T -1 and counting

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Veteran Member

Date Joined Nov 2009
Total Posts : 7187
   Posted 1/25/2010 9:57 AM (GMT -6)   
We leave in 2 hours. Still don't know the surgery time. They are supposed to let me know between 2-6 today. I hope they don't postpone it for a day again!
I meant to add:

Our daughter just called. She is in Ann Arbor. She flew in from California. We told her not to, but she just doesn't listen (very headstrong).
But she can keep my wife company through the surgery. Our son will be joining her at some point.
Frankly, I would prefer no visitors as I would rather not have them see me tethered. Oh, well, small stuff and it will be good for my wife tomorrow.
I'm not sure of our internet status. If we have access and I am not drooling, I'll try and post something later this week.
Hmmmm... maybe I can have Dr. Menon take a break during surgery and post an update!
They just called. Get this:
My surgery is scheduled for 10:30 AM; I am to report at 8:30 AM. I figured I was probably his second one of the day. I asked and was told I am the 3rd one!! I'm not sure how that works as I THOUGHT the first surgery was at 7:30 AM. I do know that he doesn't do the prep (incisions and insertion of the robotic arms). Still I'm surprised. Also, he is doing 4 that day and they said that's a light day as it is not unusual to do 5.
I'd rather be the first one, but then again he is well-practiced!

63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10


Forum Moderator

Date Joined Jan 2010
Total Posts : 6846
   Posted 1/25/2010 10:10 AM (GMT -6)   
Your wife will be glad the kids are there, and there will be plenty of time to get used to people seeing the bag ;)

My mother had my sister fly down so she would have company.

Even with company it will be the longest 4 or 5 hours in recent history for her, so play along.

We'll be watching for news -

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 1/25/2010 10:24 AM (GMT -6)   
The recovery room staff here at HW is on stand-by, assuming your launch is good to go on schedule, Don't worry we will catch you on the other side.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

Regular Member

Date Joined Dec 2009
Total Posts : 345
   Posted 1/25/2010 11:10 AM (GMT -6)   
Hi Mel,
My girlfriend was there and my sisters wanted to come but I put them off...:)
You'll be waking up before you know it,
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed


New Member

Date Joined Dec 2009
Total Posts : 13
   Posted 1/25/2010 12:15 PM (GMT -6)   
best wishes for a good outcome, speedy recovery. God Bless you and the family.

Patti tower man's wife
54 yr civil engineer  good health, very active tennis player
last PSA reading  11/09    4.3 
biopsy back   12/28 positive  3/12
Gleason score 3+3    stage T1
pathology reports and DRE supports CA contained to prostrate
Open surgery scheduled Feb. 11th, Stanford  

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4462
   Posted 1/25/2010 1:59 PM (GMT -6)   
ok, now- walk, drink, walk, drink as able and in ever increasing periods. Oh, wait, hold that thought for a day. Read this tomorrow afternoon and it will apply. In the meantime, see ya on the other side, and wishing a normal and uneventful recovery.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

Veteran Member

Date Joined Dec 2008
Total Posts : 672
   Posted 1/25/2010 2:08 PM (GMT -6)   
Good luck Mel!

I will second the comments about get up, walk, walk more, drink, drink more, walk even more.

-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.

Regular Member

Date Joined Dec 2009
Total Posts : 346
   Posted 1/25/2010 2:30 PM (GMT -6)   
Good luck, will be waiting to here the outcome.
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010

Opa N
Regular Member

Date Joined Sep 2009
Total Posts : 150
   Posted 1/25/2010 2:42 PM (GMT -6)   
Don't forget to go in with an empty walnut! Very important for GFMPH.

 Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.

2/6/09              Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro

4/20/09            TRUS  w/needle biopsy

4/23/09            Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.

                        CT scan and Bone Scan both negative. Stage T2C.

8/27/09            DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.

9/8/09              Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion.  Stage pT3b.

9/30/09            PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Prostate Oncologist and Radiation Oncologist. Appointments set for 10/8.

10/8/09            Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.

10/21/09          First Lupron injection. 30 mg dose (4 month)

11/2/09            PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.

12/18/09          psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/09. Anticipate 64-66 grays over 32-33 treatments.

1/14/10            Start RT with 32 treatments # 2 gys per.


Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradually getting better, with dramatic reduction in leakage around 9/20. Currently on 1 pad during the day and one at night (for security). Actually totally dry at night. After 1/16/10 down to a female regular pad. Barely felt.




Ed C. (Old67)
Veteran Member

Date Joined Jan 2009
Total Posts : 2457
   Posted 1/25/2010 2:58 PM (GMT -6)   
It is always good to have family and friends to support you. I had my sons and few of my church friends with me on the day of my surgery.
I hope you have a successful surgery with great results. We are waiting for you on this side.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004

Cajun Jeff
Veteran Member

Date Joined Mar 2009
Total Posts : 4069
   Posted 1/25/2010 3:12 PM (GMT -6)   
We will be waiting for the update. Good luck.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)

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