difficulties recovering after bladder stricture surgery

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kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 2/3/2010 7:01 AM (GMT -6)   
Hi
I am reaching out for some help from my fellow PC guys. I had a difficult year in 2008. I had a fall in january 2008 at work on ice and damaged nerves in my neck, Feb 2008 I was diagnosed with a possitive biopsy for PC, and in March 2008 through a routine eye check I was told I had advanced glaucoma and had to have eye surgery within 2 weeks to save my sight. It was quite a whirlwin of bad news one right after the other. I held off booking my surgery till Sept 2008, hoping to cure it with homeopathis herbs but it was just to overwhelming to control taking all the herbs necessary, plus my wife was freaking out. To top it all off I ended up in the emergency with kidney stones on two diferent occations in June and July of 2008. To make a long story short it was all too much for my brain and body to handle and I ended up on anti depressents. My surgery was sept 18 and following psa`s have been negative. But as can happen with PC patients, bladder neck strictures come along from scar tissue. so three weeks ago I had it done and the pain everytime i had to stand to pass urine was excruituating. Finally the catheter was taken out on Jan 18 and I went back to work the next day, but I`m finding difficulty with low energy levels and muscle weekness almost flu like symptons. If anyone can give some advice to my situation it would be greatly appreciated

Thankyou for listening
Fred
Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
1st PSA nov 08 undectable
kept left side bundle of nerves but lost some of the right side bundle
also had laser surgery in July 2008 to save eye sight from glaucoma hospitalized twice for kidney stones  in summer of 2008


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4823
   Posted 2/3/2010 8:06 AM (GMT -6)   
"but I`m finding difficulty with low energy levels and muscle weekness almost flu like symptons"
 
Sounds like an infection somewhere to me and that you should seek out medical treatment.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 2/3/2010 9:22 AM (GMT -6)   
Fred, you have been through a trememdous amount there, a whole lot of suffering on your plate. I am home recovering from my 4th stricture related surgery in the past 15 months, I know what you are going through, and its no fun. I keep having continual scarring issues at the bladder neck.

Can only hope the doctor got it right for you this time, and hopefully it wont scar back anytime soon. I have now been on this SP catheter since October 1 and its about to drive me nuts. Hopefully my ordeal will be over in a few more weeks.

Keep healing, and keep peeing, and hopefully you will continue to mend.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 2/4/2010 8:08 AM (GMT -6)   
Hi David

Wow, what I read of what you`ve been through, its amazing you can keep your sanity. I hated having the catheter in for 2 weeks. You know, we as cancer survivors have 2 battles, we have the physical battle and the mental battle with the cancer. our dr can help through surgery with the physical part but we have to deal with the mental scars after our surgery.
You appear to have great inner strength, to help you through what you`ve been going through with your surgeries. I seem you win the battle most of the time but the war is very tiring sometimes. Hopefully you are finished with all your surgery and you can have some peace of mind

Take care Fred
Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
1st PSA nov 08 undectable
kept left side bundle of nerves but lost some of the right side bundle
also had laser surgery in July 2008 to save eye sight from glaucoma hospitalized twice for kidney stones  in summer of 2008


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 2/4/2010 8:50 AM (GMT -6)   
Fred, thank you.

Not sure I have any inner strength. The duration part of all these complications and problems have really been getting to me lately, it seems like it is an endless process. Its more of a survival drive on my part, and the fact that I have little options. When you block up constantly, the pain involved (as you know it) makes a believer out of you, and things like long term catheter use become a nuisance but needed.

Hope you continue you improve as well.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

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