New Member in the Zero Club

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skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 2/11/2010 10:44 PM (GMT -6)   
Haven't posted much for the last few weeks but I continue to read and to be bolstered by the people on this forum.
 
Saw the urologist today for my 3 month followup.  The new PSA reading is zero.   
 
What a journey this has been.  The awful diagnosis, the surgery which went well, the waiting for the three months to pass.
 
I shall worry at the next PSA test and the next and the next.  But for today, I am just listening to the choirs in my mind singing zero, zero, zero.  Praise the Lord.
 
It's a little late for drinks tonight so I told the bartender that tomorrow evening all drinks are on me!
 
Skeener

Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 2/11/2010 11:09 PM (GMT -6)   
A pint for me please Skeener, cheers and Congrats Mate, welcome to the zero club.....Kev
Age 51yrs
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4 Gleason Score 3+4=7 Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week. ED- okay with Meds.
PSA at 12mths no change remains 0.03
"Everyday in Everyway I get better"


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 2/11/2010 11:40 PM (GMT -6)   

Thanks Kev.  I love your motto!!

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 2/12/2010 4:31 AM (GMT -6)   
Welcome to the club.
 
We love getting another newbie to buy all the beer tonight.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/12/2010 6:00 AM (GMT -6)   
Yeah, welcome to the zero club, wishing you a lifetime of them...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 2/12/2010 8:01 AM (GMT -6)   
Welcome aboard the zero club. Those PSA tests can wind you up in a knot but once you get the zero it unwinds you. Congratulations on your first zero and hope that you will have them for ever.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/12/2010 8:52 AM (GMT -6)   
skeener,

congrats on entry into the zero club, that is always one of the great things to read here. hope its just the string of many many more for you to come in the months and years ahead
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 2/12/2010 8:54 AM (GMT -6)   
Congratualtions and may all your future tests be 0s
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night
 
ED - yes but seeing some improvements - levitra 10 mg 2x week
 
 


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 2/12/2010 8:59 AM (GMT -6)   
skeener,
I like to think of that 0 as a three-month pass. No worries about the next one until it is time.
Looks like we were under the knife on the same day. My next check is 15 March.
Great to be a zero these days.

Ricky2
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 2/12/2010 9:26 AM (GMT -6)   
Skeener...Congrats! I get my first post op PSA results on Monday. Hopefully I will be joining you.

ricky
Age 70

PSA 5/2008- 3.6, PSA 7/2009- 6.1, retested 9/2009-5.1.
Biopsy 9/2009. 4 of 12 positive. Gleason 3+4=7
CT and bone scan negative.
Robotic De Vince Surgery 10/29/2009. 1 night in hospital. No pain. Cath out on 11/6
Pathology Report: Gleason score 3+4. Margins slightly involved <.1mm to .25mm. Perineural invasion present, stage pT2c. Tumor 18%. Seminal Vesicle - absent, Lymph Nodes 0 of 6.
Continence- first 4 weeks after cath out Dry at night, rest of time, bladder held nothing. 6-7 pads per day. as of 12/30 no pads most of time. almost dry except for a few drips. I keep doing Kegels.
ED. Started VED on 12/17. 15 min every other day. 20mm cilias twice a week. No sign of life yet.


hopenchange
New Member


Date Joined Dec 2009
Total Posts : 19
   Posted 2/12/2010 9:40 AM (GMT -6)   
Skeener,
 
Welcome to the club.  I'll tip one up for you!

Scotty
  

Age 66

Routine physical at PCP office, with DRE and PSA Test. PSA 2.5, small growth felt on right side 

Urologist performed TRUS biopsy 9/17/09,samples sent to Bostwick Labs

Results received from lab indicated PCa 9/24/09

8 of 12 samples 80% Gleason 3+3+6, 6 of these on the right side

1 of 12 samples 70% Gleason 3+3=6

1 of 12 samples 60% Gleason 3+3=6

2 of 12 samples benign

CT scan and bone scan negative

Consultation at Johns Hopkins with Dr. Alan Partin 10/20/09

Open RRP at Johns Hopkins by Dr. Partin 11/06/09, right nerve bundle removed, left spared

One night in hospital, back to hotel room for three days before flying home

Foley catheter removed 11/16/09

Post-surgery pathology shows PCa was organ-contained, lymph nodes negative, seminal vesicles negative, Gleason score 3+3=6, stage T1b

First post-surgery PSA first week of February 2010. Using one pad during day and one at night as of 1/28/10

No luck with the erectile dysfunction.  Taking 50mg Viagara 3 times a week.  Doctor prescribed 100mg daily beginning 6 weeks after catheter removal, but I can't put up with the headaches and congestion. 

2/5/10 First post-surgery PSA - <0.01

 

 

 

           


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 2/12/2010 9:43 AM (GMT -6)   
Let's hear it for Skeener,

Hip, Hip Hooray !!

Welcome to the zero club. Hope to join you soon.

Jerry.
.
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to therapy effects.
 
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
 
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
 
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
 
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Now waiting for an appointment with a radialigist
==================================
 
Need to get this over with ASAP so this season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie
who has been the most supportive wife possible.
.


reachout
Veteran Member


Date Joined May 2009
Total Posts : 725
   Posted 2/12/2010 4:33 PM (GMT -6)   
Congratulations! I've only had two zeros so far, but the first one was the biggie. For the second one I had to keep reminding myself that I had to go in.
Age 64 yrs
DX 5/2009
8 out of 12 cores positive
PSA 5.6
Gleason Score 3+4=7
Stage T2a
Da Vinci Surgery 08/07/2009
Upgrade Gleanson Score 4+3=7
Stage pT2c
Neg Margins and Nodes
Extracapsular extension noted but neg Extraprostatic Extention (??)
Dry immediately
Daily Cialis 5mg slow recovery
First PSA 11/3/09 <0.1
Second PSA 2/9/10 0.01


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 2/12/2010 4:43 PM (GMT -6)   
Now where's that bar ?

I can take mastercard if need be .

Congrats !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 2/12/2010 10:28 PM (GMT -6)   
tongue It make us very happy when our brothers get into the zero club.
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 2/13/2010 7:10 AM (GMT -6)   
Glad to have a new member in the club. The new kid has to buy drinks for all. Where should we all meet you? Thanks for sharing and I pray you have a lifetime of zeros

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 2/13/2010 8:51 AM (GMT -6)   

Thanks to everyone who celebrated with me after I received a 0 on my first PSA after surgery.  You are a great bunch of guys.

To Ricky2 - We are hoping that you will be joining the club after your visit to your dr on Monday.  We know this will be a long weekend for you waiting for the results of your first postop PSA.

Hang in there!!  Let us know the outcome.

Skeener



Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      

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