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SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 2/2/2010 12:47 PM (GMT -6)   
Had cath #2 removed yesterday.  Had cystoscope and blockage removal last Friday.  Had cath removed at 1100 and was unable to pass urine until 6:00 at night.  Was almost on way to emergency room to get new cath (ouch), but finally got a good stream again and all is well.  Urologist says recurrance of scar tissue/blockage is possible.  Hope not.  See the radiation oncologist today.  Urologist concurs with me that we will delay possible IMRT 3 months, after another PSA.  He wants to resolve scarring problem.  I am sure the rad oncologist will have a different take - he seemed anxious to get started when I talked to him the last time.  The battle continues.
Age 63, PSA July 2009 5.66
Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8

MRI and Bone Scan Negative.

open Surgey October 22, 2009 (6 hours on table; 2 units blood)

Small part of incision infected (2 staples removed); finally healed at 3 month mark.

Prostate, both nerve bundles, seminal vessels, and two lymph nodes removed during surgery.

Post surgery Biopsy, Gleason 4 + 3; 2 positive margins


Returned to work after 6 weeks. First week worked only half days because of pain from sitting for long periods.

Still slightly incontinant after 12 weeks - 1 pads per day (light). Dry at night. 1-2 trips to toilet.

ED - Yes (will start Levitra possibly in January)

30 day PSA (ultra-sensitive) .07

90 day PSA (standard) <0.15


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/2/2010 12:52 PM (GMT -6)   
Hang in there, guy. Hopefully things will level off for you.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 2/2/2010 1:00 PM (GMT -6)   
OH the simple joys in life - being able to pee without a bag strapped to your leg.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/2/2010 1:34 PM (GMT -6)   
This is the story of my life. The radiation will cause more swelling, and might close your bladder neck down completely, like was my most recent case. This is why my radiation oncologist and urologist agreed to put in the SP suprapubic cath ahead of time, before IMRT, so that I wouldn't be in an emergency situation. Something to consider with the blockage history you have had so f ar.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 2/2/2010 5:49 PM (GMT -6)   
Met with the radiology oncologist again today.  He agrees with the Urologist in waiting three more months to see another PSA before starting IMRT/IGRT.  He bases this on the two low PSA tests (both considered not detectable by my hospital labs standards) and the scarring problem I have had.  Since the radiation will be blasting the bladder neck, he said more scarring could be a problem right now. (Not that it won't be in the future).  Bottom line is the two doctors and I all seem to be in agreement to wait.  He did say again that some recent studies do show that getting the radiation earlier makes for better chances of survivorability.  So, I guess I will play the PSA waiting game again and hope in the interim I don't get plugged up again.  The radiiologist did state that he is sure I will eventually need the radiation sometime in the future.

Age 63, PSA July 2009 5.66
Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8

MRI and Bone Scan Negative.

open Surgey October 22, 2009 (6 hours on table; 2 units blood)

Small part of incision infected (2 staples removed); finally healed at 3 month mark.

Prostate, both nerve bundles, seminal vessels, and two lymph nodes removed during surgery.

Post surgery Biopsy, Gleason 4 + 3; 2 positive margins


Returned to work after 6 weeks. First week worked only half days because of pain from sitting for long periods.

Still slightly incontinant after 12 weeks - 1 pads per day (light). Dry at night. 1-2 trips to toilet.

ED - Yes (will start Levitra possibly in January)

30 day PSA (ultra-sensitive) .07

90 day PSA (standard) <0.15


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/2/2010 5:58 PM (GMT -6)   
I think the idea of waiting in your case a little longer makes a lot of sense for now. Sounds like you got some pretty good advice. Hope you keep flowing fine on your own. In my case, my uro/surgeon wants to make sure that I never have to go through any ER again in the event of a blockage, because my local ER messed up things big time last July. Now that things are more complicated post IMRT with my bladder neck, he doesn't want someone not familiar with my "plumbing" to damage or hurt me in an ER situation. Bet your doctor has that in the back of his/her mind too. Good luck, and keep me posted, ,or if you want to write, email is always available.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

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