a few thoughts

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t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 2/6/2010 10:35 AM (GMT -6)   
#1 God bless you guys and this board for the info and support.
#2 Painfree is a bunch of crap.
#3 Its amazing the different colors you can get from the twins, mr happy and your butt.
#4 Anastesia effects everyone very differently
#5 The unexpected is the norm.
#6 The wife is wonderful as are the friends.
Dx at 50 in 12/09 Merry Christmas its cancer....
3 of 12 positive, right side only, psa at dx 2.6 free%14
gleason 3+3=6
routine physical, no symptoms
Da Vinci scheduled Feb. 2k10


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 2/6/2010 11:07 AM (GMT -6)   

YEP-- my sentiments exactly. Especially #2.

 

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Surgery with Dr. Menon at Ford Hospital,  1/26/10. He says all looked good. Spared nerves. Awaiting pathology report, set for 2/2/10.

Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland.

Lymph Nodes: Clear

Perineural Invasion: yes. Seminal Vessical Involvement: No

Extraprostatic Extension: yes

Positive Margin: Yes-- focal-- 1 spot .5mm

Final Weight is 52.7 gms

Incontinence: just joined that club-- definite leaks-- my guess is 1 pad during the day -- at night??? First night tonight!

 

 

 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 2/6/2010 11:35 AM (GMT -6)   
There is so such thing as pain free surgery, it is only how much pain.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


woodguy5
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 2/6/2010 11:47 AM (GMT -6)   
I agree with Ed. I think it also depends what kind of tolerance you have to pain also. I truly had no pain after my surgery 1/6/10 and up to the present time!




Ron
Age 43
Gleason 3+3=6
psa 3.9
Biopsy 1 out of 14 samples
Stage T1c
Had surgery 1/6/10 Roboticly. catheter out 1/19/10 down to 1 or 2 pads per day basically dry at night. Nothing with ED yet.
Feb 11th will be first psa test post surgery

defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 2/6/2010 1:37 PM (GMT -6)   
I agree and will add that my surgery was relatively pain free - being in recovery for 6 hours on my back took its toll and made my back hurt more than the surgery - morphine was my friend for the day!

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 2/7/2010 7:29 AM (GMT -6)   
T-dog, thanks for the blessings ... can never have enough!

With all due respect, I disagree with #2...my husband is a huge baby when it comes to pain. That was his biggest fear with his surgery (mine was what the path report would tell us!). He had absolutely no pain after surgery. The morphine line, which was installed shortly before the operation, was never used and was removed about 10 hours after the surgery. Husband never even took Tylenol in the hospital.

I particularly agree with #6...
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 2/7/2010 8:31 AM (GMT -6)   
#6 The wife is wonderful
 
Would that be your wife or mine - please note that I don't have onesmhair
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 662
   Posted 2/7/2010 9:02 AM (GMT -6)   

I with you 100% on 1, 4, and 6.

Hero


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 2/7/2010 10:07 AM (GMT -6)   
I agree with all of them 100%.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/7/2010 10:10 AM (GMT -6)   
The list shows me, that you are one of us, you have been there and done that. Good list.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 2/7/2010 3:55 PM (GMT -6)   
great list and yes you are indeed one of us.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 2/7/2010 4:04 PM (GMT -6)   
I say until a guy undergoes a prostatectomy, he is missing a key plank of manhood. (Or having a key plank removed)

T-Dog, your list verifies my opinion. I think I learned so much from this experience, that at times I am actually thankful. ( I know .... weird)

I know for sure that #6 has been verified many times over !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


jerry
New Member


Date Joined Nov 2009
Total Posts : 3
   Posted 2/11/2010 5:54 PM (GMT -6)   
Need help re: VED vacuum erection devices

I have a prescription for a VED but don't know which one to purchase. It would be great if other people could let me know about their experiences both good and bad. seems like Encore, Vacurect and Osbun are popular manufactures. Any good advice?

Jerry age 62
PC diagnosis Nov. 2009
CT and bone scans clear
PSA before surgery = 16.2
Biopsy 8/12 = cancer
Gleason score = 9, no change after surgery
Radical prostatectomy Dec. 2009
6 week post surgery PSA = 0.06
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