nearing the dreaded 2-year mark

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Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 669
   Posted 1/20/2010 1:27 AM (GMT -6)   
I hesitate to post on this forum, because I feel like the man who has no shoes, complaining to some of you who have no feet...
I am nearing the 2-year mark (2 months away) from my prostatectomy, and from most of the statistics that I have seen and heard, your erections won't improve much past that date.
I have been completely cancer-free, PSA <0.1, since the surgery, and my incontinence post-surgery is essentially gone. From that perspective, I have been very blessed. But I have still been struggling, not yet able to have sufficient erections to have intercourse, without supplementing with Bi-mix injections. I have friends who have not had their first erection since the surgery, so in perspective, I know I am doing well. However, I am not yet past being mad at God for allowing me to go through this. I have had several major surgeries that were major successes, with complete resolutions of the pre-surgery problems as the outcome. This was my first "partial success". In talking with other prostate cancer survivors, it seems we are in a group that sometimes by choice don't get public support, unlike breast cancer survivors, because you can come out "cured" of the cancer, but still be really messed up in your sex life, and not able to talk about it to get support publicly. As far as everyone that prayed for my successful outcome knows, I am a complete success. From the perspective of surviving the cancer, I am. But that doesn't mean that I have not had a huge blow to my psyche. Of course, I have had time to gradually accept my situation, and put things into perspective (I will hopefully get to see my kids have grandchildren, I have a wife who loves me anyway, etc), and at a 3+4 Gleason, I wouldn't have made any other choice than the one I made. Thank God this happened to me at 50 rather than much younger and less mature.

I think part of my problem is probably hormonal, which may be a "blessing" as well. I believe that my testosterone level dropped significantly about the same time that my PSA rose (according to the medical community, this is a complete coincidence). I think it is what brought me in to complain to my general practitioner that something was wrong. He had a full blood panel run that turned up the high PSA. Since then, my T-levels have been typically pretty low (mid 200's to start out post-surgery). With the gel, they have been all over the map - as high as 800 and as low as 235 - where it is now. It does not seem to strongly correlate with the amount of gel applied, amazingly enough. Doc has just decided to put me on Testopel (testosterone under-skin pellets). Hopefully this will provide longer term regulation. She claims that part of my erection problems have to be related to the low T-levels, and don't conclude anything yet. The "blessing", aside from getting me checked in the first place, is that it gives me hope that I won't be status quo forever. I think that low T-levels have brought out mild depression at times, though, which can tend to aggravate things as well.

Not really asking anything of the community, I guess, just venting... still hopeful that my situation can improve, wondering if anyone else has had a similar situation.
Regards

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 1/20/2010 6:27 AM (GMT -6)   
Now that you had your pitty party - go hug the wife and thank her for being your friendshocked
 
It's pretty natural to feel less manly for not being able to get an erection. And for some reason - women feel a similar thing when they get their breasts lopped off. Correct me if I'm wrong, but you wouldn't bat an eye if your wife had a double "M" would you?
 
I got a bit depressed when the BLUE pills did nothing but get me a nasty headach....But I got overjoyed when I found that Trimix would get the job done.
 
Being a SINGLE guy, I haven't had the need for an erection for a few Years before or after surgery. So see, there are people worse off..I don't know who they are - but they're out thereyeah
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/20/2010 7:11 AM (GMT -6)   
You are doing good my friend. Do learn to love your wife in new and exciting ways. Do not have expectations of when and how hard the erection should be. It will happen in due time. Give yourself a break today.
For me I am more than two years since IMRT and I am just starting to wake up down below. Life is great and this is a small stumbling block.
Please keep posting.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/20/2010 7:27 AM (GMT -6)   
please re-read livingadream's posting - "... Do learn to love your wife [partner / spouse] in new and exciting ways ... "- there are many ways to be connected physically with your wife - intercourse does not have to be just pennnetration - it can be exploring your body ( at its two year survival mark HOORAH FOR YOU !! ) - as well as your spouse's body too.
-sometimes a cigar is just a cigar - sometimes a pennis is just to pee with - sometimes boobs just keep the dress from falling to the floor ... ( but I digress )
- once again - congrats on the zero club
-hug your wife
-hugs yourself

hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/20/2010 8:17 AM (GMT -6)   
Im_Patient

I hear your frustration. If we are all true with ourself, those of us that have had the ED battle all do understand your frustration, concerns, and fears. Yes it does mess with a man's head. (no pun intended) I have been in that battle. Yes I have a wonderful wife and she gives me great support. After 15 months I found the injection method of caverject. This got the motor running. We are both pleased. I must say our sex life is not what our relationship is based on but it sure is fun anyway.

I suspect that your post was made in one of those low times that we all get. Hange in there my friend. Yes we are blessed. In the zero club, not leaking, and have feet.

Now get some runnning shoes on those feet and start working out. It will make you feel better and may give you a bit of a jump in T levels.

Stay well my friend.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/20/2010 9:47 AM (GMT -6)   
IM

Welcome here to HW Prostate Cancer, glad to have you, and just to let you know, venting anytime you want is one of the priveliges of member ship here.

What was your original goal when you made your choice for surgery? It was to eradicate the cancer and prolong your life. You are coming up on 2-years with PSA's of zeros. You should so thankful to the God that you say you are still mad. Many of us would trade what we have in the other departments for what you have going on with your Zeros. You do realize you are a member by default in our Zero Club.

There are men here that have been through surgery just like yours, then shortly after the surgery failed, then they went through RT or SRT and go through the gruel of raidation treatment, and then later the radiation fails, and then they move on to HT or perhaps nothing, because they ran out of curative means to deal with their cancer. In retrospect, you are doing excellent with the cancer itself.

With a Gleason 7 situation, no need to second guess, you did the right thing for you.

The other important thing you said, your wife loves you anway. That is wonderful, there are those there not fortuante to have a loving wife and partner, and they go through all we do alone. When I was waiting for surgery, my wife of 35 years and I discussed at length, that I might not be able to ever have natural errections again, the I would no longer be able to have "wet" sex, etc.

We have been best friends since she was 18, if I ended up with ED or even ED with incontinence long term, it would do nothing to diminish what we have together. And she knows that if the roles were reversed, I would be there 100% for her.

You have a lot going on for you, my friend, stick with us, and we will help you work through your frustrations.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/20/2010 9:50 AM (GMT -6)   
Im Patient,
That is something we all struggle with at different levels. How much of our identity as a man is tied up in sex really shows up after dealing with PCa and tx. To me it is like the guy who works his whole life as many hours a week as he can, and then when he retires or has to retire, and he no longer knows who he is. That is part of the journey in healing from PCa and that is finding a new way to relate to the world, to our family and loved ones, and most of all to ourself. Jeff gave some good advice and yesterday before IMRT I ran 5 miles with my dogs. Will lift weights today before tx and tonight I will take my grandson out to eat and to the playground. My life is full of meaning and of friends that keep me grounded and offer the support to get me thru this. And it's the dangest thing but each day I want to be romantic with my wife, but only before my IMRT which is in the afternoon. Shoot, I though for sure radiation would leave me feeling sexless, but it hasnt, yet. Hang in there my friend.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 314
   Posted 1/20/2010 11:24 AM (GMT -6)   

Be very happy your wife stayed with you.

Be very, very, very happy.

Zen9


No family history of PC.  PSA reading in 2000 was around 3.0 .  Annual PSA readings gradually rose; no one said anything to me until my PSA reached 4.0 in September 2007, at which point my internist advised me to see a urologist.   
Urologist advised a repeat PSA reading in six months = 4.0 .  Diagnosed May 2008 at age 56 as a result of 12 core biopsy.  Biopsy report by Bostwick Laboratories = Gleason 3 + 3. 
Interviewed two urologists - the one who did the biopsy and another - the latter had the biopsy slides re-examined = Gleason 3 + 3. 
Then went to M. D. Anderson Cancer Center in Houston in July 2008 and met with a urologist and a radiologist.  Biopsy slides re-examined yet again, this time by MDA's internal pathology department = Gleason 3 + 4.   
Chose da Vinci surgery over proton beam therapy; surgery performed at M. D. Anderson Cancer Center on August 15, 2008.  Post-operative pathology report = four tumors, carcinoma contained in prostate, clean (negative) margins, lymph nodes clear, seminal vesicles clear.  Gleason = 4 + 3. 
Minor temporary incontinence; current extent of ED uncertain due to lack of sexual partner; refused treatments for ED as being pointless under the circumstances. 
PSA readings: 
November 2008 = <0.1 ["undetectable"]
June 2009 = <0.1   
December 2009 = <0.1
 


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 669
   Posted 1/20/2010 11:43 AM (GMT -6)   
Thanks for letting me self-indulge. It has helped me recover my bearings. Purgatory, as you mentioned, my original goal was to eradicate the cancer and prolong my life. I am blessed.

Yes, corvetteman3, that post was made at a low. Good to hear I am not alone in getting them.
I guess I have struggled with this in a number of ways -- I knew I put too much of an emphasis on sex before this all happened, and it's been hard to get past it as a result. It has certainly been an opportunity for personal growth.

Livinadream, it is good to hear that you are still seeing improvement after 2 years, that encourages me.

Steve, thanks for letting me have my "pity party"... I hope I didn't piss you off, it wasn't my intent. I am very fortunate to have a loving partner. I feel for you, man, I would not want to deal with the added complications our situation brings into a new relationship.
I also have to say that on second thought, I have to disagree with my argument that PC is more difficult than breast cancer. Either one is going to have a big impact on your psyche, and how public you make your battle is up to you.

Thanks all for the opportunity to express my feelings... sometimes it's hard to find kindred spirits.

Reinardo
Regular Member


Date Joined Jan 2010
Total Posts : 23
   Posted 1/20/2010 3:22 PM (GMT -6)   
Being on AS the problem discussed here does not really concern me but I wish to point out to people who suffer from ED that they should not hesitate to consider an implant to deal with the problem. There are implants for cardiac deseases that function very well, artificial cardiac valves, devices to control heart rythms, to name a few. So why shy away from implants to deal with Ed and urinary dysfunction?? Two years ago I came across a fellow by the name of Hansjörg Burger  who is a member of a German prostate cancer support group Rhen-Neckar e.V and had specialised in ED and methods to deal with it. He had published about the implant in Germany's leading support group magazine BPS, somewhat similar to the American PCRI Insights. As far as I know the device can control urinary function and be switched to erection. It appears to me that with the implant a fellow can have an erection when and where he wishes to. He claims to know of enthusiastic reponses from people who use the device. He has offered to  inform about the implant when being contacted under support group email shg.pros.m@web.de.   Reinardo


Diagnosed  in 2001, PSA = 8.9  Gleason 2+3 = 5
In 2001/2002 triple hormone therapy  protocol Leibowitz.
Watchful waiting thereafter.
Actual PSA = 10.6
Change of lifestyle and diet, food additives,  homoeopathy
In 2009 palliative TUR

Post Edited (Reinardo) : 1/21/2010 12:35:02 AM (GMT-7)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 1/20/2010 4:10 PM (GMT -6)   
Im_Patient, I apologize if I gave you the impression I was upset. I had my “tough love” hat on this morning and probably got a little carried away.
 
After watching a weeks worth of the horror in Haiti, I won’t have a pity party in my house for a long time.
 
Heck, at this point I'm just happy to be aliveyeah
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/20/2010 4:12 PM (GMT -6)   
IM patient, welcome to HW and also, welcome to my world- or maybe I should say my nightmare.... tongue I am at 2 1/2 years post surgery and have never had the slightest hint of any recovery so far. When I had the surgery, ED didn't seem to be much of a possibilit, after all we all know it only happens to the other guy. Reality is set in and I now am facing the facts- and adjusting to it- that I may/probably will never regain any useful function. Sad- yes, mad? furious, yes, resigned? beginning to accept the inevitable. On the other hand, as several said, I wake each day, cancer free- so far, with dry underwear, a good appetite, healthy, and continue my life, enjoying my grandgirls, life and the little pleasures that come from living a satisfied life. Would I do it different? That's not the question, as I can't back up and get a do-over. Past is the past now. AS it was, my only options were surgery or AS, so that really narrowed the range, not even sure I would have qualified for AS, with chronic BPE and such an increase in PSA that came on quickly. So, to state the latest catch phrase "it is what it is" I'd like it to be different, but that's life....There's also Trimix and Bimix, and even the implant to help make my sex life approach something near normal, so who am I to complain- I'm blessed...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 669
   Posted 1/20/2010 4:49 PM (GMT -6)   
Reinardo, thanks, I am very aware of the implant option. My doc has said that she will encourage me to get one if the time ever becomes right to discuss that. She thinks that I still have a probability of things getting better, considering my testosterone issues. If it comes to that, I expect I will go with an implant.

James, it is amazing the psychology that we go through... before the surgery, I looked at my woody in all of its splendor and actually believed that it would be impossible for it to be anything less... Now I have had to coin a new term for it... soft-on... tongue

Post Edited (Im_Patient) : 1/20/2010 4:16:37 PM (GMT-7)


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 1/20/2010 5:36 PM (GMT -6)   
IM...ED is very similar to any form of grieving. Just remember the five stages of SARAH....

S Sorrow
A Anger
R Rejection
A Acceptance
H Healing

All of us must past through these five stages in that order during our recovery with cancer.

Just food for thought. You are exactly where you should be at this point in the healing process.

Best of luck to you.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 1/20/2010 8:15 PM (GMT -6)   
IM,

I agree with the advice you got above, but wanted to chime in on the technical side of things. Your post implied that low levels of T is what prevents your erections. I don't believe this to be true. I am on HT with T=0 and still will have an erection with the help of blue pill. What I don't have is any desire for sex. I just take pills on the advice of the doc. None of this means that my wife and I are not close physically - we are in may ways.

Greg B.
Father died from poorly differentiated PCa @ 78 - normal PSA and DRE
5 biopsies over 4 years negative while PSA going from 3.8 to 28
Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8
Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere + Avastin)
PSA prior to treatment 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60
RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins
PSA undetectable for 8 months, then 2/6/2009 0.10, 4/26/2009 0.17, 5/22/2009 0.20, 6/11/2009 0.27
ADT (ongoing, duration TBD): Lupron started 6/22/2009
Salvage IMRT to prostate bed and pelvis - 72gy over 40 treatments finished 10/21/2009
PSA 6/25/2009 0.1, T=516, 7/23/2009 <0.05, T<10, 10/21/2009 <0.05, T<10


turner
Regular Member


Date Joined Jan 2010
Total Posts : 119
   Posted 1/20/2010 10:04 PM (GMT -6)   
IM P
Some very sound advice above. Like you, ive had my moments this past year. Although ive made good progress in the e/d battle, its seems rather unimportant now with my recent psa failure. Belive me..I would trade you places if it were possible because where iam about to go, there most likely wont be any errections or desire even if i (we) wanted.Add to that hot flases,fatigue,etc..
Not knowing your stats or history(other than gleason 7), all i can say is hang in there. Like my mother always said..."sure,it could be better.But you dont have to look very hard or far to realize it could be ALOT worse". I reminded of this every time i vist this and other fourms..turner
 
 diag 2/09 @ 3 wks before 50th
 
 psa 4.5
 
 t2b
 
 5 of 6 cores pos....5,20,50,25,5 %
 
 gleason 3+4
 
 N/S RALRP 4-20-09
 Path: lymph node -
          seminal ves -
          margins -
          EPE -
          preineural inv-
          gleason 3+4
          stage pt2c
          tumor vol 40
Continence- 99%- @3-4 months post op
ED-gradual work in progress w/meds
         
 
 psa 7/22/09  0.1
      10/23/09  0.3
       11/23/09 0.5
       01/05/10 1.1
 Met with raidioligst 12-28
 Meeting prostate oncologist @Uof M 1-11
 Not like'n where this heading.  Surgery was and still is a walk in the park compared to what lies ahead :(
 
 
 
 


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 1/20/2010 10:54 PM (GMT -6)   
Turner:
 
Who did you meet with at Umich?
 
Mel
63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 669
   Posted 1/20/2010 11:23 PM (GMT -6)   
Greg, I agree that low T levels don't necessarily correlate with poorer erections. I think that my doc is hoping that getting me to consistent and normal levels will help my progress in the ED department. Whether she thinks that part of this is psychological, I am not sure (but I suspect this is the case). I am hopeful. Livinadream has given me hope that progress is still made past two years. We'll see.

My general practitioner has told me that if it was up to him, I wouldn't get ANY testosterone therapy, too risky. My urological surgeon is confident that she got all of the cancer. I am grateful that she is willing to try to get me to normal T-levels. I'm also grateful that this is even an option, given what some of you are going through. Of course, we are monitoring the PSA more often than we would otherwise. I consider it also a "test" or "acceleration" of a conclusion of whether the cancer is gone... unlike the decision to have the surgery, I am willing to take a risk on this, if that is what it is. You all will hear how it goes.
Gleason, 3+4; PSA, 7
Robotic Prostatectomy, March 2008, nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
cancer contained, no penetration, lymph nodes clear
PSA consistently <0.1 since surgery


Jim B
Regular Member


Date Joined Mar 2009
Total Posts : 45
   Posted 1/21/2010 12:25 AM (GMT -6)   
Im_Patient,

Really glad that you found this site and that you can see that anyone with any concern related to PC is going to get lots of advice and support from a variety of sources. I am in the same boat as Greg B above. Now that I am off HT for a few months I'm really hoping that desire will come back. Strange to say that isn't it? I never thought I WOULDN'T have the desire but really it's the same as what you said earlier today. You never would have thought you would be in this situation before surgery. Like our fearless moderator said also, "it is what it is" and we just have to deal with it. We are all pretty darn happy that we are alive right now with all of the options available to us. The alternative is not too pleasant. Good luck to you.

Jim B
Dx age 48 PSA 11.58
Biopsy Nov 04
4 of 6 specimens positive
gleason 4+5=9
Perineural invasion at two locations
40 radiation treatments Jan-Mar 05
PSA May 05 0.07
Aug 05 - 0.15; Feb 06- 0.92; Oct 06- 0.55; Sep 07-0.42; Mar 08-1.13 Aug 08-2.26
Nov 08-3.98; Jan 09-5.81; Apr 09-9.97; (start HT again) May 09 1.84; Aug 09 0.37; Oct 09 0.32; Dec 09 0.37
Bone scan in Nov 08- one spot in pelvic region 1.9cm with SUV of 11
Bone scan in Mar 09-two spots. Original now 2.5cm with SUV of 22 and 2nd spot less than 1cm with SUV of 7.8
Bone scan in Nov 09 - NO CHANGE WOO HOO!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/21/2010 7:16 AM (GMT -6)   
I must say LV-TX hit it on the head. When we are fighting the ED battle I went through the Grief Process in classic style. I knew what was happening but that did not make it any easier. I am happy to report that after meeting the the prick int he D*** things are looking up.

I am happy to be alive but like most of you "We want it all"

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/21/2010 8:58 AM (GMT -6)   
Jeff, glad that the prick in the prick is showing results
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

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