Small Victories

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Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 1/18/2010 7:04 PM (GMT -6)   

Today I can report on a small victory in the battle with incontinence. Saturday I swapped out my Depends guard regular strength for a female light days pad. I hardly leak at all, but find a pad gives me more security. With the change to a much smaller pad, I am able to unzip and stand up to a urinal, pull my unit out, and let fly. No more stepping into a stall and dropping trouser.

 

After the New Year, I joined a gym to try to lose some of the 20 pounds I’ve gained since starting HT back in October. Stepped on a scale today, and am down 6 pounds. Small victories. That’s what is keeping me going with a positive attitude that I will beat this disease.

 

BTW, I completed RT Treatment #3 today. 29 to go.

 

All the best.

Roger

 


 Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.

2/6/09              Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro

4/20/09            TRUS  w/needle biopsy

4/23/09            Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.

                        CT scan and Bone Scan both negative. Stage T2C.

8/27/09            DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.

9/8/09              Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion.  Stage pT3b.

9/30/09            PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Prostate Oncologist and Radiation Oncologist. Appointments set for 10/8.

10/8/09            Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.

10/21/09          First Lupron injection. 30 mg dose (4 month)

11/2/09            PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.

12/18/09          psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/09. Anticipate 64-66 grays over 32-33 treatments. 

 

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradually getting better, with dramatic reduction in leakage around 9/20. Currently on 1 pad during the day and one at night (for security). Actually totally dry at night.

 

 

 


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 1/18/2010 7:14 PM (GMT -6)   
Congrats on the victory... although I think you under-rated the accomplishment... seems to me to be a pretty good size victory. Wishing you smooth sailing with the radiation, you have a lot of company starting this week.

Take care,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 35 sessions follow


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/18/2010 7:22 PM (GMT -6)   
That is great news both in the licking and the weight!

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/18/2010 7:40 PM (GMT -6)   
Roger, that's a big victory on the Guards to a pad. And hope that you get through your RT without any major issues, just take it one day at a time.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


TheoTeacher
Regular Member


Date Joined Jul 2009
Total Posts : 47
   Posted 1/18/2010 9:04 PM (GMT -6)   
Roger,

The way I see it, a victory is a victory, no matter how small!
I can't use the lady pads, I'm just not sure if the pad will catch the random drip!

Good luck with RT

Bob
Dad dx at 72 with Pca; RP at 73; Died 11/08 at 88 from Pca met.
3 Uncles have had Pca; 2 deceased from Pca met.
Me: Age 51: Joyfully Married; father of 7!
Routine Physical 11/07 PSA 1.73 DRE normal
Routine Physical 1/09 PSA 2.77 DRE abnormal.
1st Urologist visit 2/09 DRE normal, small - PSA 6.3!
Biopsy 3/17- St. Patty's Day! 3 of 12 cores positive with 5-8% Pca
3+3 Gleason; Visit Johns Hopkins 3/26/09 and decide for surgery.
Lapro RP 6/29/09; discharged 6/30/09
Cath out 7/9/09 Gleason unchanged 3+3;
"Larger amount of cancer" than expected.
Organ confined Pca, positive margin as "artifact" of surgery.
All other tissues clear.
7 wk psa 8/20/09 - 0.05
10/15/09 - 1 pad daily
ED - Still an issue! Cialise no help!
12/09 ED improving. 1 pad/day at work; pad free at home!

"We walk by faith, not by sight."


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 1/19/2010 1:20 PM (GMT -6)   
We love stories with good news.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 1/19/2010 1:20 PM (GMT -6)   
I remember a few weeks ago when I was able to actually use a urinal for the first time since surgery.  I too have to drop trousers when using a regular toilet.  A great feeling.  A small thing, but everything helps.

Age 63, PSA July 2009 5.66
Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
MRI and Bone Scan Negative.
Open Surgey  October 22, 2009 (6 hours on table; 2 units blood)
Small part of incision infected (2 staples removed); finally healed at 3 month mark.
Prostate, both nerve bundles, seminal vessels, and two lymph nodes removed during surgery.
Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
Returned to work after 6 weeks.  First week worked only half days because of pain from sitting for long periods.
Still slightly incontinant after 12 weeks - 2 pads per day (light). Dry at night. 1-2 trips to toilet.
ED - Yes (will start Levitra possibly in January)
30 day PSA (ultra-sensitive) .07


Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 1/19/2010 4:14 PM (GMT -6)   
Thanks everyone for your kind words. After RT Treatment #4 today, had my weekly appt with the RO. He says Okay with the gym membership, but hold off weight lifting. He says the body needs to use its natural healing defenses on the radiation burns, so lay off tearing down any muscle mass that would need healing. Makes sense, so I will stick to the treadmill and elliptical machines, maybe a swim once in a while.
Roger

 Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.

2/6/09              Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro

4/20/09            TRUS  w/needle biopsy

4/23/09            Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.

                        CT scan and Bone Scan both negative. Stage T2C.

8/27/09            DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.

9/8/09              Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion.  Stage pT3b.

9/30/09            PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Prostate Oncologist and Radiation Oncologist. Appointments set for 10/8.

10/8/09            Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.

10/21/09          First Lupron injection. 30 mg dose (4 month)

11/2/09            PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.

12/18/09          psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/09. Anticipate 64-66 grays over 32-33 treatments.

1/14/10            Start RT with 32 treatments # 2 gys per.

 

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradually getting better, with dramatic reduction in leakage around 9/20. Currently on 1 pad during the day and one at night (for security). Actually totally dry at night. After 1/16/10 down to a female regular pad. Barely felt.

 

 

 


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 1/19/2010 6:58 PM (GMT -6)   
I'm glad things are going better for you. I could stand to loose a few pounds myself before surgery. Good to hear from you.
  Neal
age 45
psa 3.09 at time of physical
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
Probability of seminal vesicle or lymph node involement below avg. 5.9%
Relative risk of seminal vesicle or lymph node involvement 32.7% decreased risk
CT & Bone scan negative
Davinci Feb. 5th 2010

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