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mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 2/5/2010 8:26 AM (GMT -6)   
How long has anyone been on off and on hormone therapy
50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
psa aug 2007 0.28
37 treatments IMRT ended 10/26/07
psa Jan 29 2008 0.10
psa april 30 0.14
psa aug 21, 0.16
psa dec 17 o8 , 0.16
psa apr 09, 0.21
psa aug 09, 0.26


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 2/5/2010 11:32 AM (GMT -6)   
My dad just completed two years and our toes and fingers are crossed that he will have a long, long HT vacation.
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Navyman
Regular Member


Date Joined Nov 2009
Total Posts : 22
   Posted 2/5/2010 11:48 AM (GMT -6)   
I completed two years of Lupron/Trelstar injections in combination with Casodex in December. No hot flashes thankfully, but I did develop osteoporosis leading to a fractured vertebra and a spinal fusion. Also mild breast enlargement, weight gain and loss of muscle mass.

I was taking Fosamax with calcium and Vitamin D, but continued to see loss of bone density so received the Reclast infusion in January. Hopefully that will lead to an improvement in bone density.

PSA has been .0 for last 18 months. I'll have my first post-ADT PSA test in two weeks, keeping my fingers crossed that I'll see another .0 result.
71 years old, healthy and active, single.
Diagnosed 9/05/07 PSA 18.09
Biopsy 12 cores all positive, Gleason 4+4=8 Stage T2
Lupron Depot and Casodex 11/07
3d Conformal 1/08 36 sessions; IMRT 2/08 7 sessions
(hospitals first IMRT patient)
PSA: all followup tests undetectable
Severe osteoporosis from hormone therapy, spinal fusion 8/09
Levitra, Cialis at highest doses gave 60% erection
Edex at highest dose gave 75% erection with aching
Cialis daily 5mg + Trimix gives 75% erection with no aching
Adding VED 1/10 hoping to increase blood flow


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 2/5/2010 12:44 PM (GMT -6)   
My cousin has been on it for about 9 years and my neighbor for 12. Neither have any problems and are leading quality lives.
Jt

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/5/2010 4:53 PM (GMT -6)   
Navyman: good luck on that upcoming PSA test, hope it goes well for you
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


Navyman
Regular Member


Date Joined Nov 2009
Total Posts : 22
   Posted 2/5/2010 6:02 PM (GMT -6)   
Purgatory: Thanks!

Reading your profile I can appreciate your choice of user name. Hope things start looking up for you too.
71 years old, healthy and active, single.
Diagnosed 9/05/07 PSA 18.09
Biopsy 12 cores all positive, Gleason 4+4=8 Stage T2
Lupron Depot and Casodex 11/07
3d Conformal 1/08 36 sessions; IMRT 2/08 7 sessions
(hospitals first IMRT patient)
PSA: all followup tests undetectable
Severe osteoporosis from hormone therapy, spinal fusion 8/09
Levitra, Cialis at highest doses gave 60% erection
Edex at highest dose gave 75% erection with aching
Cialis daily 5mg + Trimix gives 75% erection with no aching
Adding VED 1/10 hoping to increase blood flow


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 2/5/2010 8:04 PM (GMT -6)   
4 years here and taking my first vacation. may it be long
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/5/2010 8:58 PM (GMT -6)   
Navyman, the name Purgatory seems to fit the bill, but honestly I have used it for years, nothing to do with my current PC journey.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time

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