On Monday, I will be two weeks out from my open prostatectomy, and unfortunately, have a scrotum the size of an orange with elargement of the left testicle. Although I've been on sulfameth since surgery, I believe I may have orchitis. Catheter comes out Monday Morning, so I'll have my Doc take a close look at my scrotum.
Anyway, havin lots of time to think in my Percocet induced haze, I'd to pass something along to my PCa survivors who frequent this forum. I think this little speech or "tell" is a metaphor for what we've all been through, and what we'll go through in the future months and years. Some of you may say, "Rick! Get off the Percocet, NOW!
Anyway, this metaphor comes from the Mel Gibson Movie, Mad Max Beyond Thunderdrome, and it's a "tell" given by a semi-literate Australian woman, Savannah, who has survived the nuclear disaster that enveloped Australia, and most likely, the rest of the world. As Savannnah give's her final "tell" to her extended family in the ruins of Sydney, I can see parallels to our own plight, for we have alll experienced our own mini nuclear disaster with a prostate cancer diagnosis. In her "tell", I've put in "parenthesis " my ideas of how this "tell" equates to our situations.
Here it is......
"This you knows, the years travel fast and time after time, I done the tell. But this ain't one body's tell, it's the tell of us all, and you've got to listen it and member, cause what you hears today you gotta tell the birthed (newly diagnosed) tomorrow. I's looking behind us now, into history back. I sees those of us that got the luck (early diagnosis) and started the haul for home and I members how it led us here and how we was heartbroke cause we seen what they once was (late diagnosis) One look and we knew'd we'd got it straight. Those what had gone before had the knowin' and doin' of thing beyond or reckonin, even beyond our dreamin". Time counts and keeps countin' and we knows now, findin' the trick of what's been lost (continence and erectile function) ain't no easy ride. But that's our trek. We gotta travel it and there ain't nobody knows where it's gonna lead. Still in all, we members the man who finded us ( the creator of this forum) him that came the salvage and we lights the city (this forum) not just for him but for all of em that are still out there (the undiagnosed) cause we knows there'll come a night when they sees the distant light and they'll be coming home."
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
2000, Colon Ca Metastasis to upper left lung lobe. Lung lobe surgically removed. 24 chemo treatments scheduled. Took 1, declined the rest.
9/08 PSA is 2.8, 12/08 PSA is 4.56?? Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery. VA docs prescribe 30 days of Septra. Prostate feels normal. PSA hovers around 4.1. VA docs want prostate biopsy but can't seem to get me into the schedule. Continue through Spring and Fall of 2009 thinking I have prostatitis. Bacteria cultures are always neg. PSA drops to 3.1 10/09.
12/09 Prostate Biopsy performed Mayo Clinic, JAX.
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
Mayo Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded. Shotty lymph nodes in both groin measuring 2.3 cm."
Mayo Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles. Normal size iliac chain lymph nodes.
2/08/10 Open RP surgery @ MAYO with Dr. Todd Igel. Findings: Gleason Six upgraded to Seven. 3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes, margins uninvolved, no extraprostatic extension, no seminal vesicle extension, 39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally. current age-61