Welcome Shubal- first post- question on correcting incontinence

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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/21/2010 6:43 PM (GMT -6)   
Welcome to Hw. In another thread, Shubal first posted, saying:

Hi all,

I just had the devinci surgery 12/07/09, and I was wondering if anyone could help me out with any tricks to do to stop the urinery inconsistence? Thank you, Schubal

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/22/2010 10:27 AM (GMT -6)   
bump. no response, offering another chance for comment
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/22/2010 11:13 AM (GMT -6)   
glad you found this below
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/22/2010 1:41 PM (GMT -6)   
Welcome, glad to have you on the healing side of the curve. You are still pretty close to surgery, so you may be expecting too much. Are you dry at night? How many pads a day do you use?

The standard for working on incontinence around here is walk, walk, walk --- kegel, kegel, kegel (if you need help with kegels there is good advice in the permanent links at the top of the topics) ALso remember that every person is different. Some go dry very fast, others go on for many months. In fact you will notice quite a bit of pee-related humor on this board -- laughing is better than brooding
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 1/22/2010 1:53 PM (GMT -6)   
We need more information, but in general, I would say allow 2 to 3 months before you see major improvements.

Kegels will help, if you do them on a real regular basis. 2 to 3 times a day for 20 or 30 minutes, every day.

For the times that kegels don't work, pads are your best friend.

Goodluck, and keep on kegeling.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 670
   Posted 1/22/2010 10:29 PM (GMT -6)   
It took me a good 3 months of frustratingly little control, using pullups and filling them up when I stood up initially. Being at work was a real hassle, changing pullups and then pads all the time. However, things did get better. It can take patience. Kegels help, but as much harping as I got about it from my doctor, I am convinced some of it was just time. I was frustrated because I had heard that some that had the surgery had just about no incontinence, and I had so much trouble initially. My point is that how you end up may not be very dependent on how you do initially. Hang in there, Schubal.

In having to deal with pads at work, I acquired an appreciation for what women have to deal with month in and month out a better part of their lives!
Gleason, 3+4; PSA, 7
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
cancer contained, no penetration, lymph nodes clear
PSA consistently <0.1 since surgery


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 1/23/2010 9:54 AM (GMT -6)   
I was dry at night 2 days after the removal of the catheter. During the day, I was mostly dry if I'm sitting down but would leak when I walked or just simply standing up. I did bio feedback with a therapist who shpwed me how to do kegel exercises. After 4 months I stopped wearing a pad except when I play golf I wear just a liner.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1

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