Pads and Blood- PCa Gods have Smacked Me Down for my Uneventful Experiences

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/19/2010 9:47 AM (GMT -6)   
In the interests of truthfulness and thoroughness of documentation, I must enter the following into the journals of my journey through PCa.

The PCa Gods have sent their wrath my way for my easy journey through surgery, recovery and radiation therapy.

I have been dealing with Urgency during the latter half of my radiation, however yesterday it took a turn. I found that I have no real control of holding it when the urge is not answered within minutes. "Leakage Occurrith". And the urge is happening about 4-6 times per hour. It also is occurring whenever I stand from any sitting or lying position.

OOOPS! Wait a minute, just changed cheeks in the chair and I gotta go.

Now in addition to the control and urgency issues, I started seeing a little blood at the end of the stream. This started last night and continues this morning. I have put a call into the doctor and am waiting to hear back on whether they want me to come in or not.

So I have been humbled by the PCa Gods and will soften greatly my use of the words uneventful as it describes my journey.

I only hope they accept my apology and ease up on this stuff. I mean really. I have an RV to shop for, chores to do in preparation and trips around the country to embark on. Just like PCa in the beginning, I don't have time for this. OOPS! You think the gods will take that the wrong way too.

I still believe "Every Day is A Bonus", only now it seems a little busier and wetter,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 1/19/2010 10:14 AM (GMT -6)   
Sonny, good morning, I think that all your urgency and now little blood are from the side effect of your radiation burn. I remember that my father in law had similar experience. It will go away. you need some time recover from the radiation therapy.

Have fun shop your RV!

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/19/2010 10:21 AM (GMT -6)   
 
Sonny,
 
Really sorry to hear about your latest problems I am sure it is your body reacting to all the radiation and that it will get better soon. 
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/19/2010 10:33 AM (GMT -6)   
Jen and Jerry,

Thanks. I am sure that you are right about the after-effects, but it is just very humbling after the ease of my journey so far.

And yes I am continuing to RV shop. In fact, leaving in a little while to look at a few more. May even resort to driving it around town on errands. After all, how much more convenient can you get that having your john right there in the vehicle with you. LOL

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/19/2010 11:18 AM (GMT -6)   
sonny,
I hope this passes quickly for you, especially the blood as that gets your attention. You might have to get a RV with two restrooms just in case one is occupied. Let us know what the doc says.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/19/2010 11:26 AM (GMT -6)   
Michael,

Thought for a second you were recommending two bathrooms because you were going to be the first to volunteer to go along on a trip with us as a second driver. LOL

Continued good fortune with your treatments,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/19/2010 11:28 AM (GMT -6)   
Well I had given you the offer for you and Lynn to adopt me, but you never responded so I had to move on. My wife never gave her approval either.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 1/19/2010 12:26 PM (GMT -6)   
Sonny
 
Hopefully this will just be a bump in the road - if everyhting went smoothly what fun would that be .  Wish you the best
 
Ray
diag 9/09
 
age at diag 54
 
PSA 6/09 1.3
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery  1/13/10 at UP- Penn Presby with Dr David Lee. Home 1/14/10 Catheter scheduled to be removed 1/19/10
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 1/19/2010 1:01 PM (GMT -6)   
Hi Sonny,
 
You'll probably find that most guys have some sort of site effect from the radiation. I didn't have the urgency, but had some anal discomfort and bleeding. I was told that the after effects will get a little worse for about 2-3 weeks after radiation is finished and will then begin to get better as time goes on. Hopefully you'll feel much better in a few weeks and more importantly, that you will discover that the cancer is gone for good.
All the best to you in the years yet to come.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/19/2010 5:22 PM (GMT -6)   
Sonny, Just a bump in the road. The good thing is if you get that Motor Home quickly there in a toilet very close all the time while you on the road. You won't have to go searching for a rest area.

Hand in there buddy. You know I am just picking at you. Remember Mardi Gras I just around the corner. Go Saints.

Your Brother In PC
Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/19/2010 5:31 PM (GMT -6)   
Sonny, not surprised at the blood part, probably some colateral damage post radiation. I certainly have had some of that going on post radiation, and my ended now nearly 2 months ago if you can believe that. But let your doctor tell you that of course. The urgency thing from what I read, can always extend on beyond your RT time. Hopefully it will abate after time. Though you had a pretty straight shot right through RT, as we all know, there is no free ride with any PC treatment, hopefull you are seeing the worse of yours.

Best to my Floridian buddy and to your lovely wife.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days,
1/19/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 1/19/2010 5:45 PM (GMT -6)   
Sonny, wish for the your dry season soon...

Keep smiling, you are almost there...
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started Told now 39 sessions 72gy


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/19/2010 9:39 PM (GMT -6)   
Hey -- blood and urgency will seem minor the first time you try to parallel park an RV. This is why RV owners buy everything at WalMart -- always room at the back of the lot

Sorry to hear of your troubles, and wishing for a speedy recovery.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day

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