Subic, you just have to keep doing it one day at a time like me. I would be overwhelmed if I looked at a list of all the complications I have endured since my big surgery in 11/08. Looking back, that was the easy part.
I was in the ER late 12/08, when I had total blockage less than 8 hours after a cath was removed. The ER staff acted liked they never saw a cath before. I insisted that they call my uro staff, this caused much pain and delay, then they didnt do what they were told to do, they used the wrong size and type of catheter, and it took 3 of them to finally get it in. My uro was furious the next day at the ER, he said they could have seriously damaged me. Took me a while to get over the trauma of that event, trust me.
Now my uro makes sure when we do things or try things, that its timed to where he can get back to me during normal times, another reason why I have 2 caths in, instead of one, to prevent another ER or traumatic event. I appreciate his extra concern, because he knows the living hell I have been through so far.
Yes, we are a small group, 2-4% tops, that will have repeat issues with excessive scarring and/or strictures in general. I am still hoping, following my dr's current game plan, that I will finally be able to attempt cath free living in another 5-6 weeks or so. After all I have endured, that is actually a short time. And yes, will be scared as get out even when I reach that point. It will make me nervous until I have peed for a full week on my own.
There are more perm things my surgeon can do if this continues to repeat again and again, but I can't allow myself to think about that at this time.
I can say I understand what you are going through, brother, so if you need some encouragement, I am here.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time