Quiet Observer

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Young Shade
New Member

Date Joined Feb 2010
Total Posts : 1
   Posted 2/15/2010 3:47 PM (GMT -6)   
Hello every buddy,

I am not a current Prostate Cancer survivor or patient (though seeing as the previous two generations of the family are riff with it, I'll be joining the ranks sooner or later) but I do happen to be the eldest son of a current patient. My father was diagnosed almost seven years ago after some pretty extreme circumstances. It had spread to the hip, femur, and a couple of vertebrae. He is in his second bout of Chemo and this time its indefinite.

With the basic background out of the way, I will get on with my question. I am currently working on a term-project for a capstone class in my degree; for this project I would like to quietly observe and study this community. As odd as it sounds, this being a public forum and all, I would like to ask permission to do so. I know a lot of information and conversations are sensitive and sometimes very personal or private; therefore, I will not intrude or disrupt this community and I have no intentions on publishing anything, so anonymity will be preserved.

The Quiet Observer and curious son,

Steve n Dallas
Veteran Member

Date Joined Mar 2008
Total Posts : 4818
   Posted 2/15/2010 3:55 PM (GMT -6)   
Welcome to the site. I'm sure no one will have any issues with you hanging out...Feel free to ask questions as needed.

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2010 4:12 PM (GMT -6)   
Hi shade,
Welcome to HealingWell. First I am sorry about your family history with prostate cancer. You already know that places you at high risk for the disease. But learning now is not a bad thing by any stretch of the imagination.

I don't think most members would mind you using the site as a study subject, but it is very important to note that you should not do so by name. HealingWell uses screen names to protect the privacy of it's members. Some are not so concerned about that than others. But that does not mean you can't use the site to gather information and write. As the old Dragnet television program used to say "Names were changed to protect the innocent" is perfectly fine. I hope you would use common sense about using specific screen names and such. But I can see where the site could allow for study material.

Perhaps you should contact our site administration at admin@healingwell.com. I am willing to go along with anything he suggests.

In the mean time, stay well. Give your father our best.

Peace to you

Prostate Cancer Forum Co-Moderator

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4462
   Posted 2/15/2010 6:00 PM (GMT -6)   
Well, it's sorta like having to prove a negative, there's not much anyone can do if all you do is read and take notes. I would hope , as Tony asks, that you keep your data gathering anon. in nature. Other than that, there's not much we can do as long as you don't post questions, now that you have told us of your intent. If you do feel the urge to join in and ask, please contact the owner at admin@healingwell.com as a coutresy and to seek his blessing. Thanks for being truthful and telling before hand with us.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

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