i'm new and it's been a hellish week...

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F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3987
   Posted 2/12/2010 6:27 PM (GMT -6)   
i have decided to end my lurker status and get involved here. i'm scared as hell and i am very emotional. i was diagnosed with PC on tuesday but we knew there was a problem in mid december when a "routine" physical showed a PSA of 6.8. the more specific test a month later put my PSA at 6.1.

i have been living in dread for two months but i have a great support system of friends and family. a friend of mine also had a biopsy yesterday and we talk almost every day.

my wife is a biologist and she understands the terminology and procedures and my fear. she held my hand and told be to breathe while they biopsied my prostate. the experience was no where near as bad as the torture my mind put me through for weeks.

i'll be 55 next month and i have no symptoms. my prostate is not enlarged nor are there any tumors but 12 of 12 needles show cancer. cancer is T1 and my gleason is 3+4. i'm active and i've never felt better in my life.

i had my bone scan yesterday and it was clean except for a small spot near the end of one of my lower ribs that i'm told probably does not mean anything. i had the CT scan today and next friday we are going in for the consult with my doctor, robert panvini of urology associates of silicon valley. i pray there are no complications. we really need some good news.

i'm a 12-step member and i'll have 20 years in a couple of months. i'm working had to stay connected and to try and think "happy thoughts" but a lifetime of glass half empty is working against me cool.

thank you for hearing me out. i will keep you posted.

ed r.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 2/12/2010 6:33 PM (GMT -6)   
Welcome to HW, ED r. Sorry you have to be here. I am sure you know that this place is the place to come for support, info, sharing and just getting stuff of the chest, so feel free to do any and alll of that, or more. T1c and 12 of 12 sounds sorta contradictory, but that's good news, if accurate. Make sure you come back as needed and keep us updated and share what you will with us.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

Post Edited (James C.) : 2/12/2010 4:38:03 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/12/2010 7:07 PM (GMT -6)   
Hello and welcome, ED. We understand the fear associated with prostate cancer, each of us has had to deal with it in their own way. The best cure to overcome the fear is by gaining knowledge of this cancer, knowledge of treatment choices, and knowledge of living with cancer.

You were one year younger than me at dx, and we are both Gleason 7's, my last biopsy was 7/7 positive.

There are many like you, no symptons, no previous prosate problems, no lumps, etc. And with most of us, we were feeling fine prior to our cancer dx.

The meeting you have ahead with the urologist is a good step. I would reccomend that you also arrange to meet with a good radiation oncologist in your area, to give a different perspective to your situation.

Take your time, learn all you can, and study all available treatment choices that make sense to you in your case. We are here to help and to support you as needed. Please feel free to ask all the questions you wish.

Please keep us posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 2/12/2010 7:23 PM (GMT -6)   
Ed,
It is normal to be scared, but the more you learn the less afraid of this disease you will be.
Look at some facts: Today in the US the 5 years survival rate is 100%, so in the absolute worst of cases you're not going anywhere for a while.
You have an intermediate risk PC; surgery, seeds or external radiation all work equally as well, giving cure rates in the 70-80%. Even if your treatment doesn't result in a cure you can control it for years. There are some important new developments and 10 years from now there will be a whole new set of treatments.
Calm down and look at all your options, you have plenty of time. I was a G4+3 and took 8 months from DX to treatment. Your psa is not that high and you have an excellent chance at a cure. You will certaintly die at some point, but it won't be from prostate cancer.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 2/12/2010 7:29 PM (GMT -6)   
Ed,
Twenty years of one day at a time wont always help us when we hear the "C" word. But your support system is great and your wife sounds like a gem. Work on that glass half empty attitiude as it helps to cope with all of this. Hope you stay connected with us as well as you have years of success to share with others. Be blessed.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 2/12/2010 7:35 PM (GMT -6)   
We all know how you feel. It's like everything goes quiet in the room, and the whole world begins to spin.

John T 's advice is right on. You may have noticed the first couple of posts on this forum that are always there. One of them has listing of all of the resources avaialble both on the web, and in libraries/bookstores.

Your first order of business will be to learn all you can about treatment options, what is best suited to you, and then go for it. We encourage second and third opinions. Don't feel as tho you are obligated to go wth your current doctor. Make sure you find the most experienced surgeon, radiologist, or whatever treatment you choose you can find.

Good luck, and stay with us during your journey.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 2/12/2010 7:54 PM (GMT -6)   
F8 Welcome and good luck with treatment. Bring a recorder with you to the Dr visit. Too much info at one time for a new guy to understand. We are all here to help you walk the path of recovery. Best wishes.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 2/12/2010 11:56 PM (GMT -6)   
Hey Ed

I live in Alamo, up by Concord I was Sprinkler fitter for 28 years, lived in Sunnyvale for 10 years. I'm 58yr. Dia. Feb. 1st 6.93 psa. 3+4=7 /8 of 12 positive, waiting for my CT. and bone to come back.

Just like you, I feel find, except for walking around with this extra 100 lbs. on my shoulders. I spend most of my nites, on the laptop, on this forum or other links ,trying to figure out whats better, open or Da vinci surgery, who's the best Dr. in the area, best Hospital and trying not to let it dominate my conversation during the day.

One thing I have learned, is that if your going to get the big C, this the one to get. Anyway, hang in there brother you have alot of friends out here.

Tim

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 2/13/2010 12:57 AM (GMT -6)   
Hi Ed,
 
This is a fantastic site for help, and fortunately there are others too, I have sent the link below which you may not of found yet.  Please have a look and hit the "Panic Button", it helped me alot when I was first diagnosed..................................Kev
 
 
http://www.yananow.net/
Age 51yrs
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4 Gleason Score 3+4=7 Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week. ED- okay with Meds.
PSA at 12mths no change remains 0.03
"Everyday in Everyway I get better"


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 2/13/2010 1:14 AM (GMT -6)   

Hi F8

Hope you found the posts here helpful.

Glad that the biopsy went well and that you didn't suffer much pain.

I had open RRP and found the pain less than that I experienced after two hernia operations some years ago.

The psychological pain has trumped any physical pain for me.  When you are healthy and there is no history of PCa in your family, the diagnosis comes as a total shock and rocks your world pretty well initially.

I decided early on that with my stats and my oncologist`s recommendation that I would go with open surgery and I did not look back.

That did not mean that I stopped worrying.  Waiting for the pathology report is stressful.  This week I had my three month PSA checkup.  That pretty well drained me waiting.

I always find it comforting to read what's happening on this site.  These guys are so good at supporting.

Hang in there and take this journey a step at a time.  Please keep us informed of your journey.

Skeener 


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 2/13/2010 4:54 AM (GMT -6)   
F8,
Kev has posted a very good link there. It is another an excellent site for the newly diagnosed. This is another section of that same site and contains a breakdown of the members by PSA and/or Gleason. It is very helpful to read of others who have the exact same stats as yourself, read their stories and see that they are indeed doing fine.

www.yananow.net/Chart-Gleason7.htm#7

You won't come across a better and more helpful group than the members here at Healingwell. The first thing that happens to all new members is.........the more they learn about this disease the more fear and anguish disappears.

Lesson 1 ........... do not decide on any treatment till you are happy that is the treatment for you. Get multiple opinions on the various treatments for knowledge is indeed power when it comes to PCa.

You could just about bet the farm that given your PSA that rib spot is a touch of the old "rheumatiz".
This journey is also one step at a time brother.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm

Post Edited (BillyMac) : 2/13/2010 3:01:42 AM (GMT-7)


F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3987
   Posted 2/13/2010 11:36 AM (GMT -6)   
thanx guys for the warm welcome, support and reassurance. every one of you have said something that has helped me. i will find my footing and defeat this beast. i have a picture of lance armstrong with game face on embazoned with HOPE RIDES AGAIN that i'm going to have mounted today and hung over my desk. i need to toughen up and get angry .....

thank you all again!

ed r.

defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 2/13/2010 12:22 PM (GMT -6)   
Ed,

Welcome aboard! This forum is a great place to learn from others and see that this is a slow progressing disease so we have time ot make decisions that are right for us as individuals. Take your time and do your research since knowledge is key as is being your own best advocate.

Cheers,

John

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 2/13/2010 1:45 PM (GMT -6)   
Hi F8,

Welcome to Healing Well. I, too, was in perfect health before being DX'ed.

Your lens might be at F8 now, but in a couple of weeks you'll be at F1.4 and it will be much easier to see and think clearly. After a week of study and the meeting with your Uro next week you will be 32x brighter.

Don't panic. Keep focused.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots, See Uro 1/22/10 Trimix unsuccessful.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 2/13/2010 5:54 PM (GMT -6)   
Ed R,

You're sounding better today, and it sounds like you have great spousal support. (They didn't let my wife in the room during the biopsy, but they should have.)

I was your age when I was diagnosed a little over a year ago. Like you, I had been feeling just fine, but got hit which this unexpected kick in the head. After a few weeks of fretting, studying, reading this forum, etc., I calmed down and decided I could still keep training for the 5k run that had been my goal. I ran in the race and 2 days later went in for surgery. To make a long story short, one year later I ran in the same race and beat my previous time. You can get through this, and the great people here will help you.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009 still undetectable!


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 2/13/2010 6:52 PM (GMT -6)   
F8 the not knowing is hard . what the other guys said is true. the stage and gleason score the amount of tumor and magins are important so just wait there are plenty of guys on this site who can help you and they are fullof knowledge. good luck! bucky ga.

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 2/13/2010 7:22 PM (GMT -6)   
Welcome sorry you found us. Listen to what others have said, i found this place right after my biopsy and have not left since. Easy for us to say don't worry but, don't worry. I'm also 13 yrs clean. Keep in touch.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010
Awaiting cath removal 2/16


Redman55
Regular Member


Date Joined Jan 2010
Total Posts : 87
   Posted 2/13/2010 8:06 PM (GMT -6)   
Ed,

I am 3 months out of surgery. You couldn't have found a better place than this forum. I am 54 and gleasoned 8. In a vacuum your mind will draw it's own conclusions. Places like this forum will give you 1000's of answers from a lot of guys who have been down your road. Rely on it.

Per options, I had 2 core hits and tumor left side. I opted for surgery rather than radiation for the primary reason that I wanted it out and surgery would not be an option if I went to radiation first as the prostate is then badly damaged and surgery gets far more complicated. Second, I would know from the post surgery pathology exactly where I stood. Per open and DaVinci, and all of this is with an appreciation that each guy has to make his own decision, I chose DaVinci as it was less invasive and extremely precise. Recovery is also substantially faster due to the minimal invasion.

Good luck and understand that 1 in 6 of us guys get this puppy. Keep all you questions coming as you progress.
Age 54
PSA 8/2009 5.6 Gleason 8
DaVinci surgery 11/2009
Pathology - totally contained in margins -one bundle spared
PSA now undetectable at < .05
Continance: Night and morning fine and improving
Doing 3 P's and now using trimix


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 2/14/2010 2:04 AM (GMT -6)   
Ed, first up when you are diagnosed, you go into a tailspin, eventually after consultation, you will decide on the best treatment path for you, I personally thought it was "time to get my things in order" it was a panicky time for me, then when I had time to sit back and think, I decided that I wanted this thing removed from my body! so went ahead with my Urologist's advice, I went through a bit as you can see on my signature, but then reached the happy place where I realized that this thing was not going to kill me in the near future, or maybe not at all (as BillyMac says) this is true.

You have a road to travel with this disease, find out as much as you can, use the help of the good people on this forum, preoperative and postoperative, they are a good backstop and a goldmine of information.

Wishing you all the best.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 09 0.6 (I am now 69)
PSA 18th Jan 10 0.6

Post Edited (maldugs) : 2/14/2010 12:08:22 AM (GMT-7)


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 2/14/2010 10:08 PM (GMT -6)   
Hi Ed,

Welcome to the greatest PCa forum on the planet.

I'm sorry you had to join, but you have a great fighting attitude and you will enjoy the good folks here as you learn and proceed through your treatment.

Being T1c is a good sign and your wife's advice to breath during the biopsy is good advice now... take a lot of deep breaths!

Take in all the information you can, but don't get into too deep of a funk. Come up for air!

You'll have a lot of good friends here. The moderators are great as well.

Wishing you all the very best!

Barry (a.k.a Idaho)
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3987
   Posted 2/15/2010 12:44 AM (GMT -6)   
you guys are awesome cool !

the most important thing for me to know TODAY is that my response to this terrible disease is normal. i'm doing the best i can and i think there is a bit of improvement but i am terrified of my consultation friday because i fear more bad news.

i know it's a stupid, irrational fear but that's just where my head goes. you see i also have the disease of addiction and it's been doing push-up and crunches the last couple of decades just waiting for the right moment to come at me with all its fury.

my wife held me last night and told me that if she could she would do this disease for me and i know she really means it. she looked me in the eye tonight and AGAIN told me: "i will never let them torture you and i will never let you suffer."

you know what Lance Armstrong said: "If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell."

thanx again guys for being there for me. i'm sure you know what it means to me.

ed r.

MaxBuck
Regular Member


Date Joined Jan 2010
Total Posts : 75
   Posted 2/15/2010 9:09 AM (GMT -6)   
F8: I also had that little spot at the end of my lowest rib, and that caused me a lot of anxiety. Fortunately I discovered (from a second x-ray) that I had a broken rib that left a dense spot on the x-ray; found out many people have undiscovered rib fractures that leave excess bone density behind. Probably that has happened to you in the past.

Best wishes as you embark on this journey - not one any of us would have chosen willingly, but one that reveals a great deal to us about ourselves. Not everything about this is bad, believe me; you'll find out how much you're loved and cared for.
Dx at age 56: Oct 09; PSA 5.8, followed up by 9.9 two weeks later (reproducibility of test - ?)
Biopsy ind cancer in 8/12 cores: Gleason 8 (4+4)
open radical retropubic prostatectomy Dec 4 09
Post-op pathology: 56 g weight, cancer in 21%, Gleason 7 (4+3, tert 5); margins clear, no lymph node involvement (0/9), perineural invasion present, T2c N0Mx (but showed clear from distant metastasis in pre-op bone scan and CT scan)
Continence data: essentially no incontinence 9 weeks post-op
ED pretty complete: some erection possible but current non-functional


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 2/15/2010 12:57 PM (GMT -6)   
F8 - my bone scan showed spots on both legs, but after the Dr. compared them to the scars, and some files I had from ER visits, they realized they were buildup because of breaks in my younger years. The good news is that every spot gets looked at. It means they are looking, which we pay them to do.

Tony Crispino
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Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2010 5:17 PM (GMT -6)   
Posted by F8,
"thanx guys. that really helps. i hurt my ribs about 12 yesr ago in a mountain bike crash. i remember it hurt bad enough that i had to take tylenol every four hours or so for about a week. and of course i never went to the doctor

ed rader"
Prostate Cancer Forum Co-Moderator

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