cancer retreat

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bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 2/3/2010 6:52 AM (GMT -6)   
hi everybody .just a few words about a tremendous time i have just spent at a cancer retreat called the penny brohn centre just outside bristol in england. its open to all cancer sufferers and of course is a charity.there were only 9 of us on the three day course only two of which were blokes but that did nt matter at all.three of the members had very serious levels of cancer and the others varying levels, a lot being breast etc.what i gained from was the  tremendous strength and love that was felt by all of us .many were undergoing chemo and several other treatments but everybody seemed to benefit from the warmth and understanding emmitted by fellow sufferers.the venue, staff and food although veggy were second to non which created the perfect environment in which to relax, meditate, learn imaging[basically the power of positive thought ]and healing as well as how to eat correctly.this is not an ad as i have no connection and most of you are in the states but it has certainly changed my life and the way i think about my forthcoming op .i have opted for robotic by  prof roger kirby in london the 16th feb.he has advised to get as fit as poss so i hit the gym most days and eat loads of veg and plenty of fruit and beans .getting fit but a bit smelly cheers barry
PSA Aug 07 was 3, Mid 08, 3.5, mid 09, 7.27

First biopsy july 09 - t2a on left . 11 samples taken from 6 blocks. 4 blocks show positive for adenocarcinoma. 1 block 10%, 3 blocks 5%, overall gleason 3 plus 4. No perineural invasion seen. Seminal vesicles clear.

End Oct 2009, bone scan all clear, MRI shows 6mm lesion on bottom left and rest of gland diffused image. Late Nov 2009, a template biopsy of 32 from 20 sites adenocarcinoma, gleason 3 plus 4 at 10 sites; unfortunately spread over both left and right.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 2/3/2010 6:58 AM (GMT -6)   
Sounds like a life changing experience for you Barry and that is great. Fitness before and after surgery certainly improves our lifes. Someone once said he didnt know if exercise would help him live longer, but the quality of his life had already improved. We will be thinking of you as you approach surgery and keep us posted as possible.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2010 9:15 AM (GMT -6)   
Barry, sounds like a great program you have here. Good luck on your pending surgery, be glad when you are on the recovery side.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 2/3/2010 2:00 PM (GMT -6)   
I guess gas from surgery won't be a problem for you.

Good Luck ! See you on the other side
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 2/4/2010 3:30 AM (GMT -6)   
hi guys many thanks, you are a constant source of support and fun cheers barry
PSA Aug 07 was 3, Mid 08, 3.5, mid 09, 7.27

First biopsy july 09 - t2a on left . 11 samples taken from 6 blocks. 4 blocks show positive for adenocarcinoma. 1 block 10%, 3 blocks 5%, overall gleason 3 plus 4. No perineural invasion seen. Seminal vesicles clear.

End Oct 2009, bone scan all clear, MRI shows 6mm lesion on bottom left and rest of gland diffused image. Late Nov 2009, a template biopsy of 32 from 20 sites adenocarcinoma, gleason 3 plus 4 at 10 sites; unfortunately spread over both left and right.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 2/4/2010 9:10 AM (GMT -6)   
Barry,
Start doing your kegels now - while your brain, bladder, pelvic floor still know how. Include a few minutes in your exercise routine. Also it would not hurt to practice "emptying the 'ole prostate". You will increase circulation and help establish the connections.

I don't know your age or marital status but it sure seems like you found a great way to meet understanding members of the opposite sex. And it certainly doesn't hurt being outnumbered 3.5:1. Heck, one day at the camp and you are past 6 months of side-stepping, worrying, hiding, and fretting about if and when is the right time to fess up. You both already know the score. What a relief. If you lived in the US by the second meeting you could be discussing who has the better health care insurance.
I think you found Gold, my friend. Gold! (Unless of course you are married and then you found "support" .

Jeff

(Umm, I'm just writing to one of my HW buddies, Dear. I'm not going to any meetings! I have all the gold I need at home. Shall I take out the trash now? )
DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots, See Uro 1/22/10 Trimix unsuccessful.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.

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