yet another incontinence question

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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/23/2010 12:18 PM (GMT -6)   
T-3 and counting. I have another one of those questions that I'm sure cannot really be answered since everyone is different. Obviously, I suddenly have some time on my hands, but, here goes:
 
I teach at a university. In fact, my last day was yesterday and I plan on returning at the start of a new term on or about 3/9/10. This will be 6 weeks post-op. My schedule looks like:
On some days, 2-hour class; 2-hour break; 2-hour class.
On other days: 2-hour class; 5-10 minutes break; 2-hour class.
 
Will incontinence make this schedule or part of it impossible?
 
Incidentally, I have quick access to my office and can change pads there if needed. Also, during these 2-hour classes, I often give the students a choice: take a 5-10 minute break or we can finish early. So, if there is a problem, I can always do a quick break.
 
 
(Obviously it is hard to predict, but perhaps you can chime in based on your experience).
I might add I am usually active in the teaching process, standing up and moving about 90% of the time. From time to time I'll sit down and then stand up again. Of course, on test days I am mostly sitting. I'm sure this description is a big surprise.
 
Mel
63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 1/23/2010 12:32 PM (GMT -6)   
As long as you have access to indoor plumbing you can do what ever you want when you want.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 1/23/2010 12:46 PM (GMT -6)   
Mel,
You shouldn't have any problems as long as your are wearing a pad and have access to your office or a bathroom. I can't imagine soaking a pad so much that it won't last 2 hours.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 1/23/2010 12:55 PM (GMT -6)   
Mel,

I think that planning is great, but this may be extreme.
From my other posts, you may have picked up that I have problems at DaVinci +13 weeks, but the guy who was in for his catheter removal right before me (same surgery) is said to have been bone dry since (or so says the nurse).

So maybe you will be using a Depends Male Guard just for insurance. Lets hope for that, as it is thin enough to let you wear normal clothing.

You will have a good sense of your progress a week or two after catheter removal.

You may be like me - the other end of the spectrum, with very slow progress.
I wear the depends pull-up pant with a depends male guard when I get out. It all varies with fluid intake and fluid types, so I avoid anything acidic or anything in excess for the couple of hours before I leave the house. I carry a spare pad at all times, and change it when I can immediately after I realize there has been a leak, not when it is "full". If it is "full", you are one drop or one sudden position shift away from an accident. I find that normal activity out of the house takes one every 2 hours, more or less.
Standing up is a stress point. Staying seated, or remaining standing reduces the strain leaks. Going over speed bumps in the truck is now an art, not a sport.

Also, I've seen others make the same comment - no more light colored pants for me - navy blue and black are the official colors if you are in the 2% club.

vespatime
New Member


Date Joined Jan 2010
Total Posts : 9
   Posted 1/23/2010 1:27 PM (GMT -6)   
Mel,
I spoke at a large conference 2 weeks ago, which was just shy of 4 weeks post surgery for me, and my first "public" performance. I am using the Depend male guards and find them to be well suited for my need. I stood for 30 minutes, and then remained seated for the remaining 60 minutes. At the conclusion of the conference, I arose as a number of participants came over for questions. I had not anticipated the pull of gravity and urgency sensations, but with a combination of kegal and some leakage, made it through without any problems noticeable to anyone other than me. It also was a confidence boost as I had some anxiety about this.


Best wishes to you.

vespatime
Age at DX: 47
PSA: Aug 06: 4.31
Jul 07: 4.78
Jun 08: 4.60
Jul 09: 6.10
Nov 09: 8.78 (following biopsy)
DRE: Sept 09: nodule on right side
TRUS BX: 21 Oct 09: 8/12 positive cores, 2 questionable
Prostate Size: 44 cc
Stage: T2a
Gleason: 3+3 = 6
Surgery: Dec 09 Robotic RP
UI: 1 full pad daily
ED: yes


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 670
   Posted 1/24/2010 12:48 AM (GMT -6)   
Mel, if you have a chance to change to a dry pad as soon as you can before your lectures, you'll be fine. Worst case. You might be surprised how much better than worst case you will be. At the most you will have a bit of an inconvenience. I would not plan against your schedule.
Regards
Gleason, 3+4; PSA, 7
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
cancer contained, no penetration, lymph nodes clear
PSA consistently <0.1 since surgery


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 1/24/2010 1:26 AM (GMT -6)   
please tell yourself DONT  SWEAT THE SMALL STUFF you will be amazed at how well you do , you are completely valid with worrying about your continence, however in the same breath your not giving any attention to how WELL you might do  relax  your gonna be fine .promise
,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,dirt,,,,,,,,,,,,,,,,,,,,,,,,,
Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night
continence a non issue at 10weeks
 1 year p.s.a. undetectable


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 1/24/2010 3:01 PM (GMT -6)   
you will most likely be fine. Act like a boy scout and always be prepared with back up pads, briefs and maybe even pants in the very beginning. It's easy to have things on hand if you need them. I carry all that stuff in my service van. Good luck, see you on the other side in the healing zone. As always Carry On!
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 1 pad per day
 
Walked thru the darkness on the edge of town.


RonE
New Member


Date Joined May 2009
Total Posts : 12
   Posted 1/24/2010 4:48 PM (GMT -6)   
One thing that I did learn was to go to the bathroom as often as the opportunity presented itself. I think that you will be fine if you institute a break half way through the class, then you can go take care of business if you need to do so.

I was back coaching varsity high school softball games (which generally last 2-3 hours) within about a month of surgery and had no real problems. Just went to the bathroom right before the games, used a new pad and changed out the pad as soon as I could afterward. After two years, I still sometimes suffer stress incontinence while exercising strenuously.
Oct 2007 - Family doctor checkup at age 53
PSA 2.4, ~10% increase from 6 months previous
Nov 2007 - Consult with urologist
Biopsy 1/12 cores positive 1% Gleason 6=3+3
Dec 2007 - Consult with radiation oncologist
Jan 2008 - DaVinci radical prostatectomy
Hospital stay of 3 days, JP drain in 1 week and catheter 10 days
Gleason 7=3+4 with early foci extracapular extension
Surgical margins clear, prostate 5x4x4cm & 43g, involvement 3%
Mar 2009 - Consult with radiation oncologist about adjuvant radiation therapy
Decided to monitor PSA instead of doing adjuvant radiation
Post surgery PSA undetectable thru Jan 2010


profman
Regular Member


Date Joined Jan 2010
Total Posts : 55
   Posted 1/24/2010 6:39 PM (GMT -6)   
Hi - I too am a Professor, and had RPP on 12/15/09. Classes started again 1/3/10, and I have been able to get through class, standing for up to 90 minutes, without any problem - make sure to use the bathroom before class and change pad if necessary, and then after class, and answering questions (I must be pretty confusing), I head to the nearest bathroom again.
Diagnosed 9/4/09
PSA 3.5, up from 1.8 year before
First biopsy showed 3/10 positive cores, Gleason 3+3, less than 10% involvement in all three cores, diagnosed as T2a
Doc and I decided on Active Surveillance, pending a confirmatory biopsy
Second biopsy showed 5/10 positive cores, Gleason 3+3, left side (4 postitive cores) had 40% involvement
RRP on 12/15/09
Home on 12/16/09
Failed cystogram on 12/23/09, catheter out on 12/29/09
Was called about Path report, all good news, Gleason 3+3, no margin involvement, everything clean other than core of prostate, tumor on both sides, but more prevalent on left side
Within two days down to one pad a day
ED present, although blood does flow after Viagra


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/24/2010 7:34 PM (GMT -6)   
I was back to lecturing after two weeks. Visit the WC before and after class and you will have no problem except answering questions for that pretty co-ed while you know that you are peeing your pants and she doesn't. Amazingly, you get used to this. And then it stops.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 1/24/2010 7:43 PM (GMT -6)   
The pads hold a lot, I went on a few 2 hr drives and made it with no stops, pad was holding plenty of urine but never leaked once.

As long as you can slip away for a moment, a pad change takes seconds you will be ok
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0

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