It has been 2 years since RP. I have developed a curvature from a condition I think is called Kelami's syndrome. It is very noticeable but has not progressed. I do not know if it was a result of the surgery or from the Bi-mix injections. Has anyone experienced the same curvature as a result of RP or injections? I would really appreciate some information about
your experience and how you dealt with it. The Uro's I consulted seem to know little about
it. I do not want another surgery.
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
Gleason 7 (3+4)
1 positive margin (.3cm)
4/16/08- Started Bi-mix injections
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09 PSA .18 (ouch)
June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10 Post IMRT PSA 0.00
Posted 2/21/2010 2:55 PM (GMT -6)
Bootheel, sounds like you need an ED specialist, not a standard urologist, who knows little about Kelami's. I've heard that bending is sometimes caused by injections in the wrong spot. If not that, if it's Peyroni's, it may be treatable by meds...surgery may no be recommended for you. In either case, a specialist, not a Uro generalist, should help you to identify the root cause and treat it.
Currently it is Friday, July 19, 2019 7:02 PM (GMT -6)
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