I totally agree with you. When I first started to research PC about
a 14 months ago I was surprised at what the data on AS was showing, and also surprised that very few docotors and patients supported it. This was a complete disconnect. An option that was safe from side affects, had very good chances of never being treated, and if treated had the exact same cure rate as immediate treatment. If you are on the short end of the odds the worst was that you bought a couple of years free from side affects, and if you were on the long side you never needed treatment. Few options in life present such clear wins.
In just the last year the word seems to be getting out with Drs like Scardino, and Walsh saying that maybe we are treating too many men that don't have to be treated.
You just have to read this forum and realize that 50% of the posts relate to dealing with side affects. If they weren't important then why are they so prevelent and need discussion. If any of the treatments didn't have side affects that ruin men's quality of life it would be a completely different issue, but it many cases the side affects are much worse than anything the disease could have caused.
A patient's chances of dieing of a low risk PC is virtually zero. We have to continue educating patients, and especially doctors that low risk PC should be watched, and treated only when it becomes apparent that it is progressing. This is a safe and reasonable option, and fear and lack of education are causing many PC brothers to suffer needlessly.
64 years old.
PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.
2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.
Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.
Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.
25 treatments of IMRT 6 weeks after seed implants. No side affects at all.
PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.