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bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 1/17/2010 4:32 AM (GMT -6)   
hi everybody.i must say that the chance of me experiencing e d is a big worry .i am due to have op in a couple of months.so many of you guys seem to suffer greatly from it and in some instances seem to see little improvement even over time .my wife trying to give me confidence suggests that the many men who experience little or no problems wouldnt bother to participate in our site.what do you think barry 
PSA Aug 07 was 3, Mid 08, 3.5, mid 09, 7.27

First biopsy july 09 - t2a on left . 11 samples taken from 6 blocks. 4 blocks show positive for adenocarcinoma. 1 block 10%, 3 blocks 5%, overall gleason 3 plus 4. No perineural invasion seen. Seminal vesicles clear.

End Oct 2009, bone scan all clear, MRI shows 6mm lesion on bottom left and rest of gland diffused image. Late Nov 2009, a template biopsy of 32 from 20 sites adenocarcinoma, gleason 3 plus 4 at 10 sites; unfortunately spread over both left and right.


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/17/2010 5:38 AM (GMT -6)   
Barry,
I think you wife is absolutely correct.  In the big picture, the majority of diagnosed PC patients are treated once and do not have lingering issues.  Those who do have secondary issues do need to look for secondary treatments.  Some have secondary issues with their PC, others have secondary issues with incontinence or ED.  If one were to survey the variety of posters on this site at any given time, you'd have mostly a mix of (1) the brand new guys who stumbled upon the site via web searches for any & all new information prior to their first treatment, and (2) the guys who are pursuing secondary treatments because of one of the lingering issues I listed.  I'd say most posters, not all, fall into these two categories.  Back to the big picture, the majority of guys, those who were successfully treated the first time, most of them might have been part of group (1), but they have moved on with their lives and no longer visit here (or some check-in infrequently).
 
At PSA below 10, GS 3+4, and 1 sample at 10% and 3 samples at 5%, you are a fairly low risk case and I wouldn't spend a lot of extra energy worrying.
 
Peace

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/17/2010 6:37 AM (GMT -6)   
Barry,
In my PCa group, of the 12 or so guys who have had surgery, only one is having difficulty. Your wife is right.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/17/2010 6:39 AM (GMT -6)   
Barry,
I have to agree with your wife. If I didn't have ED and incontinence I'd be in bed now with my wife instead of answering you! :-)
You can look at our stats and notice that the guys that come and go, end up fine. They did what needed to be done, and a few months later their parts did what need to be done. Finished.
I'm an engineer and like to figure things out. I'm willing to bet we can come up with a correlation between the number of HW answers since joining vs. diagnosis and condition.
HWA =f(PSAd, PSAa, INC, ED)
Where:
HWA= Number of Healing well answers
PSAd= PSA at diagnosis
PSAa = PSA after treatment
INC = Incontinence in ml per day
ED = times per week.

I haven't quite pulled the equation together (I'll leave that to some other engineer or mathematician) but most guys sitting here typing after 3 months are here because they have issues with at least one of the last three variables.
Paraphrasing a recent study by Hu around 2/3 of patients were continent in 3 months. Of the remaining third, 2/3 were continent in a year. So, for every guy who is incontinent, there are 8 who are fine. The guys here are the one in 9. I don't remember the ED rates but they were in that study too.
Granted, you may have problems but odds are, you won't.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next? See Uro 1/20/10
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.

Post Edited (Worried Guy) : 1/17/2010 6:04:02 AM (GMT-7)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 1/17/2010 6:50 AM (GMT -6)   
hmmmm. Guys that don't have ED wouldn't exactly be able to tell us what works best for themsmhair  They could tell us but then they'd have to kill us.
 
But there are several guys here that Don't have ED...
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/17/2010 6:59 AM (GMT -6)   
Sorry... I can't help it... The constants need a little tuning but here it is:
HWA= 5*PSAd +5*(1000*(PSAa-0.04) + 1.5 *INC + 1/(0.02+ED))
Jeff

Post Edited (Worried Guy) : 1/17/2010 6:35:45 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/17/2010 9:22 AM (GMT -6)   
barry, i will be one of the exceptions to the mix stated above. i never experienced any ED right from the start. It makes no sense, makes no sense to my surgeon and others that have looked at me, but facts is facts, and I am just thankful. I am s till here because I like to help others along the path. There are a handful of other men here that either didn't have ED or quickly recovered on that front, so the good news, is it is possible, its not all bad.

while i did great on the ED front, and had an easy time with incontinence, i have my own issues sitll ongoing 15 months later, that is with blockages and strictures, have spent a total of 220 days on differernt catheters instead. a different kind of hell.

your stats can't tell if you will or if you wont have ED problems, too many factors and variables, your body is unique, your surgeon will do his best of course, but until its over, you really won't know what you will get. hopefully you will have minimal problems, thats the best thing to hope for after eradicating the cancer, which should be your primary goal of having surgery in the first place.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/17/2010 9:54 AM (GMT -6)   
Purg, you probably fall into group (2) I listed above, don't you? I wrote the description of (2) with you and others in mind...secondary issues with PC (after primary treatment), or ED or Incontinence.  You are, I believe, dealing with at least one of these group (2) lingering issues...

Post Edited (Casey59) : 1/17/2010 9:16:16 AM (GMT-7)


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 1/17/2010 10:38 AM (GMT -6)   
It took about ten months for me to be "back to normal". During those ten months, I relied heavily on Levitra in the beginning and less toward the end. I have not required help from Levitra since then. Odds are in your favor. wink
Age 51
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED for about 10 months. Levitra worked well for me. No ED at one year.
PSA 0.00 at one year post


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/17/2010 11:01 AM (GMT -6)   
My Dr. said that it is a crap shoot. Some have ED other don't. Just the luck of the draw. Some of us get a full house other get nothing.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/17/2010 11:15 AM (GMT -6)   
corvette, with all due respect to you, your doctor appears to be a novice.  A "crap shoot"?  That's ignorant.  Too bad for you, but I wouldn't recommend him to any of your friends...

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/17/2010 11:27 AM (GMT -6)   
Jeff -- you left boot size out of your equation again

More seriously, it is as has been said -- the majority regain function after the operation and need no further treatment. Of the remainder with ED, oral drugs and injections probably work for over half, so we are talking about odds very much in your favor. Remember that the whole point is to get the PC and you should note that everybody on this board regardless of their ED status is alive.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


pigeonflyer
Regular Member


Date Joined Nov 2009
Total Posts : 85
   Posted 1/17/2010 6:42 PM (GMT -6)   
a crap shoot is just what you call it. who knows how the dice will fall. if you get a doctor that tells you that you will not have any problems then i would not recomend anybody to him. no one knows, but a skilled surgen is a must and one that talks to you like your freind instead of god almighty is one id put my money on when the dice is in his hands. come on 7 or 11. neil
50 years
da vinci on 9/28/09
gleeson 3+3
psa before surgery 5.1 oct/09 psa 0.06
cather out on oct 5, back in on oct 5
two more trys for cather out, still in .
cather out nov. 13/09
cystocope nov.13/09 , cather back in , out again on nov 15/o9, was taught to self cath, still pluged with scar tissue but no cather. have to self cath 6 to 8 times a day. scar tissue removed on jan. 11 2010. no cathing and totally dry. 


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/17/2010 7:31 PM (GMT -6)   
Casey, I may not have made my post clear. I will try again. Dr. said he would save the nerves if at all possible. If it looked like he had to take them he would. (In my case Nerves saved)

Now to the ED. Will willie come back strong? Here is what the Dr. reported. Many times the nerves are damaged in surgery. They take time to heal. Many do get erections after surgery but It is a bit of a crap shoot as to how your body heals. He does start the patient on Oral Drugs just after surgery. Recommends the pump if necessary and advises to keep the blood flowing. After that some get it going others just not good enough.

I hope this explains my response better.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/17/2010 7:45 PM (GMT -6)   
Geezer,
Thanks for pointing that out. I found an error in the last term and just corrected it.

I hope you tried out the equation so you can follow the thinking. For example, a guy with ED will on average make about 50 posts on the subject. A guy lucky enough to do it once a week will only make 1 post. You can do this for each variable. The only positive correlation I can find for boot size is equipment length.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next? See Uro 1/20/10
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 1/17/2010 8:04 PM (GMT -6)   
I agree with the crap shoot analogy. The doctor does not know ahead of time how easy the nerves are to peel off the prostate, does not know how sensitive your nerves are to damage, and does not know how well the nerves will repair after the trauma.

You are right to be concerned about ED, and you should expect to have it at least for a time. But there are treatments, and injections work great even without nerves at all.

I am now 22 months out and even though I had non-nerve sparing (the doctor excised wide margins), I have seen some recovery in function. Occasional nocturnal erections. If I can get it up with the aid of a rubber band (with maybe the pump) and keep some physical stimulation going, it stays up. I still can't "think it up" -- that hasn't happened even once -- but even so, I feel happy with my situation -- it's a lot better than it could have been.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/17/2010 8:04 PM (GMT -6)   
Yea thats right Jeff2. But I think you calculations are skewed. Boot size and equepment length pre-Surgery!

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 1/17/2010 8:06 PM (GMT -6)   
hi guys, many thanks for all your comments great support barry
PSA Aug 07 was 3, Mid 08, 3.5, mid 09, 7.27

First biopsy july 09 - t2a on left . 11 samples taken from 6 blocks. 4 blocks show positive for adenocarcinoma. 1 block 10%, 3 blocks 5%, overall gleason 3 plus 4. No perineural invasion seen. Seminal vesicles clear.

End Oct 2009, bone scan all clear, MRI shows 6mm lesion on bottom left and rest of gland diffused image. Late Nov 2009, a template biopsy of 32 from 20 sites adenocarcinoma, gleason 3 plus 4 at 10 sites; unfortunately spread over both left and right.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 1/17/2010 8:23 PM (GMT -6)   
bcc,

The only thing I would add is a comment on the suffering greatly. For myself, I really don't consider it that. I don't wakeup with Willie at attention, that is true. It takes some effort to get him to stand up at all. Vacuum pump, some trimix, etc.

I don't consider this suffering. I can still make love to my wife of 37 years. I can still make her feel like a queen. I can still have orgasms if I want them. But at age 59, it's not as inportant as it was at 29. My manhood, and my lovemaking is not defined by the length and girth, It is defined by being able to let my wife know how special she is, by making her the center ogf my lovemaking, not myself, or my willie.

This has been one of the blessings of PC to me. Our love has grown by leaps and bounds since I gave my walnit to Mr. DaVinci.

I am not suffering.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/17/2010 8:27 PM (GMT -6)   
Amen to that, Goodlife, well said
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/17/2010 9:39 PM (GMT -6)   
Goodlife, yes very well said for sure.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 1/17/2010 10:02 PM (GMT -6)   

Let me third that Goodlife.  Well said indeed!

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 1/17/2010 11:49 PM (GMT -6)   
Hi Barry,
 
If you are having good sex now and have your nerves spared, your chances are better of regaining
erections. I had the same worry. But now 22 months after surgery I am good to go anytime !!smile
Please see my signature below detailing my journey.
Best of luck to you my friend.
Bob
    1. Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Open Surgery. Northeast Georgia Medical Center, Gainesville Ga. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis.  Post Op Biopsy : No malignant cells in lymph node. Gleason 3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia. Right and left seminal vesicles free of neoplasia. No invasion of prostatic capsule of the resection margins are noted by the tumor. Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO, MX- Group staging II.  Focal areas of perineural invasion by tumor are noted. 80% natural erections and full erections with 10mg Cialis. 9/22/08-Took 10mg Cialis on Monday night, had very usable full hard erection at night, the next morning, and the following Thursday morning, 60 hours after original dose !! Orgasm quality Excellent.!!!!! I am pleased with the progress so far. Married to same wonderful woman for 39 years. She is still beautiful and sexy as ever. A great help in my recovery !!: 3/12/09: Full natural erections with penetration. 10mg Cialis makes them easier to maintain but I have had several med free full erections lately, Yipieeee !!!!!!!  3/24/09: One year PSA <0.1.  3/28 & 3/29: had sex with full naturals with no meds. Erections are gained and maintained with very little manipulation. Getting more like pre op every day. 5/30/09, I take only 5mg Cialis every 2 or 3 days. This greatly assists my full naturals and provides great staying power and no manipulation required and allows sex anytime !! Lenght and girth are back to pre op size due to regular "workouts". 11/10/09: Full naturals without meds. I will sometimes take 5mg of Cialis if my wife and I have a big weekend or evening planned, but spontanous erections are fine even without.
    1.  


      CPA
      Veteran Member


      Date Joined Feb 2008
      Total Posts : 655
         Posted 1/18/2010 5:49 PM (GMT -6)   
      Greetings, Barry.  Not sure exactly why I hang around.  I don't fit any of the categories - surgery went well, continent from the start, no ED from the time catheter was removed.  Do take Levitra (ADC version) based on doctors recommendation.  I have taken a break for a couple of months at a time, but I'm always drawn back to my brothers (and sisters) here on this board.  Just think it is important to be able to share positive experiences with those who have issues.  Someday I'll fade away but for now, its therapeutic for me just to come and read the comments and post an answer every once in a while.  I was blessed by those on the board when I had surgery 2 years ago and have always been grateful.  David

      Diagnosed Dec 2007 during annual routine physical at age 55
      PSA doubled from previous year from 1.5 to 3.2
      12 biopsies - 2 pos; 2 marginal
      Gleason 3+3; upgraded to 4+3 post surgery
      RRP 4 Feb 08; both nerves spared
      Good pathology - no margins - all encapsulated
      Catheter out Feb 13 - pad free Feb 16
      PSA every 90 days - ZERO's everytime!
      Great wife and family who take very good care of me


      TheoTeacher
      Regular Member


      Date Joined Jul 2009
      Total Posts : 47
         Posted 1/18/2010 7:57 PM (GMT -6)   
      Barry,
      Let me say that having an understanding and supportive wife will make the world of difference post surgery.  If you have no ED or INC issues, you two will celebrate!  If you have some temp ED or innc issues, you'll celebrate that the PCa is out!  If your ED and/or Innc issues continue you'll find many other ways to enjoy your sexual relationship!  As for me, ED is 3/4 cured and innc is 95% behind me.  And the wisdom I read on these posts have helped me through it all. Thanks guys!
       
      Good luck with your surgery and celebrate the victories.
      Dad dx at 72 with Pca; RP at 73; Died 11/08 at 88 from Pca met.
      3 Uncles have had Pca; 2 deceased from Pca met.
      Me: Age 51: Joyfully Married; father of 7!
      Routine Physical 11/07 PSA 1.73 DRE normal
      Routine Physical 1/09 PSA 2.77 DRE abnormal.
      1st Urologist visit 2/09 DRE normal, small - PSA 6.3!
      Biopsy 3/17- St. Patty's Day! 3 of 12 cores positive with 5-8% Pca
      3+3 Gleason; Visit Johns Hopkins 3/26/09 and decide for surgery.
      Lapro RP 6/29/09; discharged 6/30/09
      Cath out 7/9/09 Gleason unchanged 3+3;
      "Larger amount of cancer" than expected.
      Organ confined Pca, positive margin as "artifact" of surgery.
      All other tissues clear.
      7 wk psa 8/20/09 - 0.05
      10/15/09 - 1 pad daily
      ED - Still an issue! Cialise no help!

      "We walk by faith, not by sight."

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