Bill, don't worry, you haven't said too much. I consider you a friend, and your opinion is most welcome.
It's not like I keep getting new problems, this all stems to the original problem: strictures/blockages caused by excessive scarring at the bladder neck. This was then complicated by the negative side effects of the radiation treatments.
It was agreed by my radiation oncologist and my uro/surgeon, that the radiation would only make the swelling worse, and the closure issue happen sooner, and they were right. This is why we did the pre-empt of putting in a suprapubic catheter for the duration.
Sure enough, two months after the radiation ended, my surgeon a week ago Tuesday was totally astounded that my bladder neck had entirely closed shut, not partially, but as if there had never been an
This is why I am on the two catheters, and this is why we are working over the next 4-6 weeks to slowly rid my need of any of them, but this assumes I will stay
open on my own when the last cath is removed.
Catheters cause a lot of pain long term, think of you men that only had one, for 5-15 days, and you thought that was miserable. I now have had an SP in place since October 1 without interuption, that is 4 full months. The one that is hurting me so much is the small diameter foley through my penis, It is blocked off, its only purpose right now is to try to keep the bladder neck from closing up again, at least to keep an
So while there is a lot of pain, its all from the same source, the same problem. There are perm. solutions to this rare ongoing problem, but they are not pretty either, my entire bladder neck can be bypassed for life and I could pee into a bag (not a catheter), I could have a perm stent in place, and just pee in diapers for the rest of my life. So there is no easy solution here, and thus all the non-radical approaches to trying to solve the problem.
The pain is just part of the problem, drugs can remedy that. I just want to walk around like a normal person, and not having one or more catheters tugging at me. Would like to be able to roll over in bed, something I can't do right now without pulling my tubes apart, would love to take a tub bath or get into my nice hot tub, something I haven't been able to do since last September. Not asking for a miracle here, just a little normalcy.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time