Tud, it does seem never ending, I know it does to all of your guys, probably to the point of nausea, but I only tell it like it is. You can imagine how I feel on the receiving end. Today has been hell day, been in a lot of severe pain, all cath related, probably had 3 dozen or more severe spasms alone, plus lots of deep penile and rectal pain. I did a lot more the past 3 days, and now I am paying for it. Had to take pain meds at 2 pm today, very unusual, as I try to wait as late in the day or evening as possible. Right now my body is saying rest and heal, but my mind is 100% trying to be busy. This particular episode with the SP caths and the SRT, has been going on non-stop since October 1, that's a long time to be hurting every day. End of vent.
I was open minded on treatment before my own surgery. The only two I had issues with, and still do, HIFU - only because I don't agree with non FDA treatments out of the country as an American, just my personal take, and the Cybro-freezing method, which I understand is rarely used and rarely works, could be wrong on that.
I see AS, Seeding, straight RT, Seeding with SRT, and both robotic and open Surgery as our main choices. Each has its place, and each depends a lot on the patient, his stats, his family history, his appearent agressiveness with PC, a lot of things.
While I wanted seeding, and interestingly, my own beloved uro/surgeon never tried to trash it when we went through the whole thinking about treatment processes, I found out that is is widely used in my immediate area for those that don't merit or want full blown surgery.
I am not judging or critisizing any brother here, I stand by any man's choice, but with all that has been learned here and elsewhere, I often wonder if some of my surgery brothers that had low grade pc, low core, low %, low velocity have had 2nd thoughts in t heir heart of hearts?
The side effects from surgery are just too undpredictible, and looking at charts/numbers on them does little good if one has long term incontinence or ED.
My numbers/velocity narrowed me into a small window of true choice, nothing I can or could do about that, but I wonder what it would have been like if I had really had some choices in the matter. I only wish that each new friend/brother here, really deeply thinks about what they want to do for treatment, if at all, if their number allow them the full palatte of choices. It does make me nervous when someone is dx with pc, and already had surgery all within 2 months or less. Their choice of course, but is it really due diliigence about a drastic life changing event? Again, not judging ,just asking.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time