Back From Uro/Surgeon's Office, not good news

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/22/2010 1:17 PM (GMT -6)   
Went to my appt. this AM with my uro surgeon.  They injected 100 mg of Demoral into my hip and had me sit for 45 minutes for the drug to take effect.  The nurse then prepped my weiner for the scope with a lot of lydocaine gell, and had to sit another 15 minutes.
 
Dr. got the scope up me with easy, the pain killer really helped there.  It was a little uncomfortable, but bearable.  He was amazed once again, the dialation and laser opening he did on January 19th was almost sealed shut again.  He was just barely able to get a wire through the opening.   If you remember, the first 3 weeks after the surgery I had a foley cath in my penis along with the SP cath, so that the foley would help keep it open.  Two weeks ago, he removed the foley and left a fresh SP in place.  So it closed up that much in just two weeks.
 
Next he tried to dialate me back to a large enough size to get a foley back in place.  First rod went up the wire with some pain, but bearable.  Second rod was very painful  (despite being sedated).  He said let's try one more, the 3rd rod felt just like someone was hammering a metal spike up my weiner.  He had the nurse hold my penis so that he could contol the insertion of the tub better.  The 3rd tube was becoming stuck, couldn't get it further in or back it out, so they shot some liquid up the scope, and painfully removed the rod.  That ended this attempt.
 
The dr. left the current SP cath in place (#12), and said that I will have to still another corrective surgery, as early as next week.  He said that there is still so much damage post radiation at the bladder neck, that there is no way to dialate fully enough with me being awake.
 
This next time, he wants to leave the SP in place, but cap it off, and after the surgery, see if I can pee on my own, and if not, my wife could easily re-activate the SP from home.  If this next mini surgery doesnt work or last, he said we will have to discuss more serious solutions, which could include  re-doing the bladder neck to urethra connection  (which he is not really wanting to do) as there would be a lot of risk of perm. incontinence and ED where there no ED currently.  Another possibility is to have to have a perm cath  (SP type) and just let the bladder neck be closed for good.  Not a lot of good options out there.
 
There are 2 other complex ops that can be done, but he's afraid that my situation is chronic ,not temp, and one could go through all that and still have strictures a few months down line.
 
So I was wrong, thought for sure that I would be leaving with a new cath, #13, but he decided that if he has to operate next week, no point replacing it today.
 
We were both disapointed, but it is what it is.  The radiation damage has made a bad problem even worse to deal with.
 
Doing the best I can, but you have to admit, this seems like an eternal problem.  And I still await for my next post SRT psa test number, in April.  That is actually a greater concern to me.
 
David in SC
At
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Ricky2
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 2/22/2010 1:25 PM (GMT -6)   
David,

You have been through so much! I am saying a prayer that you can get it resolved!

Ricky
Age 70

PSA 5/2008- 3.6, PSA 7/2009- 6.1, retested 9/2009-5.1.
Biopsy 9/2009. 4 of 12 positive. Gleason 3+4=7
CT and bone scan negative.
Robotic De Vince Surgery 10/29/2009. 1 night in hospital. No pain. Cath out on 11/6
Pathology Report: Gleason score 3+4. Margins slightly involved <.1mm to .25mm. Perineural invasion present, stage pT2c. Tumor 18%. Seminal Vesicle - absent, Lymph Nodes 0 of 6.
Continence- first 4 weeks after cath out Dry at night, rest of time, bladder held nothing. 6-7 pads per day. as of 12/30 no pads most of time. almost dry except for a few drips. I keep doing Kegels.
ED. Started VED on 12/17/2009. Every other day for 15 min. Cialis .20 mm twice a week
PSA 02/08/2010 <.1
02/22/10 Trimex injection .2ml less than 50% just a little discomfort.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/22/2010 1:31 PM (GMT -6)   
Why not get another opinion somewhere else on something this important??? I sure you will say no to that, but thought I would ask.
Youth is wasted on the Young-(W.C. Fields)


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 2/22/2010 1:38 PM (GMT -6)   
 
 
David,
 
I am so sorry that you are having so much pain and difficulty it seems like you must have some servere damage from the radiation.  I hope your surgery will correct the problem but it seems to keep coming back and how many times can they keep trying to open the bladder neck without causing more damage?  I feel for you this must be torture it has been going on for so long it is amazing that you keep such a positive attitude.  You are really an inspiration to us all.   You are in our thoughts and prayers.
 
Jerry1  
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 2/22/2010 3:27 PM (GMT -6)   
Hi David,


I am very sorry to hear that your bladder neck problem is not resolved. It is easy for me to say 'hang in there' as well as other remarks, but I would rather say that I am thinking of you and hoping that there is a solution which is workable and agreeable to you in the near future. Good luck with all that is coming down the pike,



Regards,

Bill

6071
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 2/22/2010 3:30 PM (GMT -6)   
hi dave
so sorry to hear of your latest news
i hope you get a good psa in april after all you have be through
it is to much to think what You have been through so far
i wish you all the best
Age 61 at DX
Biopsy 7/2008 Positive 1 of 12 cores positive 3+4 5% To 10%
Open Radical Prostatectomy 15/10/2008
Stage pt2c
Post op staging Gleason's Score 3+4=7
apical margin is focally positive
no extraprostatic extension
Seminal vesicles and lymph nodes clear
Catheter out on the 13/11/2008
4 week PSA < 0.1
26/1/2009  < 0.1
20/4/2009 < 0.1
11/6/2009 ultra sensitive psa 0.07
20/7/2009 < 0.1
26/8/09 Starting photon 3D CRT
13/10/09 Radiation Finished
25/11/09 ultra sensitive psa < 0.05
 







Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 2/22/2010 3:58 PM (GMT -6)   
Oh my Friend: What can I say. there are no words that express my concerns, dissapointments, and fears for you. I know in the grand scope of things the cath is number 2 on the list of concerns and number 1 has to be the PSA test.

We all know others that are having a more difficult time but I know you are frustrated. You know my prayers go out for you.

As always, you cajun friend

Jeff
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 2/22/2010 4:06 PM (GMT -6)   
David,
 
Sorry to hear the news. I've only been on this site since September '09. That is long enough to know, however, that you are one tough guy. Praying for some relief for your situation.
 
Joe  

Age -67 PSA - 4.5

Biopsy  (9/4/09) - Positive in 5 of 8 cores. In those 5 cores, 5 of 11 samples were positive. Gleason 3+3=6. Stage – T1C  Ct and Bone scans negative.

 

BT performed on 12/11/09. 84 seeds of Palladium 103. Surgery at 7:30 - Home at 12:30 same day with no catheter. Blood in urine for a week. Side effects as expected -  some burning, frequency, urgency.   Resumed daily  1 ½ mile walk after 3 days. Side effects have subsided some in the last week.

 

BT followed with 25 IGRT treatments beginning Feb 15 (4500 Gy's). 

 


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 2/22/2010 4:21 PM (GMT -6)   
You have to feel frustrated and I really admire your ability to get up and push forward. The solution might just be the next attempt so keep the faith.

Good luck with your next psa, you continue to be in our thoughts.

Our best,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 2/22/2010 4:27 PM (GMT -6)   
David, my heart broke reading your message.

I agree with Zufus on this one ... know that's not what you want to hear but maybe making a couple of phone calls wouldn't hurt?

Regardless, you are in our thoughts and prayers.

Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 2/22/2010 4:29 PM (GMT -6)   

Hello David:

I am SO sorry to hear about your continuing problems.  You certainly deserve some good news one of these days and I was hoping it would be now.

I realize you have a lot of faith in your uro-doc but, given the seriousness of what you may be facing, perhaps you should get another opinion before doing anything else.  I think that is what you would recommend to anyone else on this forum who was in your situation.

In any case, I will continue to remember you in my prayers and really, really hope you get some relief one of these days...

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/09.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 2/22/2010 4:52 PM (GMT -6)   
David, sorry to hear of your latest news. You must be due some good news -- let's hope it turns out to be the PSA.

Thinking about the basic anatomy down there: as I understand it the urethral sphincter is just below the bladder neck, while your scarring problem is in the bladder neck. I wonder if some kind of stent is possible, such as are used with heart problems to keep the pipework from clogging up? May not be possible -- but it does no harm to ask...
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/22/2010 4:53 PM (GMT -6)   
Ricky - thanks for your care and thoughts

zufus - why would you say I "would say no" to that, i.e. other opinions. I have been researching all and any options related to this unpleasant conditions. my own dr. is talking to his peers, that's how other complex butsomewhat risky for side effect ops came up. the radiation people, the lucky ones, they got their money and got to hand me back to my dr so that he had to deal with the problem again, but this time, further damaged by radiation.

jerry - even the dr. used the "torture" word this morning. after a careful prep of pain killers, and allowing plenty of time for it to absorb in my body, when he got to the most painful part, he aborted the procedure when he saw that it wasn't going to happen. he believes that all the extra pain/sensitivity is 100% related to post radiation, and it must be, my wife is a nurse and says that was enough direct demerol to sedate a person from most pain. It worked well to a degree, didnt even hurt to be scoped (first time I can say that out of 5-6 scopings), so dr. said there was no reason to torture me, as he wasn't even able to reach the 1/2 point in dialation tube sizes that he needed.

bill, thanks for you care and support
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/22/2010 5:03 PM (GMT -6)   
6071 - thanks, bro.

jeff - you got it right in the priority dept. as frustrating and painful at times as this can be on the stricture/cath saga, all of this is meaninless to me until I have some confidence that all that radiation did some good. the odds aren't on my side, but i need to be on the winning side of something here with PC stuff. the other issue, a big and pain in the "A", is difficult because of my unique situation, and chronic stricture problems do occur, but rare at this level. there's only x amount that is out there that can be done, regardless. i would probably be more prone to stay on the SP indefinitely, then to have a rarely done, risky (side effects) operation.

jake and joe, thanks my friends, i am there for you guys too

sephie, thank you, and john too, discussed your opinion above, its not like i am against that, i want a solution.
___________

today is my 144th continuous day on a cath, and believe it or not, since my open Surgery, my total total on caths is now at 245 days. Never would have believed that was possible.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/22/2010 5:14 PM (GMT -6)   
tud - thanks, really thought i was coming out of there today, with cath 13, a foley type, and in a week or two, it could be removed and i would be free of the snake. never even thought of having to have another OP so soon since the last one. dr. said never saw anyone that could scar up so fast, on top of the still swollen material from the radiation. some don't understand, that radiation doesnt just end on the day of your last treatment, been told at the cellular level, its keeps going for some time. its been almost 3 months since my SRT ended

piano - my wife and the uro had a good talk a couple of times about stents for that use, and that is also on the possibility least, she sees that working with the elderly. his concern with stents in that area, is that it would work well in the short term, but that over time, they can move or get ingrown to the flesh and have to be surgically removed, he said if that happened, more than likely i would end up 100% incontinent for good. sure dont want that
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 2/22/2010 5:53 PM (GMT -6)   
David I'm really sorry for the outcome of todays visit. I was hoping you were going to report good news. I'm here for you if i can do anything. Let's pray for zero in April or something even better before then.
 
Your in my prayers,
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO MX


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 2/22/2010 5:57 PM (GMT -6)   
Hi David,
Sorry the radiation caused you more grief. I'm sure they will have success in treating you next time. I am praying for a good PSA in April. As you know by my signature, the first post salvage radiation PSA stayed the same for me. But the 2nd one was a charm. I'm sure you will fare equally as well. Keep the faith buddy.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 2/22/2010 6:29 PM (GMT -6)   
David sorry things didn't go as plan,I was hoping for the best, maybe he will be able to do something differnt while he is in there next time i'm sorry you have to go thru this again after all you been thru so far .
Lots of luck on the next one i know it seams like it a never ended battle
My prayers go with you
Deerhunter

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3987
   Posted 2/22/2010 6:44 PM (GMT -6)   
David -- that just makes me sick to read. you're a strong man and you will be in my thoughts. hang in there buddy!

ed r.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/22/2010 6:58 PM (GMT -6)   
Neal, thanks for your care and concern

boot, thanks, i had noticed your post radiation numbers too, i am hoping for that same miracle for myself. hope your's stays cured this time

deerhunter - thanks for the encouragement, have been told that some men have to go through those procedure once or twice a year, if it is chronic condition. unfortunately, we don't get to choose these paths we are put on.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 348
   Posted 2/22/2010 7:20 PM (GMT -6)   
Sorry mate,
Hope you get a good PSA next week,
Luck of the Irish to you,
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 2/22/2010 7:37 PM (GMT -6)   
Hi David,you sure are having a rough time of it, let's hope your medical team will find a way out of this situation, and I wish you all the best for the PSA.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 09 0.6 (I am now 69)
PSA 18th Jan 10 0.6


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 2/22/2010 7:39 PM (GMT -6)   
David,
 I just walked in the door and had a couple waffles and checked the HW posts and was sorry to hear of this most recent setback. Your a trooper and my hope is that somewhere and soon the sun will shine for you. Will be thinking of you and will focus on a positive outcome for you.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 2/22/2010 7:46 PM (GMT -6)   

David:

I was shocked to read your post. I thought you were on the right track.

I can only repeat my suggestion that you go elsewhere. You have mentioned what a wonderful caring doctor you have and I am sure he is also very capable. But, clearly, your body continues to make too much scar tissue. Before having another operation, why don't you make a call to Mayo or Hopkins? Perhaps you can write up a summary of all that you've been through and at least see if you can get a new perspective by one of the top doctors at one of the top institutions. You've done it your way for a long time. I would urge you to get some more input directly. I realize your doctor is also getting input, but that just isn't the same as YOU going to see someone else, if you are able to travel.

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights.

Next Event: First post-op PSA on 3/1/10


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 2/22/2010 8:05 PM (GMT -6)   
Hi David,

Sorry to hear that you are continuing to have problems. As a few others have suggested it may be time to seek another opinion. My brother inlaw had a problem with his bowels and the local doc was suggesting a resection. (This was not related to cancer) He took a trip to Charleston (medical college) instead and was given a second opinion and an alternative treatment. That was two years ago and his problem has been resolved. Not that much of a drive from G'ville to Charleston.

Best of luck to you and I hope that you return to health soon.
Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
 
 
 

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