Question on Radiation side effects.

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Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/21/2010 9:43 AM (GMT -6)   
 
 
Well I went for my third treatment yesterday and it still was uneventful.  However,  for the last two nights I have been unable to sleep.  I feel tired but cannot sleep, I do not feel anixous or worried just wide awake.  Has anyone experienced this during treatment?  I really do not want to take sleeping pills but I need to get some sleep.  No napping even during the day.
Just wanted to know if this could possibly be from the radiation.
 
Jerry1
 
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 1/21/2010 9:48 AM (GMT -6)   

Hi Jerry,

I completed 37 IMRT treatments back in July.  I don't recall any sleepless nights during treatment.  it could be from anxiety.  I did have fatigue which started about half way into treatment and lasted for a couple of months afterwards.  Sounds like everthing is pretty normal for now.  Don't worry, it will be over before you know it.


Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/21/2010 10:02 AM (GMT -6)   
 
Thanks Booteel for information.  Glad to hear your treatments went well.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 1/21/2010 10:09 AM (GMT -6)   
Jerry - did you go through the same thing before or after your surgery?  Anxiety sounds like a like cause to me too.
 
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/21/2010 10:37 AM (GMT -6)   
I haven't had the treatment, but have found that I always have trouble sleeping after unusual or traumatic events- mild PSTD, I suppose. I had it for weeks after a really serious accident, again after PCa surgery and at other different times. I suspect yours most likely is stress and worry from beginning something new, with the strain of what the results may be ahead of you. If it doesn't ease, consider the pills, you need to get as much rest as you can, to help your body combat the effects. Just my opinion, of course.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 1/21/2010 11:39 AM (GMT -6)   
Hi Jerry,

I'm just one treatment off your count but I would agree with the others that the sleepiness is probably due to anxiety. I was awake most of the night before my 1st treatment, got about 1/2 night's sleep on the second night and last night I slept most of the night. So far I've managed to go to the gym for moderate workouts (30-45 minutes) each day and that seems to clear my mind and tire me a little too.

Hope you get a good night's sleep tonight,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 72gy


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/21/2010 11:45 AM (GMT -6)   
Jerry, you know I had a hard time with the SRT, and I had many near sleepless nights during my 39 treatments, often be up till 3-5 AM before Ambien finally would knock me out. I was put on Ambien 10 years ago when I went through my first bouts of radiation treatments, at that time, they said that was a common problem. Like you, I can't even nap in the day time, my brain won't turn off.

If you have to, it won't hurt to have your dr. put you on something like Ambien for the duration of your RT. It's not going to make you addicted in that short a time, and it might help. I found the Ambien CR doesn't work well, I do best with the generic 10 mg ones.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/21/2010 12:28 PM (GMT -6)   
 
Thanks all I do not feel anixious and am not a worrier but who knows it is a lot of stress.
So thank you all for your input may ask the doctor for a prescription if it keeps up.
going for number 4 today so far everything good except for the second day when they had a problem with the machine after I was lined up and hate to lay there on that metal table for almost an hour.  But if that is the worse thing to happen it will be pretty good.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/21/2010 12:34 PM (GMT -6)   
If you remember Jerry, I had a lot of alignment problems with my treatments, ranged from 15/20 minutes to a good hour, and yeah, it does get old on that table.

It was my original radiation dr that put me on the Ambien years ago, he said the sleep was more important than being on the meds. Also, in the generic ambiens, they make a coated and a non-coated version. if you have a choice, you want the non coated version, as it works faster. they make the coated version because there are idiots that grind up ambien to dust, take it, then overdose on caffine so that the ambien will make them hallucinate. pretty stupid, so they make the coated ones that cant be ground up easily. what fools will do.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/21/2010 12:47 PM (GMT -6)   
Jerry,
I am not a good sleeper by nature and like David my mind runs constantly. Have slept okay thru the first few treatments and even took a nap after the first one. Could be a number of things for you, but once again sleep helps you deal with all of this so check it out with your Dr if it continues. Looking forward to your one week update but it sounds like it is going well.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 1/21/2010 7:36 PM (GMT -6)   
I slept fine, in fact I dosed off on the table a few times and had a good nap once when the machine broke half way in and they decided to fix it and finish the treatment.
Father died from poorly differentiated PCa @ 78 - normal PSA and DRE
5 biopsies over 4 years negative while PSA going from 3.8 to 28
Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8
Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere + Avastin)
PSA prior to treatment 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60
RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins
PSA undetectable for 8 months, then 2/6/2009 0.10, 4/26/2009 0.17, 5/22/2009 0.20, 6/11/2009 0.27
ADT (ongoing, duration TBD): Lupron started 6/22/2009
Salvage IMRT to prostate bed and pelvis - 72gy over 40 treatments finished 10/21/2009
PSA 6/25/2009 0.1, T=516, 7/23/2009 <0.05, T<10, 10/21/2009 <0.05, T<10


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/21/2010 7:44 PM (GMT -6)   
Geebra if you were able to sleep on that table I bet you can hold your own in a beer drinking contest. I go in with a full bladder as they have asked me to and that machine stops just in time for me to make it to the restroom.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Jim B
Regular Member


Date Joined Mar 2009
Total Posts : 45
   Posted 1/21/2010 8:05 PM (GMT -6)   
I was just like Michael - get me off the table right away so I could pee!! I had 40 treatements but I don't recall any problems sleeping in the evening.

Jim B
Dx age 48 PSA 11.58
Biopsy Nov 04
4 of 6 specimens positive
gleason 4+5=9
Perineural invasion at two locations
40 radiation treatments Jan-Mar 05
PSA May 05 0.07
Aug 05 - 0.15; Feb 06- 0.92; Oct 06- 0.55; Sep 07-0.42; Mar 08-1.13 Aug 08-2.26
Nov 08-3.98; Jan 09-5.81; Apr 09-9.97; (start HT again) May 09 1.84; Aug 09 0.37; Oct 09 0.32; Dec 09 0.37
Bone scan in Nov 08- one spot in pelvic region 1.9cm with SUV of 11
Bone scan in Mar 09-two spots. Original now 2.5cm with SUV of 22 and 2nd spot less than 1cm with SUV of 7.8
Bone scan in Nov 09 - NO CHANGE WOO HOO!


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/22/2010 5:16 PM (GMT -6)   
 
Well last night I had a good nights sleep only woke up once to go to the bathroom.  Feel great today and finished my first week with no problems.  Hope it keeps up, I have to say the place I am going to for the treatments is great, except for the day the machine broke down, I go in at about 1:15 they take me after just a few minutes and I am out by 1:30PM and the people and doctors are great.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 1/22/2010 5:37 PM (GMT -6)   
Jerry, glad you got a good nights sleep! Super that this week went well for you. Mine was fine too except I was scheduled for four treatments this week but only got in three due to the machine breaking down today. Good thing we didn't finalize those Hawaii plans for the day after finishing radiation since my cycle will go long now.

Hope everyone else did as well.

Take care,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 72gy


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/22/2010 8:02 PM (GMT -6)   
Mine is going well although my neuropathy has increased in intensity. Today I felt a stinging pain on the left side during tx and had to take a couple of deep breaths. The Dr. said the radiation should not cause that type of pain so it very well could be from the nerve in my back which is creating the neuropathy. But that machine was throwing out the rays on that side when it hit, so I just dont know what to think. Hopefully it was a one time occurence. But I am in and out of there in 25-30 minutes and meet with the nurse and Dr. on Friday's. It is in a small town and my appt. time is 2:15 pm and the place is usually empty or one or two other people. No cookies or cake here, and no fellowship, but I really want to leave and just get home with our 4 pets, plenty of plants that my wife cares for and our home is surrounded by trees and silence. feel like I heal better at home. That was my week in a nutshell so not too bad.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/22/2010 9:45 PM (GMT -6)   
Michael, just glad you got that first week down. Hope you can continue without picking up any complications.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/22/2010 9:49 PM (GMT -6)   
Jerry and Jake, glad you two are getting along with your treatments too, sounds mostly non eventful for the most part, and thats a good thing, hope it stays that way for you
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 1/23/2010 6:04 AM (GMT -6)   
Jerry,I just had my second treatment and I agree with the other guys it is stress I have slept about 4 hours in the last two nights which is unusual for me.I think in a couple of days I will be back to what I consider normal.goodluck and try to relax.

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 nerve sparing by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-10
organ confined
extracapsular seminal vesicle involvement
lymph node involvement

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