Welcome JohnK11- first post- waiting for PSA and stats listed

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James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 1/21/2010 10:41 AM (GMT -6)   
Welcome JohnK11 to HW. sorry you have to be here. JohnK11 posted in another thread. He said:

I'm from Naperville, IL, USA 30 miles west of Chicago. I hope that my luck turns positive with the next PSA test (so far, it's been negative)

Age: 65, PSA : (4/09) 4.2; (10/09) 6.7 (post-biopsy before surgery); 7/6.4
(6 weeks post surgery); 9.2 (10 weeks post surgery)
Family history of PC (Father at 85, uncle at 75; another uncle has brain
cancer at 62)
Biopsy: 8/09 - 2/12 positive; one 70% Cancer, Gleason 4+3; other 21% 3+3
CT scans : (Pelvic and chest) negative
Da Vinci RP: 10/9/09 (65th birthday), Right seminar vesicle invaded/removed;
surgeon went "wide around the prostste, negarive margin"
left nerves saved, 1 day in hospt, on catheters for 10 days,
Path Rpt: Gleason 4+3, pT3 b/c,
Incontinence: at 3-1/2 month, down to 3 pads + diaper per day (was 8 pads
for 1 month ; expect slow recovery since large amount around prostate was
removed, as well as larger section of tube
ED: no response as yet
Post Surgery 7/6.4 (6 weeks post surgery); 9.2 (10 weeks post surgery)
so doubling time is 2+ month.
Bone scan and Prostascint/MRI fused scan* negative (* real expensive)
Latest: Trelstar injected 12/16/09; awaiting anxiously PSA test on
early March; 5-weeks after Trelstar--see no evidence of heavy hot-flashes
(some warmth), though incontinence seems to be worse, as well as having
trouble sleeping after the 5,6th hourly bathroom break at night (bladder
capacity seems to be lower than 3 weeks ago).

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 1/21/2010 11:50 AM (GMT -6)   
Welcome and good luck, John. Looks like your PC journey has some serious complications going on, hope your next test is a big improvement. Please keep posting and keeping in touch with us.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

Veteran Member

Date Joined Nov 2009
Total Posts : 1100
   Posted 1/21/2010 12:35 PM (GMT -6)   
Any discussion with a radiation oncologist about potential use of salvage radiation? 
Age 45.  Father died of p ca. 
My psa starting age 40: 1.4, 1.3, 1.43, 1.74, 1.7, 1.5

Cajun Jeff
Veteran Member

Date Joined Mar 2009
Total Posts : 4119
   Posted 1/21/2010 9:05 PM (GMT -6)   
John, Welcome we are all in pulling for you.

Best wishes. Keep us posted.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)

Regular Member

Date Joined Jan 2010
Total Posts : 25
   Posted 1/22/2010 9:21 AM (GMT -6)   
re : further radiation treatment

Before the surgery, the urologist did discuss
the likelihood of radiation treatment 6-9 months after the
surgery to "make sure the cancer is removed totally". The
wait is to let the surgery region heal, as well as some
of the side effects.
Since the high reading 6 weeks after surgery,
and the T3c grading, it does not appear to be that useful.
radiation at the former-prostate site would only
make sense if there were local spread (the surgeon already
went "wide outside the prostate" so that much of the surrounding
material was already removed. He see negative margin, which
would imply any residual cancerous cell is not likely to
be JUST nearby in contiguous regions ONLY. The most likely
situation is widespread release of cancerous cells, some of
which has taken foothold in one (or most likely, several)
locations, mostly likely bone or lymph nodes (the nearby lymph
nodes removed during the surgery did not show sign of cancer).
So, even if radiation remove some of the cancerous
growth, it is unlikely to remove all. I'm not sure that it's
worth the side effects (I always have some bowel problems,
and radiation will exacerbate that).
In any case, it is an option which I will consider--
if my PSA goes down to near zero due to the Trelstar, I may
just hang on keeping the hormone treatment until it stop
working. If not, I may wait till PSA rise above 30, so that
Bone scan will more likely find the cancer (I found out
after the 2 scans that below 20 PSA (some say 40), the growth
is too small to be seen by such scans).

Jim B
Regular Member

Date Joined Mar 2009
Total Posts : 45
   Posted 1/22/2010 10:04 AM (GMT -6)   

Really sorry you are hear but it sounds like you have a pretty good understanding of what is going on and you are already making those important contingency plans. One thought would be a PET Bone Scan. They did that with me when my PSA was rising to just under 10 and that scan was able to find the first spot of bone metastasis. I think the test is expensive (my insurance company has questioned my doc why he wants to conduct it) but if you can get it, it might be worth adding that to your possible bag of tricks.

Jim B
Dx age 48 PSA 11.58
Biopsy Nov 04
4 of 6 specimens positive
gleason 4+5=9
Perineural invasion at two locations
40 radiation treatments Jan-Mar 05
PSA May 05 0.07
Aug 05 - 0.15; Feb 06- 0.92; Oct 06- 0.55; Sep 07-0.42; Mar 08-1.13 Aug 08-2.26
Nov 08-3.98; Jan 09-5.81; Apr 09-9.97; (start HT again) May 09 1.84; Aug 09 0.37; Oct 09 0.32; Dec 09 0.37
Bone scan in Nov 08- one spot in pelvic region 1.9cm with SUV of 11
Bone scan in Mar 09-two spots. Original now 2.5cm with SUV of 22 and 2nd spot less than 1cm with SUV of 7.8
Bone scan in Nov 09 - NO CHANGE WOO HOO!

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