Wear The Blue Ribbon

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Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 2/8/2010 2:34 PM (GMT -6)   

Met with my Uro/Surgeon today for a 6 month post-op visit. Happily it was strictly a hands-off affair. He is satisfied with my progress, so after 14 more RT treatments followed by one more Lupron shot on 3/1, I should be able to sit back and monitor psa’s.

 

The doc was wearing a blue prostate awareness ribbon on his lab coat. When I admired it, he removed it and handed it to me. I will proudly wear it everywhere I go, and hopefully it will generate some questions and discussion about PCa and raise awareness for testing. blush  

All the best.

Roger


 Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.

2/6/09              Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro

4/20/09            TRUS  w/needle biopsy

4/23/09            Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.

                        CT scan and Bone Scan both negative. Stage T2C.

8/27/09            DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.

9/8/09              Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion.  Stage pT3b.

9/30/09            PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Prostate Oncologist and Radiation Oncologist. Appointments set for 10/8.

10/8/09            Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.

10/21/09          First Lupron injection. 30 mg dose (4 month)

11/2/09            PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.

12/18/09          psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/09. Anticipate 64-66 grays over 32-33 treatments.

1/14/10            Start RT with 32 treatments # 2 gys per.

 

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradually getting better, with dramatic reduction in leakage around 9/20. Currently on 1 pad during the day and one at night (for security). Actually totally dry at night. After 1/16/10 down to a female regular pad. Barely felt.

 

 

 


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 2/8/2010 2:58 PM (GMT -6)   
sounds good for you Roger - glad you he shared his pin with you - I had the pleasure of sharing my awareness pins with those who have helped me

- in a previous post, I mentioned a twice-cancer survivor who makes & sells awareness pins - http://www.pinkwings.com
- and I got a great "art deco" style blue awareness ribbon ( actually 20) to give away - I will be ordering new ones soon
- she also has a retro-style blue ribbon as well as a blue motorcycle pin - We have a RIDE FOR DAD campaign up here in June ( Father's Day month) -

-that is also why I posted the notice regarding a politician in Canada who is being treated for Prostate Cancer - the more exposure - the more men that can be helped.
hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/8/2010 3:19 PM (GMT -6)   
More people need to understand the blue, that is for sure. Seems like the "pink' is so known and spread, never needs explaning. My daughter still proudly wears here blue ribbon decals on her Vespa whereever she drives.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 2/8/2010 6:37 PM (GMT -6)   
Half way through and then you can just wait for the zero's to come in. That's was nice of the doctor to give you his pin. Maybe he'll give me one next week.
I sent you a email talk to you soon.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 2/8/2010 7:27 PM (GMT -6)   
Let's get these pins out to the HW guys. We all need to keep spreading the word.

Maybe Peter could get a batch and sell them for $5, and use the money for the HW site.

What say the moderators ?
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 2/8/2010 8:27 PM (GMT -6)   
pinkwings site does prices for fundraising - you can get that information from their site -
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 2/9/2010 2:13 PM (GMT -6)   
the moderators can't say, Peter would have to be asked if he was willing, but I suspect he might be too busy. The way he sells the books now is trhu Amazon, so he doesn't have to do any of the grunt work. In any case, if he didn't sell them, we'd have to remember that the sale of them by individual,s even for 'good causes' is still against the rules here. Wouldn't want anyone to stumble into trouble while selling anything here. It's just the way it is, I'm afraid.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

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