Radiation Therapy Disasters We Do Not Hear About

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RickyD
Regular Member


Date Joined Dec 2009
Total Posts : 163
   Posted 1/24/2010 1:46 PM (GMT -6)   
Article from today's NY Times:
 
 
Age 55,  PSA = 4.97 on 11/17/09, DRE negative,
Biopsy 12/2/09: 1 of 12 cores positive with less than 5% volume
Gleason 3 + 3 = 6
Prostate Size Estimate on 12/2/09 = 28 cc


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/24/2010 2:11 PM (GMT -6)   
I am not surprised, I am still healing from my salvage radiation treatments which ended around Thanksgiving. I still have a lot of penile and rectal pain associated with it, and the fatique it generated returns every afternoon. When I was getting my radiation, there was a man there that really suffered, he had cancer of the tongue and mouth like described in the article. He had a real hard time, they had to postpone several of his treatments while I was still going there.

While most men here that either went through RT or SRT with little if any problems or side effects, it should be stated and re-stated that radiation is still a powerful thing. It has to be planned correctly, it has to be administered properly, and each body has a difference tolerance of radiation poisoning, thus the range of side effects and problems that are reported.

Thanks for posting the "dark" side of radiation, because I had known this for many years.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


wigged-out
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 1/24/2010 2:13 PM (GMT -6)   
Given that a bunch of us are trying to decide which fork in the road to take, this has to be one of the most horrifying articles I've read in a while.

As I shiver, thanks for pointing this out.
Age: 53- good health, physical anyway. Tinkle alot at night- 4-6x's

DRE 11/08- no lumps, just enlarged prostate

1st PSA, total- 11/08= 6.1

2nd PSA, total- 8/09= 6.6 Referred to Dr. J. Hoeksema @ Rush Univ. Med. Center/Chicago

Needle Biopsy 11/09- 12 samples. 11 OK. Right Lateral Mid- Adenocarcinoma Gleason score 3+3=6 9 involving 5% of specimen. Prescribed Flomax for excessive peeing.
Second opinion scheduled 1/21/10 with Dr. Gregory Zagaja, Univ. of Chicago Med. Center


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/24/2010 2:19 PM (GMT -6)   
wow...

Good that this info gets out, despite the "gag order" (intended to supress the info) related to financial settlement.

Also troubling that an estimated half of the mistakes are not even detected at the time.
 
 
 
 

Post Edited (Casey59) : 1/24/2010 1:22:59 PM (GMT-7)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/24/2010 2:20 PM (GMT -6)   
Oh my...
I wish there was a way for patients to check what they are getting. You can't weigh it, you can't read the label on the IV bag, you can't take its temperature. You just go on faith that the tech set it up correctly.
Scary. Thank for the warning.
Jeff

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/24/2010 2:20 PM (GMT -6)   
wigged,

while most radiation stories are not horrific like this article, its is in the risk and side effects of using radation as either a primary or secondary treatment.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


wigged-out
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 1/24/2010 2:28 PM (GMT -6)   
Hey Purg,

I've got to believe that for every one of these horror stories, there are hundreds of successes.

I'm definitely not afraid of success ;-}

Hope you are doing well.
Age: 53- good health, physical anyway. Tinkle alot at night- 4-6x's

DRE 11/08- no lumps, just enlarged prostate

1st PSA, total- 11/08= 6.1

2nd PSA, total- 8/09= 6.6 Referred to Dr. J. Hoeksema @ Rush Univ. Med. Center/Chicago

Needle Biopsy 11/09- 12 samples. 11 OK. Right Lateral Mid- Adenocarcinoma Gleason score 3+3=6 9 involving 5% of specimen. Prescribed Flomax for excessive peeing.
Second opinion scheduled 1/21/10 with Dr. Gregory Zagaja, Univ. of Chicago Med. Center


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/24/2010 2:48 PM (GMT -6)   
wigged, of course the horror stories are rare, and that overwhelmingly most people dont have those kind of issues with radiation, the point to me, is that that do happen to a select few, and people should be aware there is always a risk factor in any procedure, surgery, or treatment.

I am hanging in there with my 2 caths, still so odd having two at the same time, fighting off spasms (a daily battle), and waiting to see my surgeon in the morning to see what the new game plan is, and what his intention is with the caths.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4226
   Posted 1/24/2010 3:40 PM (GMT -6)   
Interesting article; it points out the dangers of all medical procedures that we are rarely aware of. There have been septic infections and uncontrollable bleeding from simple biopsies. My neighbor had the wrong kidney removed and my hospital roommate had a cast put on his lower arm when his upper arm was broken. He needed a pin to fix the mistake. I believe there are many more serious medical mistakes in all areas than we know about. The biggest risk of going into a hospital today is getting a septic infection that is antibiotic resistant.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 1/24/2010 4:43 PM (GMT -6)   
I believe it is worthwhile to note that the root cause of the problem was human error and a lack of due diligence in executing one's work. It is tragic that two people shoud lose their lives and families their loved ones because a person is either "too busy" or not attentive to their duties. Failure to verify the program and the machine performance exacerbated by poor work habits were key here. If I had a program that crashed halfway through I would start over before taking a chance on someone's life.

My own experience with this machine and technology have thus far been quite good. I have had no lingering side effects that I can blame the radiation for as yet. I know that it can be some time before they occur but so far so good. (16 months out)

As pointed out by earlier post these are two unfortunate events among the hundreds of successful treatments given daily. There are risks in life and in it's preservation.

Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
 
 
 


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/24/2010 5:34 PM (GMT -6)   
In this reply, I should first note that far MORE radiation cases have been SUCCESSFUL than have had such dreadful outcomes as described in the sampling from this article. Radiation treatment has been a blessing to many people with many DIFFERENT types of cancer.

At the same time, no telling how many of the undetected/unreported mistakes are the root cause of the occurrence of secondary cancers which arise a decade later, or two decades later.

In the case of prostate cancer, for the likely organ-confined cases, this is the primary reason I believe that radiation (any type; photon, proton, seeds) is NOT the best choice if your age starts with a "5" or a "4", and still only a marginal choice if your age starts with a "6". Not because of the horrors described in this article, but because of the secondary cancers, of which many could very likely be caused by the undetected/unreported errors, but others we know just occur because radiation is radiation.

Peace

skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 1/24/2010 7:19 PM (GMT -6)   
Thanks for link. Wow!! Glad to be informed though.

Skeener
Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


turner
Regular Member


Date Joined Jan 2010
Total Posts : 119
   Posted 1/24/2010 7:49 PM (GMT -6)   
 ....Think i'll not let myself open that link.nono
 
 diag 2/09 @ 3 wks before 50th
 
 psa 4.5
 
 t2b
 
 5 of 6 cores pos....5,20,50,25,5 %
 
 gleason 3+4
 
 N/S RALRP 4-20-09
 Path: lymph node -
          seminal ves -
          margins -
          EPE -
          preineural inv-
          gleason 3+4
          stage pt2c
          tumor vol 40
Continence- 99%- @3-4 months post op
ED-gradual work in progress w/meds
         
 
 psa 7/22/09  0.1
      10/23/09  0.3
       11/23/09 0.5
       01/05/10 1.1
 Met with raidioligst 12-28
 Meeting prostate oncologist @Uof M 1-11
 Not like'n where this heading.  Surgery was and still is a walk in the park compared to what lies ahead :(
 
 
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 1/24/2010 8:00 PM (GMT -6)   
Man! I wasn't scared when I had my SRT and always thought that radiation was a God send technology for us cancer sufferers, but now after reading those horror stories, I am terrified. I'm glad that I didn't see those stories before my SRT. Now, 13 month post SRT I'm feeling ok except my butt is still somewhat tender at times. Did I get the right amount of RT and in the right place(s)?? How will I ever know? No point in worrying about it now........what's done is done and besides, what other choice did I have? This cancer sucks in so many ways.
Sorry for babbling.
Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04

Post Edited (Magaboo) : 1/24/2010 7:43:45 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/24/2010 9:34 PM (GMT -6)   
magaboo,

your point is well said and understood. however, your current string of zero psa is pretty good, and a good omen so far.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 1/24/2010 11:55 PM (GMT -6)   
So far it looks promising, Dave, but............Just hope and wish that you'll follow my lead or do better.
 
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/25/2010 8:27 AM (GMT -6)   
I hope I get the chance, magaboo
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/25/2010 9:59 AM (GMT -6)   
 
 
Well pretty scary as I start my second week of radiation!  I may have to rethink this whole thing.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/25/2010 10:04 AM (GMT -6)   
jerry, just keep on plugging away at your treatments, its still you best shot at a curative move on your end. Most of those bad cases are more about malpractice, not the actual method of radiation itsef. At my clinic, they had so many checks and balances in place, so that nothing like that could happen. you are doing fine, brother.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/25/2010 10:05 AM (GMT -6)   
 
Thanks David but really scary stuff.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/25/2010 10:28 AM (GMT -6)   
It is Jerry, its like reading side effects on the side of a med bottle, if you actually read it all, you would never even take an aspirin, lol.

Each day before I was zapped, there was so much reduncency involved to make sure that the right patient was on the table, and that the right area was getting treated, an the correct daily gys were being administered per my specific treatment plan. Then it took 2 independent instant snap x-rays that were overlapped over both my original prostate bed x-rays, and the one from the previous day as well.

Again, my brother, you are doing the best thing for yourself right now, and you still may live to be 100 and laught about the fun days when we had radiation. Hang tough.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 1/25/2010 1:19 PM (GMT -6)   
Worried Guy said...
Oh my...
I wish there was a way for patients to check what they are getting. You can't weigh it, you can't read the label on the IV bag, you can't take its temperature. You just go on faith that the tech set it up correctly.
Scary. Thank for the warning.
Jeff
There are ways to measure using dosimeters that could be attached to various points around the body.  Had to wear one in the Navy (nuc subs), but have never seen anything similar used in medical treatments.
51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


NewspaperLover
Regular Member


Date Joined Sep 2009
Total Posts : 311
   Posted 1/25/2010 1:39 PM (GMT -6)   
Having watched my wife go through radiation for cancer treatment six years ago, that was one big reason why I opted for surgery.  Radiation is no walk in the park.
 

NewsPaper Lover

 

Age 66

PSA:  6.0  on 07/31/09 having risen from 4.2 on 12/02/08.  Free PSA 23.5%.Other PSA History: 4.3 on 05/01/08; 3.3 on 11/15/07; 3.1 on 05/20/07; 4.0 on 11/30/06; 3.40 on 09/01/05.

 

Biopsy:  09/04/09  13 snips;  two positive.  Right Mid  4+3 = 7 and 15% of the total volume.   Right Lateral Mid 4+3 = 7 and 20% of the total volume.

 

DaVinci robotic surgery:  11/05/09.  Post surgery pathology:  margins clean, no invasion of seminal vessels, no upgrade of the Gleason scores, no evidence of cancer outside the prostate capsule.

 

Cathether removed one week later:  11/12/09.  No incontinence.

 

 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/25/2010 1:42 PM (GMT -6)   
Rolerbe, at the radiation clinic I went through, they do wear dose meters, they are tiny and disguised into their required name badge. I had asked my operators that very question while being treated.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/25/2010 3:59 PM (GMT -6)   

These stories are horrifying. While I believe they don't represent the majority of all RT procedures which have measurable successes, considering individual circumstances, this does happen. Sometimes, you know of someone that has had a bad experience...

A very good friend of mine passed away due to (metastasis of) squamous cell carcinoma in his left sinus cavity...not too long ago.

For him, it started out as a consistently stuffed up sinus. After some time, and I think it may have been too advanced by this time, the cancer was diagnosed. He underwent extensive RT treatment. They had to graft skin from his left arm to cover the damaged skin on the left side of his face. The RT was so aggressive that the bone mass around his left eye was softened and damaged, they had to remove his left eye. Subsequently, he lost all his teeth, had little salivary action and couldn't even eat properly. He suffered a great deal until his death. They suspect the initial treatments were mis-calibrated and delivered improperly. Not a great statement for his widow, children and grandchildren to hear.

We had known each other very well since we were 15. He stood up with me at my wedding.

   


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.

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