Let's Talk About Prostate Cancer ~ PCRI 2009

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Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 1/30/2010 5:31 PM (GMT -6)   
The link below is a very interesting set of videos from Prostate Cancer International. Here they are:


Prostate Cancer International is the site owner of The "New" Prostate Cancer InfoLink. Mike Scott and Arnon Krangrad are the founders with Angela Jenkins on the board. Las year I was invited to join them at the PCRI conference in Los Angeles. With Angela's husband Jimmy running the production they produced these interesting videos.

Interviewed are prominant PCa names as:
Mark Scholz,
Mark Moyad,
Snuffy Myers
Duke Bahn
John Blasko

Advocates include
Lyle Larosh (Winner of this years Harry Pinchot award)
Chuck Maack (Kapps award winner)
Ralph Valle (Last years Pinchot award winner)

Many more.

For my part, it was a pleasure to meet each and every one of them. And it was fun being a part of this forum. Last year I was interviewed at the PCai event in Miami and met yet even more of the great doctors working on our behalf. Mike Scott is the well known advocate and co-owner of VOX Medica, a medical industry communications and consulting group, and he is also the author of the InfoLink blog. The beauty of his effort at the Infolink, is that it has operated as a free information website and as a non-profit organization.

Cool stuff ~ Enjoy

Prostate Cancer Forum Co-Moderator

Post Edited (TC-LasVegas) : 1/30/2010 7:43:46 PM (GMT-7)

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 1/30/2010 6:45 PM (GMT -6)   
Wow, Tony, what a great link, have bookmarked it and will take the time to listen to each clip in the days ahead. Quite a collection of experts there. Thanks.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

John T
Veteran Member

Date Joined Nov 2008
Total Posts : 4170
   Posted 1/30/2010 9:53 PM (GMT -6)   
Great resource and a lot of information.

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.


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