the pc adventure

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pigeonflyer
Regular Member


Date Joined Nov 2009
Total Posts : 85
   Posted 2/23/2010 9:24 PM (GMT -6)   
After contemplating my ordeal with this pc buissnes I have come to the conclusion that it has been quite an adventure.As with an adventure all things are not predicable.We have an idea what to expect but the unexpected experience is what makes it an adventure. I came out of surgery and into recovery with more knowledge than I had before I stumbled into the pre-op status of having PC.To be more informed after the fact than before seems to me now that I had approched this mountain bassackwards.Would I have done something different?Most defintily not.Not because I came through this surgery doing pretty good now,because i had some issues to deal with,but becauseI could not endure life with a cancerous prostate.It had to be removed.As with every adventure,if we knew every outcome,it would not be an adventure.It would be a predetermined experince.I wish for everyone that PC surgery could be a predetermined experince but such is not the case.Someone at HW made a point months ago that I have to agree upon.In my own words his point was to this effect.To set sail upon the sea without any knowledge of how to sail a ship,is like going into PC surgery without knowiny anymore than a person who does not have PC and its effects are the furthest thing from his mind.The ship will definetly move about the sea from the tides and wind but its direction will be at the bid of external forces and if left to its own course will proably be dashed upon the rocks.Im not saying you can control the outcome of PC surgery but you can be ready for an unexpected experince and be informed to change it into a predetermined experince.We trust our doctors to make the right choices for our medical care but if we know what the next procedure is we can see if he is directing us through the right course of action.To be informed about our journey,in all aspects,we can better manage our medical care.
  This is to our adventure through PC.
 
 
                                     Neil 
50 years
da vinci on 9/28/09
gleeson 3+3
psa before surgery 5.1 oct/09 psa 0.06
cather out on oct 5, back in on oct 5
two more trys for cather out, still in .
cather out nov. 13/09
cystocope nov.13/09 , cather back in , out again on nov 15/o9, was taught to self cath, still pluged with scar tissue but no cather. have to self cath 6 to 8 times a day. scar tissue removed on jan. 11 2010. no cathing and totally dry. 


defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 2/23/2010 9:33 PM (GMT -6)   
Well said and glad to hear your "Adventures with Catheters" may be over.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/23/2010 9:38 PM (GMT -6)   
Good analogy there, Neil. And I am still glad that you are still unplugged at the moment, hope it stays that way for you for good.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 2/24/2010 5:16 AM (GMT -6)   
Having done the self cath for over a month after a previous surgery I can imagine how relieved you were to get that problem fixed (no pun intended)

I had a private bathroom at work so that was easy but felt somewhat restricted when going out to anyplace where I might have to use a public restroom. The insertion of the catheter is actually the easiest part. Keeping all the "stuff" sanitary is more difficult.
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
PSA 9-21-09 -0-
 
Thriving, not just surviving!
 


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 2/24/2010 6:37 AM (GMT -6)   
Neil: I am very impressed with you anthology of PC. I think you hit it on the head. Most of us have been down that same road. I should have been better informed before surgery. The only thing I wish is that I had found HW during the discovery process. Not that I would have done anything different. Thanks for posting this.

From one Cajun to another

Your Buddy
Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/24/2010 7:22 AM (GMT -6)   
Analogy is good Neil, let me also mention this analogy as the world is not full of good deed doers, much to our peril:

(Beware of some Pirates that have high-jacked the ship) and looking for booty (lol), in the form of $$$$$ more than the patients best interests. Seen all kinds of cases over the years and from my own multiple opinions, recognized a few with patches over one eye, green & missing teeth, bad breath, peg leg, black hat with skull & bones. Maybe show them where the walkin the plank gig is located and trip them.)

All that glitters is not gold! Pirates rob from other pirates...no codes...no morals..and lead a glamourous life style....for awhile! Buzzards may circle their carcass in due time.

I also met a few real Captains whom knew these waters enough to navigate a more righteous course and in concert with the travelers wishes and considerations. Some these types have navigation equipment and charts, compass, and new mapping skills, while pirates sail by the seat of their own pants. Soooooo..keep your cannon balls, and powder dry, and get ready to light your wicks(be careful using the ram rod) , then be ready to do battle. Hope you have a good first mate along your journey. A little Rum might make the journey go easier (lol).  If you can swim well, jump off a sinking ship.

 


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 2/24/2010 5:38:02 AM (GMT-7)


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 2/24/2010 7:23 AM (GMT -6)   
Where do we go to vote for him.
Amenbrother
Deerhunter

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 4/22/2011 9:56 AM (GMT -6)   
Neil,
I spend a little time and your post we discussed. Your reference to sailing a ship without any knowledge is thought provoking.
Thank you!
Jeff

When I first read your post your voice sounded just like mine. Now I know better. ;-)
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Glsn 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
AdVance Sling 1/10/11 Dry

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 4/22/2011 10:11 AM (GMT -6)   
Very good analogy. I looked at my journey not only as an adventure, but a complex problem that needed to be solved. You learn as much as you can and gather as much data as you can about your individual situation and arrive at a solution. You bring in people that know more than you do about the issues. Then just as any other problem you monitor to see if your decision was correct and make adjustments. If you view it as a complex problem and challange that must be overcome instead of just an unfortunate circumstance in which you have no control you are better able to cope with it.
JT
66 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, 4 weeks of urinary frequency and urgency; no side affects since then. 2 years of psa's all at 0.1.

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6080
   Posted 4/22/2011 6:27 PM (GMT -6)   
It was George bernard shaw that originally said that youth what a wonder ful thing, to bad it s wasted on the young. Wc Fields when asked how he liked children he answered, " broiled " Kinda of the same but not.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving
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