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Posted 2/1/2010 3:55 PM (GMT -7)
I hate to post this, but I lost a friend yesterday to prostate cancer. He was not on the forum but he was close to me. Mike (his name) was 49 years old and diagnosed with advanced prostate cancer in June 2009. He and I joked because our numbers were so close yet I survived and didn't. We need to continue praying for our brothers fighting this disease. I would love to see us all live long and prosperous lives. We shall beat PCa.

peace and love
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

Posted 2/1/2010 4:08 PM (GMT -7)
Sorry to hear that, Dale. My the Lord comfort his family, and bring peace to them. I hate this PC, and for all the brothers we lose to it.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

Posted 2/1/2010 4:16 PM (GMT -7)
Dale may peace come to his family and you as his friend. I know he must a valued your frienship. Somehow some where there must be a way to advance treatment for PC. the public think it's the most treatable cancer. My heart hurts for this young man's family.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.

15 months out injections Caveject (success)

Posted 2/1/2010 4:21 PM (GMT -7)
Hi Dale, This is Larry from Cincinnati, we spoke a couple times on the phone (thanks for your help!). Sorry to hear about your friend .. may the good Lord be with him and his family! I hope you're doing better since returning from Zion! Keep the faith and fight the good fight! Age:58   PSA 8/06 8.74,   10/09 7.46,   12/22 6.50 Needle Biopsy  11/10/09 : 16/16 cores positive 2 - 85% of tissue, Gleason score 7 (3+4 with tertiary pattern 5 ). CT,Bone, and PET scans all negative. Da Vinci laparoscopic prostatectomy p erformed on Jan. 07, 2010 at IU Simon Cancer Center…   Indianapolis, IN     Prostate size: 42 g Gleason score (primary + secondary):   4 + 3 = 7 Primary pattern (%):4, 60%   Secondary pattern (%): 3, 35%    Tertiary pattern (if present) (%): 5, 5% Histologic type: Adenocarcinoma    Variant histology present: No    Multifocality: Yes Extraprostatic extension: Yes    Seminal vesicle invasion: No    Cancer at surgical margin: No     Bladder neck involvement: No     Lymph-vascular invasion:   No     Perineural invasion: Yes Catheter removed Jan-19-10   Dry Nights 2 pads/day   Baseline PSA checkup appt 2/3/10  
Posted 2/1/2010 4:27 PM (GMT -7)
darn PC ! Just makes me want to fight it all the more.

It also makes me more vocal about telling all my friends about PSA testing. I also did not tell anyone except immediate family and 3 or 4 close friends initially. Now, I am telling everyone.

Maybe I can save 1 man from a premature death.
Goodlife

Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9

Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.

0/23 lymph nodes involved  pT3a NO MX

Catheter and 2 stints in ureters for 2 weeks .

Neg Margins, bladder neck negative

Living the Good Life, cancer free  6 week PSA  <.03

3 month PSA <.01 (different lab)

5 month PSA <.03 (undetectable)

6 Month PSA <.01

1 pad a day, no progress on ED.  Trimix injection

No pads, 1/1/10,  9 month PSA < .01

Post Edited (goodlife) : 2/1/2010 5:22:49 PM (GMT-7)

Posted 2/1/2010 4:28 PM (GMT -7)
Dale,
Sorry about losing a friend. May the Lord provide comfort and healing to his family and friends. Hopefully someday a cure will be found for this horrible cancer.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004

Posted 2/1/2010 4:33 PM (GMT -7)
So sorry to of the loss of your friend to PCa Dale. Hope that his family has support as they go thru this. Thanks for sharing a friends story with us as well.

Michael

Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa

59 yo when diagnosed

Robotic surgery 5/09 Atlanta, Ga

Catheter out after 10 days

Gleason upgraded to 3+5, volume less than 10%

Margin slightly involved

2 pads per day, 1 depends but getting better,

8/5 1 depend at night only, now none

 started ED tx 7/17, slow go

Post op dx of neuropathy

3 months psa.01, 6 month psa.4, 6 1/2 month psa.5

Starting IMRT on 1/18/10

Great family and friends

Michael

Posted 2/1/2010 5:11 PM (GMT -7)
Sorry to here about your loss. My thoughts and prayers are with your friends family and with you. Someday there will be no loss from this disease.

Neal

age 45

psa 3.09

Biopsy results 12/9

Left side base 3+3=6 21% 2/2 cores positive

Left side mid  3+3=6 100% 2/2 cores positive

Left side apex 3+4=7 88% 2/2 cores positive

Right side - 0/6

CT & Bone scan negative

Davinci Feb. 5th 2010

Posted 2/1/2010 5:25 PM (GMT -7)
Very sorry to hear about Mike. Glad he had a close friend to talk with and not go it alone.

Our thoughts will be for him tonight,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy

Posted 2/1/2010 6:46 PM (GMT -7)
thanks fellows for all the care and concern. We are all in this together. This forum is awesome.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

Posted 2/2/2010 10:59 AM (GMT -7)
very sorry for your friend,and my prayears for his family.I talk to any men at work and whearever I go

about pc.the way I feel is this, God gave me a second chance in life ,and I be selfsfish if I do not encourage

guy abuot to test for this cancer.mad

DIAGN=46 YEARS

GLEASON=3+3

FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.

MARRIED,TWO CHILDREN.AGE 13 AND 8.

LAPROSCOPY SURGERY 6/2005

PATOLOGY REPORT.

GLEASON=3+3

TUMOR VOLUME=5%

LYMPHOVASCULAR INVASION=NEG

PERINEURAL INVASION=POSI

TUMOR MULTICENTRICITY=NEG

EXTRAPROSTATIC INVASION=NEG

SEMINAL VESICLES BOTH=CLEAN

MARGIN ALL=NEG

PT2ANXMX

DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,

PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09

0.04,10/09,0.04

Posted 2/2/2010 12:16 PM (GMT -7)
My prayers go out to the family..."again gone too soon".  A reminder pc survivors, keep the faith.  Education awareness is very important, often u hear u will die of something else other than pc...as witnessed that's not always the case.  If it wasn't for my family, friends, support centers (especially healing well) and most of all God..I know i would'nt make it.....Lucious

_________

pc diagnosed 10/08, psa 7.5, gleason 8, biopsy positive in 3 areas out of 12;

2 mos imrt treatment and lupron ongoing for over a year;current psa average .20;T1c;

Remember Keep the faith everyone!

Posted 2/2/2010 12:28 PM (GMT -7)
 

I am so sorry to hear of the lose of your friend.

Jerry1

Age 70

DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,

Gleason Score 4+4 =8  Bone scan and MRI negative

Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel

Post Gleason report  4+4 = 8 Lymph nodes on both sides negative

margins Negative  Stage II (pt2a) 

Cath out on October 29th left in longer due to small leak.

11/19/08 dry no more pads

12/2/08 first PSA <0.1

 3/6/09 6 Month PSA 0.0

6/3/09 9 month  PSA 0.1

7/14/09  PSA still 0.1

10/15/09 PSA 0.3

10/26/09 surgery to remove 3 clips in bladder neck  

11/16/09 PSA 0.3

12/14/09 PSA 0.4 

12/28/09 PSA 0.5

Start radiation treatments ib January 18th. 

Posted 2/2/2010 1:31 PM (GMT -7)
Thoughts and prayers go out to you Dale and to the family of your friend.

Let’s not be sad. Let’s rejoice in the fact that Mike touched many lives.

Posted 2/3/2010 2:52 PM (GMT -7)
 

Sorry for the loss.  BTW has anyone heard from Walter Whited.  aka War Eagle.

Dx 42

Gleason 6 (tertiary score 0)

OPEN RP 10/08  Johns Hopkins

pT2 Organ confined Gleason 6

PSA Undetectable as of 10/15/09

Next PSA 10/15/2010

Posted 2/3/2010 3:13 PM (GMT -7)
Dale,
I did not see this till just now. I am very sorry for the loss. My prayers for his family and friends will be done.

Peace...

Tony
Prostate Cancer Forum Co-Moderator

Posted 2/3/2010 4:23 PM (GMT -7)
Dale,

This does not make a lot of sense to me.  Dx with stats. like you and dead in 7 months?  What exactly was his situation.  Especially, when 5 year survival is practically 100% for everyone.  Did he actually die of something else?  He had to have symptoms he ignored for several or more years.

Dx 42

Gleason 6 (tertiary score 0)

OPEN RP 10/08  Johns Hopkins

pT2 Organ confined Gleason 6

PSA Undetectable as of 10/15/09

Next PSA 10/15/2010

Post Edited (ChrisR) : 2/3/2010 4:44:00 PM (GMT-7)

Posted 2/3/2010 4:31 PM (GMT -7)
Chris, these nanograms and other stat generators are just numbers, not people. I don't know the facts here, perhaps Dale will share them, but with an agressive cancer, there is no guaranteed 100% five year survival for anyone. Doesn't work that way, too many other factors in the mix. I think that people get a feeling of complancy with cancer because they formulate a positive survival number. Prostate Cancer is an evil beast, it does what it wants, and when it wants. It doesn't care about stats or percentages. Each human body reacts differently when cancer is in the body.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

Posted 2/3/2010 5:03 PM (GMT -7)
Baloney,  Purgatory.  This is an extremely rare situation.  Besides,  he is scaring the crap out of the newly dx. people with posts like this.  There is no constructive benefit to these types of posts.
Dx 42

Gleason 6 (tertiary score 0)

OPEN RP 10/08  Johns Hopkins

pT2 Organ confined Gleason 6

PSA Undetectable as of 10/15/09

Next PSA 10/15/2010

Posted 2/3/2010 5:03 PM (GMT -7)
Unfortunately Chris,
This is cancer. There are NO 100%'s in five years regardless of Gleason/PSA or any predictive marker we have. That stated, Dale has metastatic lymphatic invasion and G9 PCa. So if his friend had those numbers, he was very high risk. Dale has responded well to treatment (Amen for that).

Studies you read have very limited participation. The current population of PCa survivors is 2.8 million in the US. A study of 15,000 men will miss many cases that are exceptions, a study of 280 is an error rate of P=0.001. We just had a lady posting here whose husband was screened clean at age 45, and passed away at 51. By all accounts that should not happen when you read certain studies. It just does...

We deal in probabilities with this disease. No guarantees...

I hate this stupid disease.

I spoke to Brian, one of Walter's (War eagle) friends two months ago. He is still with us and being stubborn against this disease...God love him. His wife posted on my blog about the same time frame. In his last blog post in July his PSA was still climbing at 111. He was headed in for a second round of Chemo.

Tony
Prostate Cancer Forum Co-Moderator

Post Edited (TC-LasVegas) : 2/3/2010 5:09:12 PM (GMT-7)

Posted 2/3/2010 5:17 PM (GMT -7)
Chris, this is reality for some. Agressive cancers do as they please. Dale's posting of losing a deal friend of this horrible cancer is very appropriate and needed here. It's not all sunshine and happy endings. PC still claims nearly 30,000 lives a year in this country alone.

While its good to here good news and good reports and encouraging developments with the treatments and the cures, this cancer is still affecting so many lives, and still takes too many good men with it. It's better now than it use to be, but still way too many die.

So I don't think it baloney at all. Dying of PC is not rare, its way too common in the cancer deaths of men. That's why I am all about early testing, and appropriate treatments, and public awareness. Too many people are lulled into thinking PC is the "easy" cancer, the "good" cancer, the "slow moving cancer". While it often is, it's not always the case.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

Posted 2/3/2010 5:25 PM (GMT -7)
Well said, David.
Prostate cancer is the #2 cause of cancer mortality in men. I saw somewhere that more than half of those cases were within the first 7 years of detection. But I can't find that presentation.

Sorry for stating facts. We have a good reason to be hopeful. A vast majority will survive this disease. As my saying goes ~ Stay Positive.

Tony
Prostate Cancer Forum Co-Moderator

Posted 2/3/2010 5:40 PM (GMT -7)
I agree with your positive tone, Tony, in your continued efforts to learn and educate others about this cancer. It's always better to report good news or a good result, but that's just part of the mix in living with cancer. Many will survive their PC, and live on, and die of something totally unrelated.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

Posted 2/3/2010 6:54 PM (GMT -7)
Thanks for all the post and I do apologize if this was deemed inappropriate for some. To offer some clarity to Mike's situation. He was diagnosed 7 months ago with lymph node and bone mets. He did not have insurance and was rather poor. He was treated however it was to late and he did not respond. The sad fact is he did die of prostate cancer. This is mean disease and we should not let our guard down.
Again thanks to all for posting, I love all of you and appreciate every point of view .That is what makes this forum so good.

peace to all
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

Posted 2/3/2010 7:08 PM (GMT -7)
Dale, it was most appropriate for your original post. While most of us didn't know your dear friend, he was still a brother to us in this war with Prostate Cancer. His case and his story is important to tell and to remember. I am still sorry that you lost him at such a young age. I hope his family and loved ones are taking it the best that they can. My best to you to Dale. Keep the faith and the courage, brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

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