Just checking in here at HW

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FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 2/15/2010 1:44 PM (GMT -6)   
It's been quite some time since I checked in here at healingwell.com
Things for me are stable, yes my PSA is high but my alk phos is normal and I had an updated CTC test earlier this month and it again came back ZERO.
Dx'd 2/11/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th

Current (2-1-10)
PSA: 103
Treatment: Lupron, Zometa, HDK+HC
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com
Facebook Profile:
www.facebook.com/david.e.emerson


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 2/15/2010 1:45 PM (GMT -6)   
David, as usual, it's a pleasure to see ya and read your updates. Stable is great, hope you have many more reports that good.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2010 1:48 PM (GMT -6)   
Great news, David,
I never miss your blog posts and I am inspired by your courage.

You songs on the DSM show still have me laughing...

Tony
Prostate Cancer Forum Co-Moderator


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/15/2010 1:53 PM (GMT -6)   
David,

Always good to hear from you, and to hear an encouraging word.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 3/3/2010 9:52 PM (GMT -6)   
Well folks, as you can see from my signature my PSA is on the rise!
After getting a high but stable result from HDK/HC for about 6 months, my PSA rose
50% in the last month.

So now it's time for a change.
Friday I'll have a updated bone scan, PSA, CTC and a few other tests.
Monday we'll meet with the Oncologist to decide:
DES?
Estradiol patches?
A clinical trial, such as: http://clinicaltrials.gov/ct2/show/NCT01017939?term=prostate+and+abiraterone&recr=open&rank=4

For those us with advanced and HRPCa this journey is a struggle and a constant starin on out lives. However, in the end we go on and we fight the next round, and the next and the next...
Dx'd 2/11/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th

Current (3-1-10)
PSA: 159
Treatment: Lupron, Zometa, HDK+HC
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com
Facebook Profile:
www.facebook.com/david.e.emerson


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 3/3/2010 11:00 PM (GMT -6)   
Hi, David. So sorry to hear of the latest test results. Stay strong, my friend. It seems that you've had more than your share of the down moments. Here's to hoping that the better things are in your future. Get ready for disc golf. It will warm up around here someday. All my best to M. and your son. Loved the song list on Miller's show.

All the best to you,
Bob in Belton
 AGE:58
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 3/3/2010 11:36 PM (GMT -6)   

David - your blog is a true inspiration.  You have had such a difficult journey but have travelled it with great determination to live life your way despite your difficult PCa.

Keep up the good fight!!

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/4/2010 12:07 AM (GMT -6)   
Hi David,

Good to "see" you and take this opportunity to review your blog again.

I hope some you get some good news from the tests and re-test in the coming week.

Kind regards,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 669
   Posted 3/4/2010 12:34 AM (GMT -6)   
David - thanks for sharing your blog with us. It is truly inspirational. I'm praying that the new treatment course will stabilize you.
Best Regards, Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09, 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
Mar 1, PSA 0.17


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 3/8/2010 10:36 PM (GMT -6)   
IN this weeks update, the news gets worse.
My PSA is up to 194
Next week I start DES or we find a location for the Provenge Phase II Trial

more at my blog, link below
Dx'd 2/11/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th

Current (3-1-10)
PSA: 159
Treatment: Lupron, Zometa, HDK+HC
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com
Facebook Profile:
www.facebook.com/david.e.emerson


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/8/2010 11:46 PM (GMT -6)   
Hi David,
Our friend here at HealingWell ~ Gordy (Les) is about to begin a clinical trial using Sunitinib. I'll forward you a list of trials with it. Unfortunately, I know you are trying to avoid round 2 with Taxotere, but I think the pertinent trials you might find interest in are with Taxotere.

I am only mentioning it as a fallback to DES and hopefully giving you a heads up about it. I know you were on HDK with Nilandron, but those are not long term approaches, and it's just time to move to something else. Provenge is also within range as well. But I hope the DES slows the PSA down for a while and buys you time to look at the new trials.

Keep the faith brother, we love you and we will definitely appeal to a higher source!

Tony
Prostate Cancer Forum Co-Moderator


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 3/9/2010 12:19 AM (GMT -6)   
David-
I echo the sentiments of others on here. Thanks for keeping us posted and inspired. We have your back in this fight. I wish you didn't have to be the treatment trailblazer, but thank you for your fight and finding a way when a way doesn't seem to be there. Praying for low PSA's and effective treatment for you.
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/10/2010 12:36 AM (GMT -6)   
David,

I've shared your current status with my family as I have shared your courage with them since I've been involved in HW.

I hope our prayers and your courage help in finding the right solutions for you.

Kind regards,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 3/13/2010 12:37 PM (GMT -6)   
always a pleasure to hear from you David. You are an inspiration to so many. May God bless you with 40 more years of great life.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

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