Finished 5 week of SRT

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Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 2/19/2010 11:41 AM (GMT -6)   
 
Well I just had my 25th treatment this morning and 5 more to go.  The fatique is much better since I stopped the sleeping pills.  Have a little more frequency at night but not too bad.  I hope the remaining 10 treatments are as easy.  The big question is will it work!  I met with the oncologist on Wednesday had a lot of questions about after treatment is complete,  He said first PSA about 6 to 8 weeks out he would not be alarmed if PSA increased from 0.5 to even 1.0 said it is of no use to use the more sensitive test because whatever it is after SRT they will watch for doubling time over a period of time it is either going up or down.  If it doubles quickly from 1.0 to 2.0 etc they will know it did not work.  If it levels off even at 1.5 they would feel that would be a success and not do any additional treatment.  I said should it not be going to zero if all the cells were killed, he said not in all cases a leveling off and stable PSA is still a good sign.  I guess that means it is under control but to me it does not make sense that I am cured if my PSA is not zero.  One thing he did say and I agree after the tratments are over walk out of here and know you did all you could for a cure and try not to live cancer everyday and get on with your life.  Probably easier said then done but that what I intend to do.
 
Jerry1    
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/19/2010 2:26 PM (GMT -6)   
Jerry, you have been doing great, I admire you. Before you know it, it will be over. Let's both hope it does a number on whatever is producing those small amounts of PSA in you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 2/19/2010 4:00 PM (GMT -6)   
5 more? That's great, keep on chipping away at them. Maybe schedule a celebration next weekend?
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 2/19/2010 4:03 PM (GMT -6)   
Jerry, glad to hear it is still mostly uneventful! You guys are getting way ahead of me. I should have finished treatment 22 today but the rad machine broke down again. Not much to report, no real change, same lack of strength in my legs as I go upstairs at night but not bad and a little stomach discomfort.

Your oncologist's explanation of psa changes relate to my understanding from the rad guy. The killing of cancer cells build up over time and continues after the radiation stops. Mostly because I pushed for it, the oncologist has ordered a psa test for me next week (about the end of week 6 of 8). I just wanted to see how things were going.

Have a great weekend,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 2/19/2010 4:14 PM (GMT -6)   
Jake,
I guess I either forgot or did not know you were only doing 30 tx's. I have 39 so hit 25 today with 14 left to go. You asked some good questions and all of us will probably have more on the last day. I did ask about my T-level and the impact radiation might have on it. He said it should not be hitting the testicles so there should  be no need for concern. Swear that I have read different ideas on that subject. But glad you 2 are doing well and no real changes here, but if I had know I was going to spend so much time in or near a restroom I would have subscribed to National Geographic to have something to do while on the pot.
Take care and have a great weekend.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 2/19/2010 10:35 PM (GMT -6)   
Jerry,
 
Good going!    I am at 17 down and 15 to go as of today.  Little side effects except for minor drowsiness right now....   Urination stable and can still hold thru a long night of sleep.
 
Hopefully we all will have zapped those remaining PCa cells after this is all over and can once again join the "ZERO" (or PSA stable) club...
 
God Bless All,
 
pasayten (Ray)
After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment started
                  32 sessions for 64 gys total.
2/12/2010 13 down and 19 to go...  No side effects to date except a little
                  tiredness.
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/19/2010 10:56 PM (GMT -6)   
MIchael and Ray, both you guys are doing good too, soon this part of your journey will be behind you too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 2/20/2010 12:33 AM (GMT -6)   
To all the radiation warriors :

Sounds like pretty smooth sailing for all you guys. Hope you all can settle back a little and leave the driving to the radiated cells.

You guys have done all you can do at this point.

I really am encouraged by the good process. Makes it a little less intimidating for guys like me who may well be doing one of these days.

Bon Voyage !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 2/20/2010 7:17 AM (GMT -6)   
Great news sounds like your doing ok lot of luck !! ihad 40 treaments 4 months 50mg cassdex. I'm doing alright so far finish 12-12-09 at Emory in Altanta Ga
Deerhunter

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 2/20/2010 7:39 AM (GMT -6)   
Jerry, Jake, Michael and Ray,

You guys all sound like you are doing well with the process. Congrats to all of you.

A slight word of caution though. Hopefully you won't go through it, but if you should see an increase in urgency and urination the last week or shortly thereafter, don't freak like I did.

The doc said to just be patient and it should be better in a few weeks. Lo and behold at the end of the 3-4 week, everything was back to normal and remains there today.

I go for my first post rad PSA test this Thursday the 25th. I'll be thinking of you guys and sending lots of positive vibes your way.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 2/20/2010 5:19 PM (GMT -6)   
 
Thank you all for your support however, I guess it was wishful thinking about 5 more treatments it is 10.  35 total so two more weeks.  Thanks for the information Sonny I am prepared for some issues as I go in to the home stretch so will not be surprised thanks to all the information I have learned from you all.  One thing my wife noticed today is that I have what looks like circular brusing on both sides a little lower than where I think the radiation is going almost looks like broken blood vessels but in a circle.  Anyone else have this?
 
Jake, Michael and Ray glad to hear you are all doing well and no major problems.
 
Deer Hunter glad to hear you are doing good after your treatments gives us hope. 
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/20/2010 5:51 PM (GMT -6)   
i wondered about your math there jerry, but then again, it was you gig, lol. you are getting there regardless.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 2/20/2010 6:38 PM (GMT -6)   
Hi guys i still have some spots on my rump adout the size of softball so my wife says, they look like bad bruises and one on each hip finished rad 12-12-09 40 treatments glad that part is over you guys hang in there your just about done
Deerhunter

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 2/20/2010 11:50 PM (GMT -6)   
Jerry and Deerhunter,

I've not experienced noticeable bruising yet but my gut sometimes feels like I've been punched there at times. The rad oncologist attributes it and the sunburn feeling to the agitation of blood capillaries which may also result in bruising eventually.

I have lower back pain but that is probably due to being hobbled from my broken ankle last June and a couple screws that are working out of the plate and mended bones. It seems aggravated by laying on the hard cold table too. I wouldn't be surprised if it wasn't a little arthritis.

I'm being told that nothing is unusual for radiation treatment.

Our best to all and enjoy the rest of the weekend,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy

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