Penile Curvature

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Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 2/21/2010 12:48 PM (GMT -6)   
It has been 2 years since RP.  I have developed a curvature  from a condition I think is called Kelami's syndrome. It is very noticeable but has not progressed.  I do not know if it was a result of the surgery or from the Bi-mix injections.  Has anyone experienced the same curvature as a result of RP or injections?  I would really appreciate some information about your experience and how you dealt with it. The Uro's I consulted seem to know little about it.   I do not want another surgery. 
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 2/21/2010 2:55 PM (GMT -6)   
Bootheel, sounds like you need an ED specialist, not a standard urologist, who knows little about Kelami's. I've heard that bending is sometimes caused by injections in the wrong spot. If not that, if it's Peyroni's, it may be treatable by meds...surgery may no be recommended for you. In either case, a specialist, not a Uro generalist, should help you to identify the root cause and treat it.
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