HELP PLEASE--is it commom to have urination problems from Trelstar or fiducials?

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tanjan4evr
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 1/19/2010 10:40 PM (GMT -6)   
Hi my husband received his 1st Trelstar injection (3 mo) Dec.29th,09 and fiducials implanted in prostate Jan.6th 2010.
about a week ago he started getting more frequency,urgency a bit of burning etc. similar to what he has felt when getting an infection. He has been on antibiotics. Is this common?
We are hoping it is just from irritation to the fiducials. or the injection?
any one know? and if this is it who long till improvement?
He feels ok otherwise maybe gets tired a bit easier. he is Gleason 9 dx Oct.09 PSA before injection 14.1 he will start IMRT March 3rd
He is 63 also has lower back pain but has arthritis in lower back and had back problems for long time. so not sure if it is that or the PC.

thanks in advance for any advice Jan

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/19/2010 11:41 PM (GMT -6)   
Jan,

Just wanted to welcome you and your husband to HW Prostate Cancer. Can't answer your questions, other will be able to, and please stick around and keep us posted. For the burning portion, a doctor would usually script out Pyridium, an inexpensive generic drug that works good with that portion of the problem, think its a $4 drug at places like Wal-mart. It will stain anything it touches orange, so you have to be careful. Hope he does better soon on these issues.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days,
1/19/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


tanjan4evr
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 1/19/2010 11:57 PM (GMT -6)   
Thanks that is good to know kinda sounds like the stuff used for women's bladder infections.
And I will watch for other replies'

I am concerned as we are traveling in RV and away from home we will try to get a hold of his urologist tomorrow but never know how long to hear back from them . It eases off some and then he thinks it is better but that hasn't happened
shakehead Jan

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 1/20/2010 8:24 AM (GMT -6)   
Jan

I cant answer your question either but I can tell you that Pyridium is some good stuff. If you have ever used it you will know that the results are fast relief from irritation. Second result is that urine will have be an unusual tent to it. LOL

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/20/2010 9:50 AM (GMT -6)   
Yeah Jeff, it kind of looks like Tang, the scent is odd, but not terrible. Would only wear undies that won't matter if they pick up some orange stain, as it won't come out of the stuff. If one wears contacts, there have been reports of Pyridium making its way to the tear ducts and staining contact lens. Not sure about that one in reality, as I don't need glasses or contacts. But it will take care of the burining part almost immediately.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


JohnK11
Regular Member


Date Joined Jan 2010
Total Posts : 25
   Posted 1/21/2010 9:54 AM (GMT -6)   
I too see a slight deterioration in incontinence, especially in the amount of urine my bladder can hold. At the time Trelstar LA was injected, my incontinence has improved from 8 pads/+diaper per day down to 3 pads/diaper per day, and the hourly bathroom break while sleeping at night has improved to 2-hour break in the 2nd half of my
sleep. Now, it's back to hourly break (and causing sleeping problems after my 5 or 6th break)--though still 3 pads/diaper per day. Note that my incontinence is expected to recover much slower due to the extensive extra-capsular surgery removal of material.
However, this deterioration might be coincidental, since I seems to take 2 steps forward and one step backward in this prior to Trelstar.

On the other hand, at 5 weeks after Trelstar injection, I see little or no evidence of hot flashes (some warming)--hope this continues. Anxiously awaiting my March 1 PSA reading to see if my metastatic PC is under control.

Age: 65, PSA : (4/09) 4.2; (10/09) 6.7 (post-biopsy before surgery); 7/6.4
(6 weeks post surgery); 9.2 (10 weeks post surgery)
Family history of PC (Father at 85, uncle at 75; another uncle has brain
cancer at 62)
Biopsy: 8/09 - 2/12 positive; one 70% Cancer, Gleason 4+3; other 21% 3+3
CT scans : (Pelvic and chest) negative
Da Vinci RP: 10/9/09 (65th birthday), Right seminar vesicle invaded/removed;
surgeon went "wide around the prostste, negarive margin"
left nerves saved, 1 day in hospt, on catheters for 10 days,
Path Rpt: Gleason 4+3, pT3 b/c,
Incontinence: at 3-1/2 month, down to 3 pads + diaper per day (was 8 pads
for 1 month ; expect slow recovery since large amount around prostate was
removed, as well as larger section of tube
ED: no response as yet
Post Surgery 7/6.4 (6 weeks post surgery); 9.2 (10 weeks post surgery)
so doubling time is 2+ month.
Bone scan and Prostascint/MRI fused scan* negative (* real expensive)
Latest: Trelstar injected 12/16/09; awaiting anxiously PSA test on
early March; 5-weeks after Trelstar--see no evidence of heavy hot-flashes
(some warmth), though incontinence seems to be worse, as well as having
trouble sleeping after the 5,6th hourly bathroom break at night (bladder
capacity seems to be lower than 3 weeks ago).

JohnK11
Regular Member


Date Joined Jan 2010
Total Posts : 25
   Posted 1/21/2010 9:57 AM (GMT -6)   
P.S.
(1) I would love to hear other people's experience with Trelstar; almost everyone else is on Lupron. I don't know why my onco use Trelstar--except he said that its side effect seems to be lesser than Lupron. Is that true ?? (so far, I don't see much hot flashes--but I might be among the 1/3 who would not see that even for Lupron).

tanjan4evr
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 1/21/2010 8:57 PM (GMT -6)   
UPDATE!!! thanks gentlemen for your suggestions. really appreciate it.'

I put a call into dick's urologist yesterday and they called back and said go to a urgent care facility or emer. room. well last night he was really feeling bad lots of urgency and not much relief. He had a UT infection 2 years ago while up deer hunting, thet landed him in emergency room and had to be caeterized. and that is what he is trying to avoid now. anyway he had a couple cipro and took one last night so avoided the hospital I had my stuff ready at the door of our RV in case i had to take him in middle of night.. thank goodness he survived the night and feels better today. In meantime I spent today calling ins. and locating urgent care facility in our network and in area here close to us.. I called the urgent care and told them the situation, unfortunately i gave them to much info I guess, as they said with his history and having fiducials (surgery) recently they did not want to treat him aand to go to Emergency. All we want is a simple UA,so we can avoid emergency room if possible. I called to see if he could get into a urologist here. again no not without being established patient. so asked for appointment, at least a week out. no surprise ther.

so called his uro. again and explained,and asked if they could please call in a cipro rx down here, thank god she said yes!!! thats all we wanted yesterday. also asked about getting Pyridium and she said AZO is same thing, that is the stuff us women use for bladder infections.. I said I HAD THOUGHT SO, but was afraid to give that to him, didn't want him to get pregnant haha AND U GET IT OVER THE COUNTER!!! so will pick some up tomorrow when getting the cipro.

as far as the ADT TRELSTAR he has been on 3 1/2 weeks now and no hot flashes etc. s't give to much insight on that yet but will keep u posted as time goes by as to what he experiences.
The dr. said the shot shouldn't be causing the urination problem but could be the fiducials as they are close to the urethra. we do know he has had lots of urinary infections and that could be all that it is.

I was curious too, maybe the Trelstar costs more then the Lupron and that is why some Dr.'s use it as they get more $$$ for it????????

his Trelstar 3mo. was about $2000.

BTW IF ANY OF YOU ARE JEALOUS WE ARE IN SUNNY PALM SPRINGS---DON'T BE---IT IS RAINING HERE CATS AND DOGS AND THEN SOME!!! RECORD RAINS!

TAKE CARE ALL JAN
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