New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 2/4/2010 11:13 AM (GMT -6)   
.
I'm continually having a problem with the catheter leg bag.
 
The instruction pamphlet that came with it reads as follows:
 
1. Strap the leg bag on to your leg.
 
2. Connect the flexible rubber tubing to the cath outlet.
 
3. Connect the end of the rubber tubing to the top
of the leg bag.
 
Here might be my problem, I don't seem to have a "this flexible rubber tubing"
 
The end of the cath, out of my Willie (now called 'shorty') hooks straight up to the top of the bag. This means the bag must be positioned quite high on my leg in order for the cath tube to reach. That area of my leg is much wider than just above the knee, causing the bag, by gravity, to continue to fall down, and over my knee. I do try to have the top strap as tight as possible.
 
QUESTION: Am I missing a 10"-12" piece of tubing that would extend the cath outlet and then allow me to position the entire bag between my knee and lower leg where my calf would keep it in place ?
 
Thanks.
Jerry.
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
 
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
 
NOPE, that just changed to January 20th. (2 days earlier) and the venue for entertainment gets moved to the University Hospital.
 
Open surgery done on Jan. 20th.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
 
Need to get this over with ASAP so next season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie
who has been the most supportive wife possible.
.

Post Edited (JB71) : 2/5/2010 8:50:46 AM (GMT-7)


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 2/4/2010 11:19 AM (GMT -6)   

I did have a piece of tubing that was long enough with the day bag to stretch down my leg .  When I changed to the night bag it was long enough to comfortably stretch to the floor with the bag attached. 

You might want to call your surgeons office to discuss

 

Ray

 


diag 9/09
 
age at diag 54
 
PSA 6/09 1.3
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery  1/13/10 at UP- Penn Presby with Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
 


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 2/4/2010 11:20 AM (GMT -6)   

one more thing - for me i found it easier to connect the bag and then strap it onto my leg.

 

 


diag 9/09
 
age at diag 54
 
PSA 6/09 1.3
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery  1/13/10 at UP- Penn Presby with Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2010 11:51 AM (GMT -6)   
that leg bag can hook up two ways. the first is by connecting the top of the bag to the outlet on the end of the "Y" on the catheter. the bag will sit over your knee, and you have to be careful not to pull the connection apart. a. it doesnt feel good b. you will pee all over your pants before you can reach in an re-connect.

the best way is to use an extension tube, it connects to the cath at the "y", and then runs down your leg and connects to the top of the leg bag. then the leg bag can be strapped at the top and and the bottom, and will sit comfortably on your leg without pulling it down, or pulling on your cath. this is the prefereed way. also makes it easier when you go to empty the bag, as you just have to step up to the toilet seat with the correct leg, pull up your pants leg a little, and empty the valve and you are done.

your uro or surgeon can give you an extension tube if needed, or any medical supply store will have them in stock.

with the leg bags, regardless of how much they can hold, it pays to empty when about half full so that gravity doesnt work against the straps.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 2/4/2010 11:56 AM (GMT -6)   
I removed the tube from the night bag where it attaches to the bag, and attached that to the leg bag. That allowed me to wear the bag on my lower leg, above the ankle.
Roger

 Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.

2/6/09              Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro

4/20/09            TRUS  w/needle biopsy

4/23/09            Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.

                        CT scan and Bone Scan both negative. Stage T2C.

8/27/09            DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.

9/8/09              Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion.  Stage pT3b.

9/30/09            PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Prostate Oncologist and Radiation Oncologist. Appointments set for 10/8.

10/8/09            Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.

10/21/09          First Lupron injection. 30 mg dose (4 month)

11/2/09            PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.

12/18/09          psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/09. Anticipate 64-66 grays over 32-33 treatments.

1/14/10            Start RT with 32 treatments # 2 gys per.

 

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradually getting better, with dramatic reduction in leakage around 9/20. Currently on 1 pad during the day and one at night (for security). Actually totally dry at night. After 1/16/10 down to a female regular pad. Barely felt.

 

 

 


profman
Regular Member


Date Joined Jan 2010
Total Posts : 55
   Posted 2/4/2010 11:57 AM (GMT -6)   
Hi - when I left the hospital I was in a leg bag, and the nurse supplied some tubing which went from the hinge thing on my thigh down to my calf, to plug into the leg bag. Your uro's office should be able to supply you with such a piece of tubing.
Diagnosed 9/4/09
PSA 3.5, up from 1.8 year before
First biopsy showed 3/10 positive cores, Gleason 3+3, less than 10% involvement in all three cores, diagnosed as T2a
Doc and I decided on Active Surveillance, pending a confirmatory biopsy
Second biopsy showed 5/10 positive cores, Gleason 3+3, left side (4 postitive cores) had 40% involvement
RRP on 12/15/09
Home on 12/16/09
Failed cystogram on 12/23/09, catheter out on 12/29/09
Path report was all good news, Gleason 3+3, no margin involvement, no perineural involvement, everything clean other than core of prostate, tumor on both sides, but more prevalent on left side, 5% involvement, 42 gram organ
Within two days down to one pad a day, now continent except if I sleep more than four hours
Back to work 1/4/10
First PSA 1/28/10 - nondetectable, next scheduled June 2, 2010
ED present, although blood does flow after Viagra. Will try pump in a week


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2010 12:43 PM (GMT -6)   
On the leg bag straps themselves, several varieties out there.

Worse - 100% piece of velcro - they never stay up for long, or come apart

Better - Elastic with velcro to fasten. they work pretty good, though sometimes can pop apart

Best - Elastic with little buttons/button holes. A little harder to fasten, but once the button is in place, they won't slip up or down, or pop apart.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 2/4/2010 2:13 PM (GMT -6)   

I'd supply you with a knowledgeable response but I have totally supressed the experience.

Mel (what leg bag?)


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Surgery with Dr. Menon at Ford Hospital,  1/26/10. He says all looked good. Spared nerves. Awaiting pathology report, set for 2/2/10.

Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland.

Lymph Nodes: Clear

Perineural Invasion: yes. Seminal Vessical Involvement: No

Extraprostatic Extension: yes

Positive Margin: Yes-- focal-- 1 spot .5mm

Final Weight is 52.7 gms

Incontinence: just joined that club-- definite leaks-- my guess is 1 pad during the day -- at night??? First night tonight!

 

 

 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 2/4/2010 3:51 PM (GMT -6)   
Yes, there is definitely supposed to be about 18 inches of tube between the catheter and the leg bag. I had just one tube for the two bags.

There is a special place in Hell for the people who design the leg bag straps and make them too flimsy. One brother bought a baggy pair of cargo pants at Goodwill, put the leg bag in a leg pocket and cut a hole inside for the tube.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day
9 mo. PSA 0.00 -- 1 light pad/day ED remains


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2010 3:58 PM (GMT -6)   
Most of the night bags (the big bag) that I have had, come with a strong but flexible clear tube attached, with plenty of length to move it around or to hang it from objects.

The leg bag tubes are usually a softer kind of rubber/vinyl, often off-white or yellow in color, and not as long. As mentioned above, the leg bag can be attached directly to the Y in the catheter, with the bag centered over the knee cap, but doesnt work as well that way.

That's why I always ask for a leg bag tube whenever I am given a new leg bag. Everytime I change bags during the day, I dose the outside of the tubes where they connect with rubbing achlohol to be on the safe side. Once a week, the bags are cleaned properly with white vingegar. Can't spell today.

David in sC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 2/4/2010 4:00 PM (GMT -6)   
Piece of garden hose and some duct tape can fix anything. Careful for that tape tho, pulls the hairs right out !

If David in SC says how, now one can argue with the reiging king of caths.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2010 4:07 PM (GMT -6)   
Goodlife, my loyal subject, I acknowledge my crowing jewel in life, as King of Catheters, something I have worked hard to earn and achieve with dutiful experience. If my uro has his way next Monday, he will remove #11 and #12, and install #13, so I will be back to one at a time instead of two.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 2/4/2010 4:09 PM (GMT -6)   
Yes your majesty. Long pee the king !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 2/4/2010 4:20 PM (GMT -6)   
Talk about stuff I didn't notice - I went home with the big bag, and didn't change it after the horror stories the nurse told of infection possibilities/probabilities. It was "only" a week.
They did give me a leg bag, spare big bag, and a bunch of miscellaneous packets that I chunked in a sack and forgot about until now. I've just pulled it out to see what they did give me.
- The big bag has a tube with it.
- surprise, surprise, the leg bag does not, and there were no extra tubes.

Good thing I didn't decide to use the leg bag. I can only imagine the fight, remembering how mad at them I was at that point about the UTI medication and swelling no one warned me about.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2010 4:59 PM (GMT -6)   
142, as a general rule, leg bags don't come with a tube, usually its an option, and you have to ask for one. the big bag, the ones we call night bags, always come with a strong, long clear tube.

i find the talk of infection from handling the bags more of a scare story. with all my caths and cath times, that's never been an issue. the only time, and i mean in my entire life, that i have ever had UTI's is since I have been on the SP suprapubic catheters for so longs. My uro said they ride high in the bladder and are infection magnets. he said that within 24 hrs, it will start creating one.

for the average man here with PC post surgery, they are on a catheter from 5 days to 2 weeks tops as a rule, so the chances of a UTI would be rare, and with the exception of Mel and Sonny, all have been with Foley catheters, while annoying coming out your weiner, less likely to become infected.

just some more useless catheter trivia.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 2/4/2010 6:00 PM (GMT -6)   
 Goodlife said:            
Yes your majesty. Long pee the king !
  Good one
 
 

Sorry JB71 not making fun of the issue.

 

Neal


age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 2/4/2010 6:29 PM (GMT -6)   

I was drinking so much appropriate fluid I found the leg bag to be 100% useless. As a matter of fact I would have opted for a full 5 gal. bag. (lol)        Hero


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 2/4/2010 11:41 PM (GMT -6)   
I had one UTI with the cath in (to go with the constant bladder spasms), then two more before Christmas. They had me drinking so much water while the cath was in that the leg bag would not have worked. Staying with the night bag worked, so I never swapped one out.

I was clueless about the catheter until I found it sticking out of me, and had to ask how to deal with it before I went home. Turned out there was quite the confusion over who was supposed to tell me what, and I came up on the short end. One of the only parts of my care that weren't first-rate at the hospital.

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 2/5/2010 4:48 AM (GMT -6)   
Luckily I don't need bags and pipes and catheters any more (and I hope that's not being too optimistic).

But Oh boy! It sounds like I was spoilt in Holland.

Before I left hospital a nurse sat me down and demonstrated how to attach things and remove them and empty them and clean them then watched me while I had a go and corrected my mistakes etc.

When I left hospital I was given a large box (free of charge) which contained:
three leg bags with long hose pipe, plus tap to empty it and button holes to attach it and connectors to attach it to the foley catheter.
three night bags with long hose pipe plus tap to empty it and connectors to attach it to the foley catheter. button holes to attach it. and a hanger to clip it to the side of the bed at night
four straps (elastic plus velcro plus buttons)
spare connectors
large sticking plaster with sticky velcro fastener to stick to upper thigh to hold pipe in place (plus spare)
and some sterile pads to clean the connections


I was also told to rinse the bags and pipes every day, so in the morning I cleaned the night bag and pipe and left it hanging in the shower to dry, then in the evening did the same with the day bag. I was also told to throw away a bag after three days of use.

In use I was able to move the bags around a lot to make it easy to find a comfortable position. either above my ankle or on my thigh, or on the left or right, or even just lying on the floor (the long pipe was that long) I made a point of emptying it regualrly to keep the weight down too. I was even able to pee in a drain in the street by simply kneeling down as though tying my shoelaces then open the tap by my ankle and hey presto! (Watch out for passing dogs!)

It would help if I could give you the website address for the company that supplied the "kit" , so people could see what it all looks like but it's all in Dutch. (I've tried searching for images on English language websites ang can find very little www.manfredsauer.co.uk/ has some picturtes, but it's not the same as the stuff I was given)

Also a shame I can't show anyone the photograph I took of the system in use.

Alfred

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 2/5/2010 6:21 AM (GMT -6)   
Hey JB71
I wore my leg bag on my calf. And strapped it with rubber tourniquet strips - available from any IV drug abuser. The straps the hospital supplied were junk. I did not wear it often. Only when I went out and had to look "normal". I was the one who modified a set of cargo pants. The rest of the time I just used the overnight bag and carried it hooked tot he side of a 5 gallon bucket. Hooking it is important! In the beginning I just plopped it in the bucket. Early on the valve plugged and the tube did not drain. I learned quickly.
I also carried a wooden clothes pin (the kind your mother used to have) with me at all time. I used it to close off the soft rubber tubing when I had to change the bag. That was a lot easier than trying to do it by pinching with my fingers.
There is another advantage to having the leg bag on your calf. When the bag gets full you can reach down, pull up your pants leg a bit, turn the valve and drain the lizard with no one the wiser. You can even do it outside. People think you are tying your shoes.

If the hospital or Uro's office is too far away, you can get Tygon tubing for less than $1.00 at Lowes and cut it to the right length.
Good luck.
And let me repeat that David is the King of Catheters. I defer to his expertise.
Jeff
DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots, See Uro 1/22/10 Trimix unsuccessful.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


CM63
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 2/5/2010 1:43 PM (GMT -6)   

Hey Jerry

You've gotten lots of advice here but I thought I would put my 2 cents in too seeing as you and Brad both were in London.  We didn't get a longer tube either so we just used the tupe coming out of "Willie" and he wore it on his upper leg.  He did find that it stayed in place better when he wore the Ted stocking on his leg.  He didn't have to wear it after day 10 post op so we ended up cutting the foot and most of the lower leg out of the stocking then he put that on in the morning.  The velcro elastic strap was then done up as tight as he could stand it and it all seemed to stay in place.  He also liked to strap the tubing to his leg so it didn't jar his "willie".  He wasn't going to use the leg bag but once he got onto it he liked it much better then the big long tube on the night bag.  He found that tube got in the way alot and if it was bumped then it hurt as it then moved his tender fella!  I would come home from work in the morning to change them over he would sit on the tub and we would disconnect the night bag and he would hold that tube so the pee didn't come out then I would wipe both that tube and the leg bag connection with a alcohol wipe and then connected them.  We got it down to an art after the two weeks.  We also had a blue pad they gave us from the hospital on the floor just in case some pee did leak out on us.  Won't be long now and you'll get rid of the thing all together.  The only thing Brad missed about the catheter was not having to get up to pee in the night or after having a nice cold beer.  He's only had one beer since getting it removed!  He's almost 3 months post op and for the last week he hasn't had to get up during the night which is nice.  Good luck next week getting the cath out and getting your path report.

Chris

 


Wife 46 of husband Brad 51.
PSA Jan/09 5.7, biopsy March 12/09, results Apr. 1
Gleason 6 T1
Wanted robotic surgery so sent to London Dr. Pautler end of May
Surgery was set for Nov. 10 (long wait) 
May PSA 6.05 & Oct PSA 6.85
Surgery Tuesday out Saturday - 2 days late due to no gas would move!  Nerves were saved.
Catheter out Nov. 25 (ouch) - sent to physio to learn kegels
4 pads a day first month now down to 1 pad a day with less then
1/2 an ounce of leakage.
Path report not so good - Gleason 7 3+4 (5-10%)
T3a NxMx - Expraprostatic - present left radial unifocal B38 tumour
admixed with fat (got outside the prostate - too long a wait!)
Seminal vesicles & ampulla negative
Tumour apex left & right half
First PSA is set for Feb. 5 with appointment Feb. 24 for results
Cialas 20mg started week cath removed.  Take once a week with no side effects.  No luck yet but working on it but still having fun.  Have had orgasms.  Doctor says could take some time as the nerves are still in shock!
 
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/5/2010 1:47 PM (GMT -6)   
Good advice Chris.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 2/5/2010 2:11 PM (GMT -6)   
.
I have no prblem with the night bag as it came with a 6ft. tube. I place it in the bucket on my left side, on the floor and I can still lay in the middle of the bed on my right side without putting any tension on anything.

After reading all the responses, I realized that the hospital might have forgotten (?) an extension tube (amongst other things) so I went to Shoppers Drugmart Health Section and bought a 12" extension tube. I'll try it later but my first problem already surfaced, in order to fit it to my lower leg, I have to bend over a lot and that is hurting my incision a bit.

More later, as we learn together . . . . . . .

Jerry.
ps. I also bought a doughnut cushion while there so I can stay on the computor for longer then 10 minutes.
.
.
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
 
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
 
NOPE, that just changed to January 20th. (2 days earlier) and the venue for entertainment gets moved to the University Hospital.
 
Open surgery done on Jan. 20th.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
 
Need to get this over with ASAP so next season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie
who has been the most supportive wife possible.
.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 25, 2018 8:17 AM (GMT -6)
There are a total of 2,974,967 posts in 326,231 threads.
View Active Threads


Who's Online
This forum has 161321 registered members. Please welcome our newest member, lowo1.
409 Guest(s), 14 Registered Member(s) are currently online.  Details
Vaajurooby, McKinley, alunke82, Kent M., whatdoigotDOC!, Anjama, sebreg, nepol, jmadrid, dbwilco, RobLee, OriolCarol, 1039smooth, BOB 46