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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/29/2010 2:03 PM (GMT -6)   
It is kind of funny as there are major milestones. First Fart, first bm, etc. So far,everything accomplished. First post-op shower took 3 hours (have to do stuff with bandages, infusion tubes, catheter, groan.).  Next milestone, tomorrow: I get to pull out the infusion pump. They say it won't hurt.  (They infuse either a placebo or an antiinflammatory-- part of a study).

Bigger milestone is Sunday. We start to retrain the bladder. We disconnect the catheter (it's a supra-pubic one -- he pioneered that for this kind of surgery) via a knob and go normally then reconnect. Repeat continually for 2 days.

Tuesday is the Big Event-- if things go okay before then, they take out the catheter. I get the pathology report. That will tell me what's up. Then it is hello Depends. We hope to go home on Wednesday.

Pain is still an issue but all is going in the right direction. Despite my complaints, I have only taken 3 regular tylenol post-op. Changing positions is tough.
 
Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Surgery with Dr. Menon at Ford Hospital,  1/26/10. He says all looked good. Spared nerves. Awaiting pathology report, set for 2/2/10.

 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/29/2010 3:22 PM (GMT -6)   
Welcome to the healing side. And congratulations on your longest post ever without a question.

Not only will the pain subside, but you will learn how to move with minimum aggravation -- you can always ask a nurse -- sometimes they have good advice. For example that is how I learned that if you have to cough or sneeze you wrap your arms around your abdomen. Also be sure to get in enough walking -- again ask. Hospital halls are not exactly inspiring but it is important to getting you body over the insults that have been done to it.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/29/2010 4:00 PM (GMT -6)   
Mel, if that is all you have taken for pain so far, then your pain tolerance or painl level must be pretty low, that's another plus in your favor. Hope you continue to do so well.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 1/29/2010 5:33 PM (GMT -6)   

Mel,

Keep on task and you will be performing like Superman real soon. 

Keep healing,

Dan


PSA 01/07 1.2, PSA 01/08 1.9, PSA 01/09 2.5
BIOPSY 02/24/09  PCa DX age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03
Followup PSA 05/28/09,08/20/09,12/08/09 <0.1
 
 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 1/29/2010 9:46 PM (GMT -6)   
Sounds to me like you are doing good. You are right that we celebrate different milestones!
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
20 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 1/30/2010 9:52 AM (GMT -6)   
Mel,
It sounds like you are on track on all fronts. Removing the catheter will be a great relief even though you have to depend one depend. From now on, you have to start providing answers to newbies now that you are on the other side.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004

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