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gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 2/15/2010 9:03 AM (GMT -6)   
Hi to all,I am reading today posting and I feel sad because there is always new members joining the club;this guys are entering a very
dark valley and do not know if there is light after few years.there are many guy that are walking inside the valley for many years and
they know that there is light but some how they forgat that one day them were also entering the valley.I just wish that from time to time the brothers taht are many years inside send us a note about how bright is downthere.I personally know four guys that are walking in this valley for the last fifteen years.It is just  WISH.I am five years inside and there is a party down heretongue
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 2/15/2010 9:42 AM (GMT -6)   

Hello gold horse.  I gotta be honest and say that I'm not sure that I fully followed along your posting, but I think that you were expressing both dismay and encouragement for the steady stream of newbies passing through the doorway of PC...

gold horse said...
Hi to all,I am reading today posting and I feel sad because there is always new members joining the club;this guys are entering a very dark valley and do not know if there is light after few years.
 
There IS light.  This is a fact that most newbies don't realize.  The vast majority of cases diagnosed are low risk cases.  Low risk cases have many options.  Treatments are steadily improving.  If the newbies only read the signatures of the posters at this site, they might get overly scared about the likelihood of post-treatment problems.  While the problems do occur and can be valuable to have some insight on the odds (and how men are dealing with them), the odds are that most low risk patients today won't have significant enduring issues.  There IS light.
 
gold horse said...
there are many guy that are walking inside the valley for many years and they know that there is light but some how they forgat that one day them were also entering the valley.I just wish that from time to time the brothers taht are many years inside send us a note about how bright is downthere.I personally know four guys that are walking in this valley for the last fifteen years.It is just  WISH.
 
I think that I might be one of those guys you speak of.  In less than a year after surgery, side effects virtually disappeared and undetectible PSA results.  The newbies need to know that this is the more typical outcome, but not nearly as many with these outcomes are regular posters on this site.  I would think it would pretty scary to a newbie to think that the "typical" signature of a poster on this site also represented the typical overall outcomes...there is consensus (as discussed in other threads on this site) that this is not the case.
 
gold horse said...
I am five years inside and there is a party down heretongue
 
Party on!
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/15/2010 9:55 AM (GMT -6)   
I didn't get or understand the post at all. Perhaps you would be kind enough to re-state what you are thinking or feeling.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/15/2010 10:16 AM (GMT -6)   
MY read: Sad we have a steady stream of guys coming here, rather than seeing things slow down. Sad that as they improve most guys leave and don't report back. Says there aren't anywhere enough of the guys who are 5, 10, 15 years down the road still around to encourage and tell us newer ones there's light and sun down the road, it ain't all death and gloom. Wishes more guys who have succesfully recovered for long term periods would come back and encourage others, also wants us to know there's life, light, and longevity ahead for the vast majority of us now on our Journey. From where he stands, it's party time, not gloom time. Summed up: for the majority it gets better and life goes on.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2010 10:32 AM (GMT -6)   
Got it loud and clear.

Thanks for the reminder Gold Horse. We do need to remember our feelings when we started out. These are the way our new friends are feeling and simple words are not always consolation. I am only three years in, but even now I see light at the end of the tunnel and hope it is not a freight train. But the light of which you speak is hope. I remember coming here and not seeing how much hope would lie ahead.

To all our new brothers, get educated and you will see that light is bright...

To those who have been on this journey many years, share that light with others.

Most will do very well with prostate cancer. But for those who have bigger challenges, hope is ever present, so keep on keepin' on...

For me, I will fear no valley nor it's shadows...

Peace to all

Tony
Prostate Cancer Forum Co-Moderator

Post Edited (TC-LasVegas) : 2/15/2010 9:38:16 AM (GMT-7)


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 2/15/2010 5:36 PM (GMT -6)   
I can't give you a 5 year Zero report yet, but I can give you a 4 year 3 month Zero report, and come November 18, 2010 I will give you my 5 year report which I feel very confident will bring another Zero to my journey.
I feel very fortunate that pc appears to be in the past for me.  Though ED seems to be perminant, my friend Trimix and I plan on sticking (pun intended) together for the forseeable future.
 
Best wishes to all of you,
 
Allan
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.
PSA remains undetectable.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/15/2010 5:40 PM (GMT -6)   
allan, good to hear from you again, thanks for the update- don't be a stranger... smilewinkgrin
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 2/15/2010 7:04 PM (GMT -6)   
Gold Horse, great post. It is good to hear from those that are several years down the road. I remember too well the fear I felt 18 months ago. Your post does give encouragement that things can get back to normal. I have similar thoughts and sadness about the stream of new guys that joint this group each day or week. I'm glad that they found this great site for support but sad that they are here due to a diagnosis of PC.
Age 51 @ DX
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED for about 10 months. Levitra worked well for me. No ED at one year.
PSA 0.00 at 18 month post op

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