Just went shopping-- suggestions?

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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 1/20/2010 1:35 PM (GMT -6)   
OK-- I finally went to Walmarts to pick up stuff in anticipation of Tuesday's surgery.
Keep in mind I have a 38 inch waist and normally wear boxer shorts. Here's what I bought:
 
A package of 7 briefs-- Hanes Large (36-38)-- only $7 and they fit well right now.
A pckage of 3 Jockey briefs ($9), size 38. They fit well.
A package of 2 Jockey boxer briefs xl (40-42), $9., they also seem to fitr just fine.
 
I plan on taking them all as I'll be there for about 8 days post surgery. I figure I'll have to see what fits best. I just don't know if everything will be too tight due to swelling, but I also know I'll need support. Any comments?
 
I also bought some alcohol and swabs. I also got polysporin ointment.
 
I also got these pads and hope they are the correct ones. I got Tena Serenity Overnight Pads/Full Coverage -- 30 of those in the package and Tena Serenity Moderate pads Long, 60 in the package.
 
Still on my list -- an "invalid pillow" or whatever they call those things you sit in with a hole in it and also plastic sheets.
 
Your comments?
 
Mel
63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Casey59
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Date Joined Sep 2009
Total Posts : 3172
   Posted 1/20/2010 1:37 PM (GMT -6)   
Plastic sheets? Overboard.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 1/20/2010 1:53 PM (GMT -6)   

Fine. YOU come over and change the sheets!

(I actually mean sheets guards or whatever the heck they are called-- maybe liners?)

 

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/20/2010 1:58 PM (GMT -6)   
Hey, I'm willing to help, but that only extends so far...

IMHO, still overboard.

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/20/2010 2:00 PM (GMT -6)   
Mel,
We bought 8 pair of shorts with stretchy waistbands at Goodwill will for ~$12. Well worth it. My waist line increased 3" after the surgery but quickly went down. A pair of loose sweatpants is great for the ride home.
I also bought a pair of oversized cargo pants, (the ones with pockets on the leg). I cut out the back of the pocket and was able to run my catheter snake out the hole into my bucket. The height of PCa fashion.
$2.00 at Goodwill.

Now that I am wearing pee pads I find that a size smaller than usual brief is the best. It holds the pad to my package.
Jeff

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 1/20/2010 2:02 PM (GMT -6)   

I wish you wouldn't use the word "overboard" in this discussion

 

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/20/2010 2:04 PM (GMT -6)   
Mel, maybe hospital pad, a 1/3 sized pad placed under the sheet, plastic on one side. That is a little more reasonable than plastic sheets. Imagine a puddle forming in the middle... tongue

Some paper tape to retape the catheter tuning will probably be needed, especially once you begin your showering. I know it took me a few tries with coiling and taping the tubing to get it right for my needs. Get the donut at any pharmacy, I recommend the foam one, the air inflated will be a disappointment, I bet.

don't see the need for alcohol for now, also, there's no need to spend a lot on pads, etc. Just a few for when the catheter is removed, then you will know just what adsorbancy and size you may need.

As usual, there's a couple threads you can read and se what others felt was needed.

www.healingwell.com/community/default.aspx?f=35&m=586391

www.healingwell.com/community/default.aspx?f=35&m=934032

www.healingwell.com/community/default.aspx?f=35&m=1258414&p=1&ord=d
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/20/2010 2:08 PM (GMT -6)   
Synonyms of “overboard” (from thesaurus) that might also be inappropriate or unwelcomed here: enormous, stiff, superabundant, unmeasureable

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 1/20/2010 2:08 PM (GMT -6)   

Jeff:

 

I'm wondering if everything that's comfortable now will be way too small post-surgery.

OTOH, I am told I need to wear something that will support  my poor swollen injured members!

 

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 1/20/2010 2:16 PM (GMT -6)   
James:
 
Do you mean like medical tape for bandages? Or scotch tape (probably not).
Not sure what you mean by paper tape.
 
One of the reasons I'm asking about all of this is that we will be staying at apartments on the hospital campus. The general area is rather poor (downtown Detroit) and there are no shopping places nearby. So we hope to bring as much stuff as we can.
 
Mel
63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/20/2010 2:18 PM (GMT -6)   
Mel,
For the first few days you will change sizes faster than Oprah. Don't buy anything retail- unless you really need new undies.
You're not going to the Oscars this week and do not need to be in fashion. Your regular size undies will be tight enough to hug the boys. If you are anything like me, and most likely you will be, for the first few days at least, you will be wearing disposable diapers. There was no need for undies. Your size will gradually shrink so that your 38s will fit fine.
Sweatpants were very handy. Make sure to take home the slipper socks from the hospital - try to grab a extra. They were nice.
Jeff

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 1/20/2010 2:36 PM (GMT -6)   
Since you have an existing back issue Mel, we suggest you may want to take your own pillow (s)  for the night  in hospital if it is possible. We found this helped and if you don't need it,  it can stay in the car. However my hubby needed his own pillow (He has had previous back surgery),  as hospital pillows are worse than hospital beds sometimes (strain on neck etc). Own pillow helped maintain his comfort when he was back in the ward recovering. Good luck with your surgery and recovery.
Creed_three (Lana) - with husband "CJ" now aged 52 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. Next PSA April 2010.


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 1/20/2010 2:39 PM (GMT -6)   

Jeff:

For the first few days I won't need diapers--I'll have the SP cath, methinks!

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/20/2010 2:43 PM (GMT -6)   

I bought a couple pair of cotton pyjama bottoms with the drawstring. I cut the elastic waist band at front so it would open all the way to the bottom of the front to the crotch. This allowed me to hang the catheter tube out the bottom of the front opening and used the drawstring as the only closure at the waist. I put a piece of duct tape around the catheter tubing at a comfortable location and safety pinned it (the tape) to the outside of the pyjamas. Easy open and easy up and down...easy disconnect of the safety pin to drop pyjamas and hop into shower.  I wore mostly the night bag.

Get a foam donut pillow. The one I got and still use once in a while is a urethane foam type with a cotton cover for easy removal and washing. The inflatable one sucked for me.

Get stool softeners. You'll be glad you did.

Good luck on your surgery!

 

Mike


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Ricky2
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 1/20/2010 2:46 PM (GMT -6)   
Mel,

I would include a bottle of stool softeners. Especially if you take some pain relief medication. (most pain medication causes some constipation) You don't want to put a lot of pressure on that area for a while. I took stool softeners for a couple weeks and had no problems. The cushion and plastic sheet may be useful, but doubt it. I never was the least bit sore sitting down and always dry at night.
Good luck to you!

ricky
Age 70

PSA 5/2008- 3.6, PSA 7/2009- 6.1, retested 9/2009-5.1.
Biopsy 9/2009. 4 of 12 positive. Gleason 3+4=7
CT and bone scan negative.
Robotic De Vince Surgery 10/29/2009. 1 night in hospital. No pain. Cath out on 11/6
Pathology Report: Gleason score 3+4. Margins slightly involved <.1mm to .25mm. Perineural invasion present, stage pT2c. Tumor 18%. Seminal Vesicle - absent, Lymph Nodes 0 of 6.
Continence- first 4 weeks after cath out Dry at night, rest of time, bladder held nothing. 6-7 pads per day. as of 12/30 no pads most of time. almost dry except for a few drips. I keep doing Kegels.
ED. Started VED on 12/17. 15 min every other day. 20mm cilias twice a week. No sign of life yet.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/20/2010 2:46 PM (GMT -6)   
Mel,
I had a regular cath but it leaked like crazy. The balloon was underinflated to reduce spasms.
I don't know how the SP cath works or if it is tighter than the Foley. Hopefully it is. The hospital gave me a few days supply of diapers when I left and they were used up by the second day. I'm sure Kimberly Clark stock jumped that day.
My mantra was not to buy anything new for a temporary condition. Goodwill needs paying customers.
Jeff

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/20/2010 2:48 PM (GMT -6)   
Mel, paper medical tape. Aalso, one sized to small underwear is what is needed. You want snugged, held in support, both to hold those swollen parts still and to hold the penis and it's catheter tube in position, so there's as little movement of the tube in the opening as possible, eliminating irritation and discomfort to the opening.... I bought one size smaller briefs, extra thick- think the Michael Jordon commercial for his brand of Hanes briefs. Soft waistband, thick and adsorbant material throughout.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 1/20/2010 2:54 PM (GMT -6)   
In addition to the stool softeners, invest in a jar of Benefiber, or Metamucil to stir in your coffee, juice etc..............can't have too much help in that first week. Cargo sweat pants are great; snaked the hose out of an existing hole, and hung the bag on the lip of one of the pockets.........strutted around like a peacock---didn't care who saw me..........you'll come up with some solutions on your own, I bet. Hang in there--------
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 1/20/2010 3:17 PM (GMT -6)   
Mel,

You will be better prepared than a lot of us, including me!

Personally, I didn't wear any underwear for days. Post-catheter removal, I somehow converged on boxer briefs and have stuck with those ever since.

Don't forget slippers, for when you're trudging up and down the hall with your IV pole. Have a race with the other guys and their poles.

The doughnut pillow, that would have been nice, especially for the ride home. Wish I'd thought of that or heard of it back then.

Regarding the sheet protectors, those are easy to find in the baby section at Target and such places.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009 still undetectable!


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 1/20/2010 3:24 PM (GMT -6)   
Mel,
As you start walking while you still have the catheter you may want to buy some elastic band to secure the tube to your leg so it doesn't pull on the catheter.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/20/2010 3:26 PM (GMT -6)   
I can tell you first hand, as I am now my 112th day with a SP catheter, now with a foley catheter added after yesterdays surgery, that the spasms hurt far more from the SP then they do from the Foley catheters, as the SP sits up higher and tighter in the bladder. Doesn't mean you will get any, some guys do, some dont. I have already had at least a half dozen today alone ,but my circumstances are way different.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 1/20/2010 3:32 PM (GMT -6)   
As a practical matter, I grabbed everything I could at the hospital. Extra tape , extra pads, extra whatever. For $50,000, it was the least they could do. You will alos know better what you need by then.

I found a bottle of Milk of Magnesia helped get me going again.

Sometimes you end up buying a nunch of stuff you don't need. We all recover differently.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6946
   Posted 1/20/2010 3:36 PM (GMT -6)   
I am DaVinci +12 weeks, had a Foley Catheter -

1) I see comments about paper tape for the catheter tube (this is a type of medical tape, just paper-based so that it does not cause as much irritation to the skin). Tried that, but I was leaking like crazy, and that did in the tape. I found a stretch bandage (I think the J&J name was "Coach"; the Walgreen's edition is "Tender tape Stretch Bandage" - comes in 2in x 6 yard roll). Beats the tape, does not fall apart if it gets wet from leakage, you can let it dry, and if careful can reuse one. One wrap above & one wrap below the t in the tube works.

2) A couple of suction cup mount hooks - biggest they have - I got them to put in the tub so I could hang the cath bag upright while showering; second on the tile wall next to the toilet, still to keep the bag upright. Whole purpose there is to not let any debris in the urine get back into the valve, which will stop it up, and trust me, you do not want that.

3) Loose fleece type pants - or some basketball type quick pants - you need something that is large enough in the leg to put the cath bag through (think a bit bigger than a dinner plate), or that zips / snaps on the side. I bought Adidas 100G Snap pants for one; and some "on-sale" Old Navy fleece pants - split those from above the knee to above the ankle - that way you can drop the bag through and carry it with the tube at a reasonable height. Don't split them all the way down or you'll have to pin them back together.

4) Some "adjustable" Depends or Walgreens underwear. They open up on the side. With a Foley cath you may leak.

5) A pack of "underpads" - Walgreens or store brands - come in packs of 10. Put them wherever you will be sitting for any length of time (car, chairs at home) - soaks up any leaks.

6) I got the plastic sheet to protect the mattress, but never used it - I used the underpads instead, less noise and discomfort. A couple of smaller ones, or the large one under the sheet. They can be reused until they do their job. Keeping it till I do the radiation, as I'm told that is a whole new round of incontinence.

7) A squatty or square bucket, 12/14 liters, - as big at the bottom as the top - to hang your cath bag in, at least at night by the bed, maybe by the chair during the day as well - more than once the value came open unexpectedly. Put an underpad under that too. Most mop buckets are small at the bottom - they will turn over.

8) Boxer shorts are pointless with a Foley cath unless you switch to the leg bag - I did not, was putting out more than it would have held, and didn't want to be getting up all night.

9) More toilet paper and paper towels than you think you need - you may be cleaning up more than you expect (at least I was, with the cath issues).

10) a large cheap plastic measuring cup, at least 1 liter size, with liter markings - you might be asked to measure what you drain from the cath, and they like milliliters. And the wife will have a piece of what's left if you use hers. You'll probably trash it afterwards, so cheap is the operative word.

11) A "pickup" tool from Walgreens or the like - you will not be able to lean over enough to pick anything up off the floor for days.

12) Borrow a cane - you will need something to help you balance for the first few trips out walking.

13) Get a couple of extra cheap (you'll throw these away too) pillows & cases to use to block youself in bed. You will not want to roll over on that tube.

14) Cottonelle, Wet Ones, or generic wet-wipes to clean around the cath tube and clean up leakage - getting a UTI will be a killer - had two.

15) Lysol wipes or spray for the bathroom - need I expound on my catheter ---:(

16) And yes - the doughnut pillow is a wonderful thing, even 12 weeks out.

17) Some cheap house slippers - you'll probably leak all over them, and want to throw them away "after catheter"

I'll walk around & see what I missed - maybe another post later.

Post Edited (142) : 1/20/2010 3:08:38 PM (GMT-7)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 1/20/2010 3:48 PM (GMT -6)   
MEL:
- make sure any after surgery otc pain killer is non-aspirin ( which can reduce clotting and promote bleeding) ...
- the rectum will be tender so make sure (as stated above) to have a stool softener - I did my regular routine of daily metamucil and stoof softener.... b.m.'s were not too bad after the first day home ...
- my post-surgery /OHIP care came with a take home package -lots of stuff for home recovery including a night catheter bag and a traveller leg catheter bag - it had built in velcro strips straps to tie around your leg for comfort - the bags could be used for 10 days before replacing - better bags than at the hospital. - our VON ( Victorian Order of Nurses) who came to our home was great - answered a lot of questions and put me and Steve at ease.
- I brought my own orthopedic pillow (the bumpy type) and CPAP to the hospital - it looked like I was going to stay there for two weeks instead of just 3 days - my portable dvd player and earphones helped past the time between percocet and the morphine pump ... zzzz....
- wishing you all the best
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/20/2010 4:12 PM (GMT -6)   
142, Welcome to the Forum. Sorry you have to be here, glad you came, nonetheless. I'd completely forgotten about the elastic bandage trick. That's what I did end up using, rather than the adhesive tape. Just wrap and adjust as needed. I notice that Mel is gonna have a SP, so that may not be needed, unless the include a penis catheter to maintain the stitching and opening, then he could use it.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

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