JB71 is back from the Land of Oz.

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JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 1/27/2010 2:08 PM (GMT -6)   
Sorry to be a couple of days late with this review but I almost feel as if I have nothing positive to report.
 
Here goes: Wednesday, January 20th, 2010.
 
Left Sarnia around 8.30am. with wife Debbie, daughter Chantale and best friend and driver Tommy.
 
Drive takes around 1 hour, 15 minutes. Pretty quite trip but felt good and positive walking into the hospital. Went thru pre-admission smoothly and quickly and went up to the 2nd. floor for pre-op. Only took a few minutes to get in, change into the hospital gear including the stockings. Debbie is called back into the room to hold my hand. Met the lady who was going to put me to sleep who in turn promised to stay by my side all the time. Next came a nurse who promised to do the same.
 
We hear a phone ring and someone comes to my bed to inform the nurse that Dr. Chin is early and to get me into the operating room a.s.a.p.
 
So, off we go to the op room. Nice nurse is busy chatting away to keep my mind busy. It's on the same floor but still some distance away. Now I'm in the room and it looks like the insides of a space ship. (although, I have never been in one of those either)
 
Problem, I, may be ready, but the room is not. Many people rushing around while I lay on the operating table, tied down but still trying to see just what is going on. The Dr. Chin comes in and wonders the same  so we chat a bit while we wait. Finally ( I'm guessing 15 minutes) I hear some one say, "I'm going to put you to sleep now" Then I hear it again and again and again!. At least 5 attempts and one week later, the colours of black, blue and yellow still dominate my entire left arm.
 
UPDATE: Feb. 4th. Arm colours pretty well back to normal but an artery from my elbow to the wrist is still sensitive and pain in the wrist area wakes me up many times, every night.
 
Next, I wake up to what seems like a nightmare. Busy, busy people, can't focus, drift out, wake up, where am I and why? After 2 hours in recovery room I'm finally taken to my room where a rather impatient wife and daughter are waiting. So lucky to have Chantale come along as she is an absolute delight to every one.
 
Now this is interesting : Although we have been paying, thru Debbie's work for PRIVATE room care for the last 20 or so years, I'm assigned to a four bed ward, even though my entrance papers included a PRIVATE room assignment. So when I asked why I was not in the private room, I was told with a big smile, "Oh, those are for special people" and here Debbie has always told me "I am A special People" the hospital apparently was not aware of my "special status"!(LOL)
 
Now I recall a topic here a while back asking what the costs of surgery might be. Mikey1955 reponded by explaining that in the Province of Ontario, when you have an OHIP card, (every legal person in the province for more than 40 days gets one) you automatically are privileged to have a bed in a ward. To get more (better ?) care you can opt to buy extra insurance as Debbie has done thru work. Mikey, being some what self employed did not have the extra but did not want to be in a ward, so according to his response, paid
$ 600 per night, in cash, to be in a Semi-Private room, and he got the Semi-Private. Now I'm wondering of course, did I have the option to pay extra for a semi or pay even more for a private, so, I too could be Special?
 
Now I'm starting to think sinister thoughts. How about this theory: Hospital knows I've got the whole package but tells the insurance company they'll keep me in a ward if the insurance company would "DONATE" the difference of the cost between a ward and semi private to the hospital and why not, since they are still not having to pay for private coverage so they in turn save that amount ? Okay, maybe I've been sitting around to long.
 
I've been told and have read in the news that Ontario has a severe shortage of hospital beds and if so, why was one of the four beds empty ALL the time and a second bed also empty the first night. ( yes, I know, I'm now in a semi private environment.
 
I'm in and out of it that night but next morning, here comes breakfast and it is not what I'm supposed to have, i.e. clear fluids, soft stuff like yogurt, ice cream but I get a hard bagel and "breakfast cheerios"
I complain but was told that my name is on the tray so that's it. Next morning, same thing. Saturday morning, the server comes in with a wide grin and explains that today, "I can eat what I'm being served!"
 
I knew that this is a "teaching" hospital which I interpreted that as being a good thing.     NOT SO.
 
The nurses ( here to learn ? since they all seem to be from another country)  have 12 hour shifts and during my stay I had 7 different nurses. No consistency or continuity here. So on the final morning before checkout, it's the usual routine of checking the numbers, removing the leg socks, hooking up the leg catherder etc. By now there are two ladies who do not talk much or try to explain anything. Debbie has questions about the cath and was quickly given a brochure, 'Home care for you Foley Catheter' and also handed the larger night bag with the explanation: "This is the night bag"
 
When we asked about a prescription to take with us, Debbie was told, "Good question, I go ask" When she came back with the prescription, Debbie asked, "what's it for?" "response, "Good question, I go ask!" When the nurse came back once again, response ? "Pharmacist will explain everything"
 
So Debbie goes down to the hospital pharmacy to get the prescription filled while I change into street clothes since my ride back to Sarnia should be arriving anytime.
She came back within minutes saying, the pharmacy is closed, the gift shop is closed the Tim Hortons coffee shop is closed, the admission desk is closed, in fact the main lobby of the hospital is complete void of people.
 
It's a Saturday!
 
We have a shortage of beds in Ontario but everybody goes home for the weekend ?
 
Time to go and since I have only been off of oxygen and
the intro feed into the back of my neck for less than 15 minutes, I'm expected to walk to my ride? I ask for a wheelchair, get one in ten minutes ( and the nurse disappears) so Debbie gets her first attempt to push one ( not very succesful but we make a game out of it by awarding points for everything she hits) down to the lobby.
 
WE got no diet instructions, no home care info (except that a home nurse will call) as to how to keep the incision clean, no nothing, not even a goodbye hug.
 
I was not encouraged to sit-up and try to walk as much as possible, drink as much as possible, although I had read about these on web blogs.
 
Perhaps the powers to be at the London Health Science Centre should review their brochure: Patient Information, Radical Retropubic Postatectomy, with the nursing staff at University Hospital.
 
There was no sponse bath on Day 1. (or any day)
No shower. (any day)
No catheter care or instructions.
Very little help or encouragement to walk.
 
My early assessments of the University Hospital had been near the ten out of ten range but now, thinking back it is a 7 for all the pre-surgery and a dismal 5 out of 10 for the post surgery.
 
Jerry Baljeu.
Sarnia, Canada.
 
.
 
 


Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
 
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
 
NOPE, that just changed to January 20th. (2 days earlier) and the venue for entertainment gets moved to the University Hospital.
 
Open surgery done on Jan. 20th.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
 
Need to get this over with ASAP so next season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie
who has been the most supportive wife possible.
.

Post Edited (JB71) : 2/6/2010 11:18:41 AM (GMT-7)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 1/27/2010 2:33 PM (GMT -6)   
I skipped the last 2/3 of your post - Welcome to the Other Side.

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 1/27/2010 2:47 PM (GMT -6)   
note to self

Never have prostate removed again, especially in Ontario

Welcome to the other side. If hospitals were fun, everyone would wantb to go there for a vacation.

Good luck on your recovery.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 1/27/2010 2:47 PM (GMT -6)   

JB71

What an experience for you.  Must say I am surprised since Dr. Chin performed my operation at Victoria Hospital in London which, like University Hospital, is part of the London Health Sciences system.  My experience at Victoria was on the whole very positive.

about the room -- yes I did experience that.  I am told it is very difficult to get a private room.  I had my surgery at 8 a.m. but did not get a room until 5:00 p.m. because none was available.  That was a long wait for the family but they were very patient.  I did end up getting a private room although I don`t consider myself special.  Problem is the room was on the thoracic ward!

My surgery was also moved ahead but they called me the night before to come in earlier and right at 8:00 a.m. Dr. Chin appeared and I was put under.

The hospital system should be made aware of your concerns.  It sounds to me like you received substandard treatment.   I received a very detailed questionnaire about my treatment from the hospital.  I don`t know whether everyone or just randomly selected people get this questionnaire.  If you do not receive one, certainly call and have them send you one.

At Victoria Hospital I was given a lot of written material during the pre-op session about what to expect and do before surgery and the day of, the following day and what to do at home.  As well the catheter was fully explained.

I had my surgery on Friday and left Sunday at noon so I was in over the weekend.  I found at Victoria that there were no problems because it was the weekend.

It sounds like maybe they need a shakeup at UH.  Giving you solid food so soon after your operation was inexcusable.  I hope you had at least passed some gas!!  Someone was not on the ball.

JB, sorry to hear that you had a bad experience.  Certainly let the people in charge know!!

Hopefully now that the operation is over, you will quickly get over your pain and be well on the road to recovery.

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      

Post Edited (skeener) : 1/27/2010 1:00:05 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/27/2010 4:19 PM (GMT -6)   
JB, glad you are on the recovery side, but that doesn't sound like the greatest hospital experience I have heard here. Gee, mine was like being treated like royalty, I am one American that just assumes you always have a private room, never thought about asking for one before. Glad you are through that part, hope the healing at home goes better for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 1/27/2010 4:32 PM (GMT -6)   
Sorry to hear about your experiance, hopefully recovering well. At least your on the other side.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 1/28/2010 9:31 AM (GMT -6)   
JB71 ---- what an awful story. My experience with the Royal Alexandra Hospital in Edmonton was about the exact opposite. My room was a semi-private and I didn't mind the bed mate at all. Afterwards someone who has had a lot of surgery said they always wanted to be in a four bed ward ---- by definition the nurses and other caregivers were in the room four times as often as they were in a private room and as long as they were there checked him too.

Best wishes for a speedy recovery and a lifetime of zeros.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


CM63
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/31/2010 10:57 PM (GMT -6)   
Hi Jerry

I've been a little busy and unable to make a post. Thanks for directing me to this web site as I think it's better then the other one we first met on. I'm so sorry to hear you had such a bad experience at university hospital. Brad's surgery was at St. Joesph and I must say there is nothing we can complain about. We have semi private coverage with our work and we got that all arranged at the pre op appointment. When he got into his room the first night there was another man in the other bed but then he left and then he really ended up with a private room. The nurses couldn't have been more helpful. They showed us what to do with the catheter and incisions etc plus gave us all kinds of supplies. I think he had 4 leg bags and 2 night bags. Brad's biggest problem was getting rid of the gas and they were very helpful with that and kept him 2 extra days just to make sure he was okay.

I hope you are doing better now or have at least seen a doctor if the blood in your urine continued. Brad's was totally clear after 2 days. He is now 2-1/2 months post op and is doing great but he also had robotic surgery so the pain I believe is much less as he only had 6 little incisions vs one big long incisions with staples. His only had inside stitches and then the strips and bandaids. He is now down to one pad and is getting ready to stop that now too. Nights he completely dry and might get up once a night but not every night for sure.

Anyways, I hope you have help witht he snow and just take it easy. It will get better. Oh I would for sure mention to Dr. Chin that your stay as the hospital was terrible and that you didn't get enough instructions etc. We were given so much to read it was almost too much but we were ready and totally know what to expect.

All the best.
Chris
Wife 46 of husband Brad 51.
PSA Jan/09 5.7, biopsy March 12/09, results Apr. 1
Gleason 6 T1
Wanted robotic surgery so sent to London Dr. Pautler end of May
Surgery was set for Nov. 10 (long wait) 
May PSA 6.05 & Oct PSA 6.85
Surgery Tuesday out Saturday - 2 days late due to no gas would move!  Nerves were saved.
Catheter out Nov. 25 (ouch) - sent to physio to learn kegels
4 pads a day first month now down to 1 pad a day with less then
1/2 an ounce of leakage.
Path report not so good - Gleason 7 3+4 (5-10%)
T3a NxMx - Expraprostatic - present left radial unifocal B38 tumour
admixed with fat (got outside the prostate - too long a wait!)
Seminal vesicles & ampulla negative
Tumour apex left & right half
First PSA is set for Feb. 5 with appointment Feb. 24 for results
Cialas started week cath removed.  Take once a week with no side effects but to date no erection but have had orgasims.
We'll keep working on it and not worried.  As the doctor said the nerves are in shock and take time to heal.
 
 


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 2/1/2010 6:08 AM (GMT -6)   
JB71 -
I am so sorry that you experienced such a bad time at the University Hospital in London, Ontario. That certainly did not do you any good emotionally or physically and find it hard to believe (but believe you!) that you were treated in such a shoddy manner.
I would write a letter to the head of the Hospital - to voice your concerns - you need a positive attitude toward dealing with tomorrow - so venting the past can help you move past the anger you feel ( with copies to your doctor )- I always throw in a - cc.my lawyers - at the end of such letters - I get quicker action that way ! ;)
..........................
Office of the President
London Health Sciences Centre
800 Commissioners Road East
London, Ontario Canada N6A 5W9
........................................
you can also make comments at their website - http://www.lhsc.on.ca/ -

I have dealt with teaching hospitals ( they are tied into local universities and have no relation to the level of care - the medical students watch and learn from the professionals) and have been very pleased with the treatment I received. Peterborough Regional Health Centre gets a bum rap here, but I was treated very well ( in a ward as per OHIP) with good post-op care and had a VON ( Victoria Order of Nurses) Nurse visit my home to see that all was well. That should have been part of your care too.

Once again, so sorry you had such turmoil and stress in an already stressful situation. Our thoughts and prayers are with you for a steady (and boring) recovery.
You have had enough excitement.
gentle hugs.
BRONSON ( and STEVE)
...
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 2/1/2010 2:12 PM (GMT -6)   
.
 
 
 
 
 
 
 


Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
 
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
 
NOPE, that just changed to January 20th. (2 days earlier) and the venue for entertainment gets moved to the University Hospital.
 
Open surgery done on Jan. 20th.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
 
Need to get this over with ASAP so next season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie
who has been the most supportive wife possible.
.

Post Edited (JB71) : 2/1/2010 12:51:33 PM (GMT-7)


Redrose7
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/9/2010 2:15 PM (GMT -6)   
Hello All,

I am new to this website. I was originally curious to find others who have had orthoscopic ACL surgery, as I had mine two years ago.

But, I know this is a very personal issue, and completely understand if not one wants to speak to me. But I am a student from Fanshawe College doing a radio documentary project on Robotic Surgery. It is very difficult to find an individual who has had or is planning to have robotic surgery as the hospital keeps their files very confidential. I would love to set up a very brief interview with any one of you who have experienced or are going to experience robotic surgery here in London. My phone number is 519-671-2023.

Any help or information would be greatly appreciated.
Age: 20
 
ACL orthoscopic reconstruction surgery
Date: September 27, 2008
 
North York General Hospital - Toronto
 
Physiotherapy for one year - Markham Stouffville Hospital
 
Some nerve damage
 
Full usage of knee - I play hockey and soccer
 
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 2/9/2010 2:24 PM (GMT -6)   
Redrose7, as your request gets into the area of surveys, you will need to contact the owner, Peter Waite, at admin@healingwell.com for permission to conduct a survey or ask individuals to contact you.

6. No posts regarding research studies, surveys or clinical trials without obtaining prior approval from the forum administrator before posting to the forums.

Thanks for your understanding.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

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