Goodlife, and I agree back with your sentiments. Not sure how many brothers here have been through more than one major RT regiment in their lives, but I went through 2 within a 10 year window, and both times they were hell on me, the first one still worse than this PC related SRT.
There is no free ride in our treatments. I am sincerely thankful that for most men, they can get through their surgeries, their seeding, their RT and SRT without major incidents, and that is a good thing. But all treatments come with risks, side effects, and chances of complications, regardless of how rare they may be while looking at stats on a piece of paper.
When you are the stat, it takes on a whole different meaning, trust me. Who could have guessed that in a little over 14 month from my open surgery, that I would be on my 12 catheter, and today was my 123rd day in a row on caths right now, not counting the over 100 days I was on one or the other prior to October 1. I am finding it harder to be patient, and starting to lose my normal cool attitude about the whole thing, i know its mostly the pain talking, but how much is one expected to go through?
So I say to all men contemplating their primary treatment. Choose slowly, choose wisely, do all due dilligence. If you can safely do AS, then spare your body and do AS as long as possible. If you can avoid surgery with a safe alternative like seeding or seeding with IMRT, then consider that, and if you absolutely need surgery, get the absolute best surgeon you have access to.
Hope for the best, plan for the worse, that's how I have always gotten through the medical maladies in my life. I want a happy ending as much as the next man here, trust me, but things happen, things that are just simply out of our control, and things that just don't go by the charts or nanograms. Reality is reality.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time