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Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 2/13/2010 9:23 AM (GMT -6)   
Well the good news first.  I got the results for my 6 month post salvage IMRT test. 0.00 whooppee!!!!!!  Finally a zero after all these months.  Now the not so good news.  I think I have developed radiation proctitus from the treatment.  I found out it is quite common afterwards. Can  anyone out there with a similar experience shed some light on the subject.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 2/13/2010 9:30 AM (GMT -6)   
Bootheel

Congraulations on your results for your 6 month post salvage IMRT. Ain`t 0.0 grand!! Just got a 0 this week too!! Long live 0`s and long live you!!

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 2/13/2010 9:37 AM (GMT -6)   
Congrats on the Zero! I can't help with the proctitus, but I'm sure the folks on the forum will jump in.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/13/2010 10:00 AM (GMT -6)   
boot, going to check on the bad news part, but congrats on the zero, that part is always good news for any of our men.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 2/13/2010 10:25 AM (GMT -6)   
 
 
Great news on the zero.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 2/13/2010 10:32 AM (GMT -6)   
The good news trumps the bad news Bootheel. Hope the other clears up for you quickly, but I am happy for the zero for you.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 286
   Posted 2/13/2010 3:05 PM (GMT -6)   
Boot,

While I have not had severe GI problems yet, my rad oncologist has me taking fish oil (1000 mg 3X daily) and D3 (4000 IU) to help in preventing and healing. Additionally the rad oncology nutritionist suggested last week that I take glutamine which she said from her direct involvement with rad patients has helped them. She directed me to this link (not an advertiser or supplement seller, just a web site to aid cancer survivors) for information http://www.caring4cancer.com/go/cancer/nutrition/dietary-supplements/glutamine.htm . I have not started taking this so do not have any personal experience to relay.

I wish you a quick recovery and if you find something that helps, please let us know since this may be in our future too.

Take care,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 2/13/2010 4:04 PM (GMT -6)   
As many men on this site have mentioned in their recovery, time is a great healer as well. Most of the inflamation caused by the radiation will subside with time. Some damage may be permanent however, and will need medical inervention to cope with it.

Good luck, and congrats on beating those little buggers back.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/13/2010 4:06 PM (GMT -6)   
Congrats, that's good news to hear. Keep on keepin on, guy
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 2/13/2010 4:07 PM (GMT -6)   
Thanks for the advice Jakester.
I wasn't told much when I went through the treatments. I will research the website.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00

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