we does the "tell"

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Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 2/20/2010 1:00 PM (GMT -6)   
On Monday, I will be two weeks out from my open prostatectomy, and unfortunately, have a scrotum the size of an orange with elargement of the left testicle.  Although I've been on sulfameth since surgery, I believe I may have orchitis.  Catheter comes out Monday Morning, so I'll have my Doc take a close look at my scrotum. 
 
Anyway, havin lots of time to think in my Percocet induced haze, I'd to pass something along to my PCa survivors who frequent this forum.  I think this little speech or "tell" is a metaphor for what we've all been through, and what we'll go through in the future months and years.  Some of you may say, "Rick!  Get off the Percocet, NOW! 
 
Anyway, this metaphor comes from the Mel Gibson Movie, Mad Max Beyond Thunderdrome, and it's a "tell" given by a semi-literate Australian woman, Savannah,  who has survived the nuclear disaster that enveloped Australia, and most likely, the rest of the world.  As Savannnah give's her final "tell" to her extended family in the ruins of Sydney, I can see parallels to our own plight, for we have alll experienced our own mini nuclear disaster with a prostate cancer diagnosis.  In her "tell", I've put in "parenthesis "  my ideas of how this "tell" equates to our situations.  
 
Here it is......
 

"This you knows, the years travel fast and time after time, I done the tell.  But this ain't one body's tell, it's the tell of us all, and you've got to listen it and member, cause what you hears today you gotta tell the birthed (newly diagnosed) tomorrow.  I's looking behind us now, into history back.  I sees those of us that got the luck (early diagnosis) and started the haul for home and I members how it led us here and how we was heartbroke cause we seen what they once was (late diagnosis) One look and we knew'd we'd got it straight.  Those what had gone before had the knowin' and doin' of thing beyond or reckonin, even beyond our dreamin".  Time counts and keeps countin' and we knows now, findin' the trick of what's been lost (continence and erectile function) ain't no easy ride.  But that's our trek.  We gotta travel it and there ain't nobody knows where it's gonna lead.  Still in all, we members the man who finded us ( the creator of this forum) him that came the salvage and we lights the city (this forum) not just for him but for all of em that are still out there (the undiagnosed) cause we knows there'll come a night when they sees the distant light and they'll be coming home."  
 
 
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed Mayo Clinic, JAX.
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Mayo Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Mayo Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery @ MAYO with Dr. Todd Igel.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


Magicianatx
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 2/20/2010 3:17 PM (GMT -6)   
Great analogy, I always enjoy watching Mad Ma Beyond Thunderdome. You would have loved watching and hearing Tina Turner singing the song at her Concert.
Diagnosed: June 2009
Age: 54
PSA: 8.0
Gleason: 3+3
Surgery, open Prostate: Jan. 4, 2009


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/20/2010 3:58 PM (GMT -6)   
Great summary of our particular 'tell', enjoyed it...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/20/2010 4:30 PM (GMT -6)   
Sunbird, I honestly don't get your post. I know the movie you reference, but don't get it.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 2/20/2010 6:10 PM (GMT -6)   
Purgatory?

Savannah's "Tell" at the end of this Mad Max Movie is a metaphor which means it parallels a situation we find ourselves in as men diagnosed with prosate cancer. I don't know to how make it much clearer, but I'll try.

Let's say that General Patton gave a speech after he rolled into Berlin during WWII. Let's say he referred to ****sm as a cancer and he said we may have defeated this foe, but we have to be ever vigilant for any signs of its return. This would be a metaphor of what Pca survivors have to deal with.

Anybody else out there having a problem comprehending this analogy?
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed Mayo Clinic, JAX.
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Mayo Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Mayo Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery @ MAYO with Dr. Todd Igel.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 2/20/2010 6:11 PM (GMT -6)   
Hmmm......can't believe the censor blocked the word ****ism, so I'll add an extra "i."
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed Mayo Clinic, JAX.
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Mayo Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Mayo Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery @ MAYO with Dr. Todd Igel.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 2/20/2010 6:14 PM (GMT -6)   
Hmmm...

Well we all know what political view Hitler was pushing during WWII.....Yeah....that word...begins with an "N" and ends with an "S."
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed Mayo Clinic, JAX.
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Mayo Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Mayo Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery @ MAYO with Dr. Todd Igel.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 2/20/2010 6:24 PM (GMT -6)   
Hay Sunbird that sounds about right, lots of Luck Monday at the doc
Deerhunter Bucky
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