremely grateful to my HIFU doctor for the bold undertaking he has initated in traveling outside the country to do what seems to me a uncomplicated, however skilled, procedure. The trials could take years, I would not have done anything if HIFU wasn't available. And I am greatful to my hometown doctor who didn't discourage me, and to the fella who had HIFU before me, and also the chap who had HIFU here. I've been told, that like everyone else, I must keep checking my PSA levels, but honestly, I doubt that I will, I am confident. If this buys me only a couple years, I'll still be happy.
JerryB, you will be happy! good luck to all. Spread the word.