Starting salvage radiation 1/27...

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pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 1/25/2010 12:19 AM (GMT -6)   
Hello All,
 
Well,  I will be routinely posting once again on the HW forum...
 
After watching my PSA creep up to 0.13 nearly 3 years after DaVinci removal,  it is time to start the salvage radiation treatment journey...    Took me awhile to get out of a depession spiral and back to a positive mode and the willlingness to once again battle this dang PCa disease (3 months)...  That has been accomplished and I am back on track...   Thank You Jesus!
 
I have had all the scans and pre-tests done last week,  but no discussion of those results yet.  That will be this Tuesday at Viginia Mason Hospital (Seattle) when they also run me thru a "dry run"  of the actual salvage treatment.   Initial talks where about a 7 week 35 treatment scenario.   First actual treatment is scheduled Wednesday.
 
The commute factor is a big hassle...  We had since moved to Winthrop 200 miles away...  but what the heck...  I have some friends that live in Carnation near Seattle and I spent 34 years commuting 40 miles each way to Seattle for my job before I retired...
 
I will keep you all posted on my thoughts, feelings, and physical/mental developments as I go through this phase of the PCa battle.     One that I thought I would not have to go thru...     But at least with PCa,  we have alternatives that many others do not.
 
Take Care and God Bless,
 
pasayten


After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment scheduled to start

Post Edited (pasayten) : 2/1/2010 11:07:05 PM (GMT-7)


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/25/2010 12:57 AM (GMT -6)   
Sorry to hear you have to do battle once again. But look on the bright side, you had three years when you didn't.

If you have been visiting here lately you know that I just finished 7 weeks, 35 treatments, a little over a week ago. I only got a three month reprieve after my surgery. Would have traded for a 3 year break in a heart beat.

Good luck brother. Keep us posted on your travels down the path.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 1/25/2010 1:03 AM (GMT -6)   
Sorry to hear that you've got to go a second round, but glad to hear your head space is positive.

Your PCa was obviously knocked down, but not out. Time to give it the knock out blow and be done with the nasty, pesky creature.

My former business partner had the same experience ---- that was 18 years ago and the PCa hasn't bothered him since. May you follow in his footsteps.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/25/2010 5:48 AM (GMT -6)   
Good luck Pasayten and your positive atititude will help you thru radiation tx. There are quite a few of us on here going thru radiation right now and Sonny and David recently completed their own journey into that tx. We wish you the best and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 1/25/2010 6:45 AM (GMT -6)   
Good luck Pasayten. Keep with the positive attitude. Let us know how you progress.

Skeener
Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2010 9:26 AM (GMT -6)   
Sorry you are having to go through SRT. I just completed 39 high dose treatments in November. I had a rough time, but mine was an unsuual case. I had to have mine within 9 months of surgery.

Hope you do well with yours, the having to go and do it every day part takes a while to get use to, but you will get into a pattern, and soon it will be over.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 1/25/2010 11:04 AM (GMT -6)   
 
Sorry to hear you are joining the SRT group but you did have a nice run with 3 years.  I am now in my second week of radiation and was just over a year from my surgery.  Good luck with your treatments.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start radiation treatments ib January 18th. 


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 1/25/2010 1:33 PM (GMT -6)   
Hi Pasayten,

Well you have a lot of company and support here as myself and others on HW just began our radiation voyage. Nice that you will be able to visit your old haunts in Seattle. Having lived there for three years, I always enjoy return visits. Based on the majority of recent radiation experiences, I think you will feel up to being a carefree Seattle tourist for a couple months.

Our best to you,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/25/2010 1:35 PM (GMT -6)   
Week two begins for me in 40 minutes Pasayten. Cant go by quick enough. Hope all goes well for you.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/25/2010 3:05 PM (GMT -6)   
pasayten, really hate to read that you gotta fight this thing some more. I hoped you would be one of those who could just fade into the sunset or ride off into the background or whatever. Glad you came back to us to share your bad news, I hope we can be a support to you during your soon-to-be trials. Keep us informed...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 1/27/2010 1:21 AM (GMT -6)   
Thanks all for the words of encouragement...
 
Today,  we ran thru the simulation...  Wednesday (tomorrow) will be the first dose.
 
The have me set up for 32 IMRT visits @ dose of 200,000 / visit...  For a total of 64 gys at end.
 
I had forgot to drink liquid for a full bladder for the simulation...  will not forget this for the real thing tomorrow.  A full bladder helps lift it out of the target zone and causes it less stress I was told...
 
Previous week's catand bone scans all came back clean...  
 
So off and running to burn those pesky remnants of PCa...   which should be locally located in the prostate bed area...
 
Mentally fine with all this now and looking upon it as a little adventure...  strange as that may seem...
 
BTW,  if anybody is/has been struggling with depression thru any of their journies,  I have been thru some major bouts with PCa and other issues and have finally got that part whipped...   Feel free to ask questions or whatever if you feel the need.   
 
pasayten 


After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment scheduled to start

Post Edited (pasayten) : 1/26/2010 11:28:24 PM (GMT-7)


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 1/27/2010 2:10 AM (GMT -6)   
Pasayten
 
I had my radiation therapy at VM in Seattle.  (I called mine "adjuvant therapy", since I had positive margins, and my surgeon wanted this within the first year.)  The techs at VM are great!  While I was happy to have my 32 treatments done, it was hard to say good-bye to them.  I live a ferry ride from Seattle, and they scheduled the treatments so well, I was home before noon.  It will be a bit more difficult now you're farther from Seattle, but the time will fly by.
 
My wife and I love to visit Winthrop in the fall on our anual eastern Washington "leaf tour" to see the foliage.  We stay at that hotel right on the river and enjoy the restaurant across the street.  (I can't remember names, just locations.)  For those who think we're nuts, they need to get away from the city and sit in a hot tub alongside a full running river!
 
Hang in there Pasayten
Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0; Sept. 2008 - 0;  Dec 2008 - 0;  March 2009 - 0;  Final Zoladex injection!
 
 


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 1/27/2010 2:24 AM (GMT -6)   
Hey Hawkfan...
 
You will have to look us up next year in Winthrop then...    20 View Ridge Rd out the East Chewack Rd...
 
P.S.  We also have a hot tub....  :-)
 
pasayten

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/27/2010 2:31 AM (GMT -6)   
Pasay,
You will do fine. Keep the faith. While it's good to see you back posting, I just wish it was for other reasons. But I believe we know this disease a lot better than when we showed up here. So not to wear out an old saying ~ stay positive!

Peace brother,

Tony
Prostate Cancer Forum Co-Moderator


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 2/2/2010 1:20 AM (GMT -6)   
Hello All,
 
This Monday Feb 1st was my 4th of 32 treatments.   These are going much easier than I thought as I have 5pm sessions and it is a kind of reverse commute ( I am staying with some friends 40 miles away)...  I thought traffic would be a big issue...
 
Biggest problem so far is to drink a bunch of water to have a full bladder for the treatments...    They want that to help lift the bladder out of the zap zone...   I got the timing down pretty good now...   drink a quart about 2 to 2 1/2 hours before the session.
 
No side effects yet,  but I realize that if any are to occurr,  it would be towards the last of the treatments when nearing the full 64 gys of treatment.
 
Mind frame is good....  The technicians are great...    Just counting down the treatment days...
 
Good thing is I will be done with sessions just as spring starts and the snows have melted away from our Winthrop house...    and will be looking forward to zero PSA's later this year...
 
pasayten
After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment scheduled to start


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 2/2/2010 1:45 AM (GMT -6)   
Hi Pasay,

Good to "see" you again after such a long break.

I'm sorry to hear about the need for further treatments, but I'm impressed by your faith and determination.

Best wishes, thoughts, and prayers in your direction a positive treatment outcome!

Kind regards,

Barry (a.k.a. Idaho)
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 2/2/2010 9:35 AM (GMT -6)   
Just to give you some hope.

I had salvage radiation about 21 months ago. I after a discouraging three readings where my PSA remained at 0.1, I have had four consecutive readings where it has been < 0.1 (the lowest they get). So it works.

I am allowing myself to entertain the possibiltity that maybe by George they got it.

(I still lurk around here from time to time)
53 Year Old DBA by profession; amateur pianist by passion.
 
June and Aug 2006:  PSA 4.6.  DRE prostate enlarged.  Second opinion
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007 and Feb 2008:  PSA 0.1
Mar-May  2008:  IMRT Radiation..completed May 1, 2008 
Sept 2008, Jan 2009: PSA still 0.1.  Dang. 
April 2009: PSA 0.0 (under 0.1).  Yay!
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/2/2010 11:19 AM (GMT -6)   
Like Brother Sonny above, I only got a 9 month break before needing salvage radiation myself, my 39 sessions ended last November, the jury is still out as to was it effective or not. Still need another reading or too. The distance would have given me fits in your case, as I only lived 15 minutes away from my treatment center. Hope you do well with yours, and they you only have minimal side effects if any.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 2/2/2010 1:22 PM (GMT -6)   
Pasayten,
Best wishes! When I was going through salvage, it was hard to believe that invisible rays were killing off prostate cancer, but they were!
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com

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