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Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 2/2/2010 3:24 AM (GMT -6)   
 Hello All
 
     Received a positive biopsy today, dont' know any details, my wife and I have a appointment wed. 2/3. I'm 58, psa level is in the 6's.
 
I quess my first question is what is the Urologist going to ask or suggest and do I have the time to put off decisions for a little bit. Still trying to get my head around this whole thing, any imput would help.
 
                                                                                                                  THANKS

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 2/2/2010 5:29 AM (GMT -6)   
Hello Tim,
Sorry about the biopsy result being positive but by coming to Healingwell you are at a great place for information provided by many helpful members who have walked the walk. At the moment there's not much to be done..............you will get plenty of explanations and help once the biopsy details are posted. But rest assured, given your PSA levels, in general you have plenty of time to educate yourself about the disease and learn the many choices you have in dealing with it.
Stay with us and welcome aboard,
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 2/2/2010 5:43 AM (GMT -6)   
Hi Timm,
Welcome to Healing Well. You found a great source of info and support. On the other hand it's too bad you are here.

First, Don't panic.
From your info you only have the PSA results. I assume you will get your biopsy info tomorrow.

Let's go from best case to worse.
Best: The results of your biopsy are negative. The Uro decides you might have prostatitis and gives you some antibiotics and says "Come back and see me in 3 months for another PSA."

Middle: Your biopsy is positive. 3 positive out of 12, with 10% , 20%, 30% on the left side. Gleason is 3+3=6 He'll most likely order a bone scan

Worse: Biopsy is is positive 10/12 30% 50%.... Gleason is 5+4.....
---------
You need to understand what the numbers mean. Spend an hour or two looking at some of the resource here, reading some signatures and the treatments of some of the guys postng here. It will give you a good idea of what to expect.

Make sure to go either go with someone or take a tape recorder. The Uro will be speaking another language and you will not understand much. Also make sure to request the pathology report. Don't leave the office without it! A paper copy will really help when you are home and can process things better.

Try not to panic. You have some homework to do today. Consider the Uro office visit a "pop quiz" but someone gave you a heads up. Study.
Check back with us after you have the results. You will be much better informed.
Good luck.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next? See Uro 1/22/10 Trimix unsuccessful.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 2/2/2010 7:19 AM (GMT -6)   
Timm, your situation is almost identical to my husband's: he too was 58 at diagnosis and his PSA was 6.4. His biopsy showed 2 out of 10 cores positive with a Gleason of 3+4. When you meet with the doctor to discuss the results of your biopsy, ask for a copy of the pathology report. This will provide you with the information you will need to make a decision. My guess is that most if not all treatment options will be available for your situation.

Right now you're mind is still trying to grapple with the word cancer...no need to panic. While scary, stay with us, ask questions (no matter how trivial they might seem to you) and learn what you can about this disease and its treatment. I think you will quickly see that this is not a death sentence and that you have some time to make as informed a treatment decision as you can.

Come back and let us know how your visit went with the doctor and post the information from your biopsy report. Good luck, and welcome to the best prostate cancer forum there is.

Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


woodguy5
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 2/2/2010 7:22 AM (GMT -6)   
Timm,

Good luck with your biopsy results, keep us posted!!

Ron
age 43
gleason 3+3=6
psa 3.9
Biopsy 1out of 14 samples left side middle 20%
Feb 11th 1st psa test post surgery

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 2/2/2010 7:50 AM (GMT -6)   
Timm...sorry you had to find us, but I am glad that you are reaching out with questions. Not knowing what the biopsy results are is a bit un-nerving but unfortunately only the beginning of a very long ride.

First and most inportant, take your wife and a recorder if possible to your meeting. He will say alot of things that you will only forget later on. A recorder will help remember details. Get a copy of the path report and I would make it your first objective to have a second reading performed by a different pathologist to get a conscenses of what you are dealing with. Then it will be time to carefully visit with all of the specialists for each treatment plan that is available. One thing for certain...don't rush into any treatment plan until you are completely comfortable with your decision.

Best of luck and keep us informed.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 


larryandangieohio
Regular Member


Date Joined Jan 2010
Total Posts : 44
   Posted 2/2/2010 7:53 AM (GMT -6)   
Good morning Timm,

Sorry to see you here, but you have come to the right place. First take a few deep breaths! At this point you don’t know what you don’t know! As other members have already said, don’t feel rushed about anything. You’re scores aren’t as bad as they may seem. There is a wealth of information here and at other places on the web. The learning curve will be incredible, trust me! You’ve already be received some great information and it’s only going to get better. I totally agree with :Worried Guy” .. take a tape recorder with you whenever you have an appointment and always get copies of your reports. Get a notepad and start keeping all your information and questions together. I started mine from both sides … meaning that I opened it from one side where I kept all contact information like phone numbers and addresses, appointment times and places …. And turned it over and opened it from the other side where I would have all my questions and answers for/from the doctors and insurance company. You will want to get a second opinion on everything, or at least I did. You may want to post where you live (city, state) here on HW. There’s probably someone that lives close to you that will have a wealth of info about your area resources. AND FIRST AND FORMOST …. DON’T BE AFRAID TO ASK QUESTION … NOT HERE OR AT THE DOCTORS OFFICE!

God Bless and we’ll be looking forward to hearing more from you. I hope you get good (negative) news tomorrow!
Larry

Age:58  PSA 8/06 8.74,  10/09 7.46,  12/22 6.50 Needle Biopsy  11/10/09: 16/16 cores positive 2 - 85% of tissue,

Gleason score 7 (3+4 with tertiary pattern 5). CT,Bone, and PET scans all negative.

Da Vinci laparoscopic prostatectomy performed on Jan. 07, 2010 at IU Simon Cancer Center…  Indianapolis, IN  Prostate size: 42 g Gleason score (primary + secondary):  4 + 3 = 7

Primary pattern (%):4, 60%  Secondary pattern (%): 3, 35%   Tertiary pattern (if present) (%): 5, 5%

Histologic type: Adenocarcinoma   Variant histology present: No   Multifocality: Yes

Extraprostatic extension: Yes   Seminal vesicle invasion: No   Cancer at surgical margin:No  

Bladder neck involvement: No    Lymph-vascular invasion: No    Perineural invasion: Yes

Catheter removed Jan-19-10  Dry Nights 2 pads/day  Baseline PSA checkup appt 2/3/10

 


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 2/2/2010 8:53 AM (GMT -6)   
Sorry to hear about what you are facing.  There is a ton of good info out there to read.  With your appointment being tomorrow, here is ONE online suggestion for you to read and digest today, before your appointment.  It may help you better digest the Greek that your doctor will be speaking...(take notes, or better yet, ask your wife to take notes).
 
The American Urological Association's "The Management of Localized Prostate Cancer--Patient's Guide" is a 12-page (big print, plus diagrams) document which is a good starting point for where you are at now.  It can be found here:
 
 
More excellent reading info can be recommended later, but your goal now is to get through a clear understanding of your biopsy results.  Be sure that you leave the appointment with an understanding of these three items:
  a)  How many of the biopsy samples had cancer, out of how many total samples taken?
  b)  What % of cancer was there, versus non-cancerous cells, in the biopsy samples which did have cancer?
  c)  What is the Gleason Score (GS)?  (GS tells how developed the cancer cells are.  See "Patient Guide" for description.)
These will all be in the pathology report, which you doctor will probably offer a photocopy of (if not, ask for one).
 
Also important to know your DRE (digital rectal exam) result.
 
The four things listed here (a, b, c and DRE) are the key pieces of data to understand for now.
 
Please do realize that most early detection (from elevated PSA screening tests) PC is localized and low risk, and therefore very treatable.  After going over you biopsy results, your doctor will likely start talking about treatment options.  With localized & low risk PC, you would have plenty of time to thoroughly research all options...no hurry.
 
Hope this helps...

Post Edited (Casey59) : 2/2/2010 8:27:28 AM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/2/2010 9:57 AM (GMT -6)   
Guys, Tim already said the biopsy was positive, that is a given.

Welcome Tim,

Until you get all the numbers from the biopsy from your dr, anything else would just be a guess. Regardless of the results, you will have plenty of time to learn and think through any decision(s) you will or want make. Based on your numbers, a good doctor will walk you through the basics of all the normal treatment choices. These including Active Suvielance (AS) - where your numbers are low, your cancer is minimal, if your uro is also a surgeon, and many are - he/she may push for surgery right away - either open surgery or robotic, you can have radiation, i.e. IMRT, you can have Radioactive Seeding - with or without additional radiation added to it. These are some of the typical choices.

What is right for you depends on so many factors. Your gleason score and staging, which should be known from the biopsy you had, any family history of PC you might have, and your PSA - not so much the actual number, but how fast did it get there - known as PSA veolocity - a helpful too to determine how agressive your cancer may or may not be.

In any event, you will have time to go through all of this, to research on your own, to get second or even third opinions. If your uro does surgery, don't be surprised if he/she pushes for a quick decision to do surgery. Of course they would have a vested interest in treating you, before someone else does.

Please post again with any quetions. Please post when you have the full results of your biopsy, it will help us understand your particular situation.

We are here for you, no such thing as a dumb question, so ask away.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/3/2010 3:23 AM (GMT -6)   
The possible pitfalls for anyone diagnosed with PCa:
 
1) no guarantees with anything and especially for high risk patients (see nomograms,Partin tables). I suppose you can guarantee your life is influenced enough, you will witness how that plays out as you go.
 
2) Drs. can be very biased especially as to what they offer (sell) and maybe have blinders as to things outside their training, the doctors do not all agree on what to do on a given patient. Some docs may rush you into surgery or whatever method even if you were a reasonable candidate for watchful waiting/surveliance. Some will tell you I can cure you...great...get it in writting and read the fine print.
 
3) pathology is not even precise enough(biopsies can miss areas, you can have multiple Gleason scores within your gland, so hopefully it did not miss on an 8,9,10 biopsy) and scans and tests are either flawed or not definitive enough....so your treatment is based upon???? Best guess scenarios is the truth of the matter. Not to mention there are many variant types of PCa and they do not all respond the same, a few are super aggressive and even hormone treatments do not respond well to (those are rarer is the good news).
 
4) 'The I have PCa, so get it out'- scenario is great in theory but not perfected in actual science, might have more truth for the indolent forms and "light duty" versions of case presentations, which have the best chances for cure. But the docs cannot verify if it has spread or if you have micro mets, they attempt to of course but is not near what level of expertise is actually needed for patient. Scans are not nearly good enough to pickup such. Alot good number  of patients can fall into the recurrence scenario after their primary treatment and wonder why....'doc said he got it all' . We have even heard of cases where the doc didn't even get all the gland removed, let alone the cancer. You can have recurrence even 10 yrs. plus afterwards, even with nice looking psa numbers for a long while (it is possible, maybe more rare)
 
5)not alot of docs will tell you to get second opinions or go shopping, or come on back after you have checked out the competition, some might.  Not many will suggest you read alot of books and such before you give them your decision. You might try to understand the why is it this way and contemplate that for yourself.
 
6) be prepared to monitor psa and other tests perhaps the rest of your life or a good while, and probably sweating out each psa test to find out, was all this treatment effective...especially considering your journey...side effcts...life changes.
 
7) you can study the $#*(& -out of this on your own and get multiple opinions (which is highly suggested even to understand  what goes on in the real world), and you can never get a full grip on any given presentation of PCa, the low risk and indolent versions are the best to be found with and render best results. Realize that with PCa there are basically plenty of exceptions, undefined variables, etc. and this is the rule(norm) in this world.
 
Not what you want to hear, doesn't change the reality of what PCa is about. Is anyone fully prepared to deal with all this? The education you should get, the multiple opinions, how to shop or find the right doc or situation or truthfulness on your case, the how to deal with PCa after treatments (side effects, changes), what to do if treatment fails???  What choices might I actually even have and where???  Is PCa handled differently in other countries and what is their results?? If I have little or no money what options might I have that I don't know exist, is there answers???(yes there are!!!)
 
Bring your 'A' game to the table is a suggestion or be a totally uninformed type, it is your call now to make, you have choices and heavy decisions to contemplate.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/3/2010 5:18 AM (GMT -6)   
Here is a quote from Dr. Strum a cutting edge oncologist specializing in PCa has great books and world wide patients. This is from a reply he made to a patient whom is dealing with recurrance and sought his advice, so you don't read the whole thing and not meant to change the context of the words. The message is still clear:


<Stephen Strum, MD>
When growing up I was lucky to have my own work room in the basement
of our house. I had my own chemistry and biology lab and was doing
really advanced work as a high school student. On the wall was a
placard that maybe my father or someone else had given me: "The only
place were success comes before work is in the dictionary." I
believe this applies to you and every patient. You have to do your
"homework" and that means trying to find a medical team that will
resonate with that approach. In contrast, the typical medical
approach is "let's do this, and when that fails let's do that". That
is why we see men who were not candidates for a local treatment for
PC end up with a RP followed by RT. Thank God that there are not a
dozen local therapies for PC because such men would have all 12
before someone realized that this particular patient may not have had
disease that was curable by local therapy--of any kind. Again,
Status Begets Strategy (SBS).
+++++==========================++++++
(my words):
Qualifying what a patient actually is dealing with as to reasonable curative prognosis, is very difficult and expert oncologists in PCa have a better handle on analyzing such various tests, that many uro-docs don't even know about or ask to get done or analyze such data. So.....you can witness the results in the patient population, especially with forums like this and see various types of results. Most of the 10-15 yrs. results we are not much informed about, just to keep it all real. So, for some whom appear cured today....it is not written in stone and sadly you must monitor psa levels a long while or you might monitor them, it is another choice.
Youth is wasted on the Young-(W.C. Fields)


JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 2/3/2010 8:41 AM (GMT -6)   
Timm -
 
In line with the earlier advice to take a tape recorder, my urologist (on my first visit) recommended that I start a file of all notes, questions, reports, articles etc. and take them with me on visits to other docs. I did so and having the info at hand came in handy on a number of occasions.
 
Good summation above by zufus on the reality of pca and all the things you will find yourself dealing with. The good news is that there are men on this forum that have had just about every experience and emotion that you will encounter and will be a source of support and information. Learn all you can and do what feels right for you. Best wishes on you journey.
 
Joe67
 
__________________________
 
 

Age -67 PSA - 4.5

Biopsy  (9/4/09) - Positive in 5 of 8 cores. In those 5 cores, 5 of 11 samples were positive. Gleason 3+3=6. Stage – T1C  Ct and Bone scans negative

 

BT performed on 12/11/09. 84 seeds of Palladium 103. Surgery at 7:30 - Home at 12:30 same day with no catheter. Side effects as expected -  some burning, frequency, urgency. (Blood in urine stopped after 1 week).  Resumed daily  1 ½ mile walk after 3 days.

 

BT will be followed with 25 IGRT treatments beginning Feb 8. 

 

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 2/3/2010 2:36 PM (GMT -6)   
You have gotten a lot of good advice. I will only add three points

1) It is great to have your wife involved -- I
brought my wife onto the team later than I should have.

2) Treatment, especially surgery should wait a minimum of 6 weeks to let the biopsy heal. In almost all cases there is no problem in going three or four months before the next step.

3) A good doctor will not be at all reluctant to have you talk to other doctors. Mine spent some time explaining just how good another doctor in the area was.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/3/2010 3:00 PM (GMT -6)   
You've gotten plenty of replies and there's not much I could add, so just let me say welcome to the forum, hate you have to be here, glad you came,...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 2/3/2010 3:04 PM (GMT -6)   
We will be waiting for you report after you visit with the Uro.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 2/3/2010 3:35 PM (GMT -6)   
Welcome! Take advantage of the info that was giving. Alot of folks here didn't find HW till after treatment. Lots of good info here, good luck. Keep us posted.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010


Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 2/4/2010 5:10 PM (GMT -6)   
First of all,
 
     Everyone, thank you so much for the input, I wish I had the abilty to desrcibe what all these replies have meant to me, needless to say the thought of people taking time away from their own problems, to help me, just tears me up. Thank you again.
 
     Time to get clinical, I saw the Dr. on Wed in the morning the results of the Path. report indicated 8 out 12 cores [all on the right side] the Gleason grade reported from 3+4=7 estimated 90% of tumor is grade 3.
 
     My doctor is a big De Vinci guy and said he had a part in the development, oh by the way I live in northern Calif. S.F. East bay , San Ramon.  I borrowed my daughter's voice recorder, as suggest and took notes and just like everyone predicted,  I'm going in for my CT scan next Thursday. He says I'm good candidate for surgery but he's not being pushy at all, so time to do my homework and come to some decision.
 
    The way I'm trying to look at this, I know it sounds kind of juvenile but it's like waking up with a bad hangover. If I can make it to the alarm clock than I can make it to the coffee pot, to my car, and to work, so-on and so-on, starting with my CT scan. I don't know if this is making any sense to anyone but me, there it is?
    
    The good side: My family has been so great, and my cynical attitude on people and life is changing drastically.
 
    Thank you so much--what a wonderful site. 

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/4/2010 5:28 PM (GMT -6)   
There ya go, take one step at a time on your new journey.....We'll be here for any support, info, etc. you need from us....
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 2/4/2010 5:28 PM (GMT -6)   
tim,
Glad you found the good side to all of this, as that is so important. The men and women on here are very supportive and caring. Continue to educate yourself about your tx options and then make a choic and dont look back. I understand the analogy of the hangover, but really one step at a time is how things get done. When I excercise the hardest part is starting and i just put one foot in front of the other and pretty soon I "am in the moment" and not focused on the excuses I had lined up to not start. Anyway, glad your family is so suppotive as well. Keep us posted as possible.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 2/4/2010 5:48 PM (GMT -6)   
Each hurdle you get passed is a releif, and then your faced with another one. It's a tough situation to handle but not impossible. Take your time and learn as much as you can. Your numbers look like mine. I chose surgery but that don't mean it's for you. Keep us posted.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/5/2010 5:17 PM (GMT -6)   
Best of luck Timm in whatever avenue you pursue. The "Da Vinci" guy will naturally push that perfection with him as your only salvation (LOL), perhaps! Perhaps let him sell you on the whole deal, before you ask any tough questions, or let on that you are in the process of the 'real education'. You might be amazed at how things get answered slightly differently to an education patient whom can possibly detect the real truth vs. sales type hyperbole. But you don't have to listen to me....I've been to the mountain though with 8 opinions face to face...absolutely amazing what goes on in the unreal-real world of medicine and this cancer.

Not saying not to do surgery with him either, maybe let him know you are thinking about it and can get back to him....see how that response resonates...if he is not upset or miffed about it, then you might have the kind of doc you need. Life and death or major alterations of your body is worth more than one ----blanking---- opinion??? Wouldn't ya think? Hope you get honest answers, not all patients hear the real truth. I post this not for my freakin glory but so new guys get a heads up on what you are dealing with besides the cancer....the twlight zone seems more realistic than issues on PCa.


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 2/5/2010 4:21:44 PM (GMT-7)


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 2/5/2010 5:58 PM (GMT -6)   
Timm, you are more than welcome! And yes, I agree that this is a wonderful site. Keep in mind that most of us here have been where you are, and we've all walked the same journey in one form or another. There is an incredible amount of experience, knowledge and outright compassion here ... take what you need when you need it. That's how most of us got through our own ordeals.

Come back and let us know how things are going. If your wife is interested in visiting this forum, please let her know that there are several women who post here (wives and daughters). Prostate cancer isn't just a man's disease.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!

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