It was just Jan. 19th that I had my most recent corrective surgery to the bladder neck. For the first week, did pretty well with it, not too much pain, mostly getting use to having two catheters in me at the same time.
However, since Wednesday night, been having a lot of pain, and probably more bladder spams then I ever had at one time. Thursday was rough, I stopped counting them after 36 of them, some strong enough to make me lean into a wall for support or to drop to my knees. The interesting part, the active catheter is the SP suprapubic coming out of my stomach, its not really hurting at all. When I was having spasms with the SP, they produce more dry like spasms that hurt the rectal area. Now that I have the SP and a Foley coming through my penis (as normal for me), most of the pain is from the bladder neck forward to the tip of my penis. The spasms are intense ,sometimes they will force a small amount of urine out the tip (which means it hurts less), or else they are intense.
My dr. knew this would be a rough time with the 2 caths in place. A week from Monday, I see him again, and assuming no set backs, I am suppose to have the SP one removed, and the foley cath replaced with a new one, one size bigger in diameter.
Just about to finish up on the antibiotics I have been put on since the surgery ,so I don't believe I have any infection at the time. I can only say, the pain associated with these 2 caths and all the spasms has almost got me shut down. about the only time it doesn't hurt is I am lying down on my side with my knees pulled in.
This has turned out to be a tougher recovery period then I had calculated. The thought of dealing with this for another 4-6 weeks sounds unbearable. But I have to force myself to think, one day at a time, and hope and pray this will someday pass.
All my extra patiences has erroded away, and its just a battle to keep fighting the pain.
David in SC
P.S. We dodge the bulk of another major winter storm, have some sleet and ice, no loss of electirity, people out and driving about, while our friends over the border in NC got slammed big time.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time