Zero Club for the rest of us

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John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 2/24/2010 2:16 PM (GMT -6)   
The surgery guys have a zero club. Those of us that have chosen other treatments like radiation, AS, Cryo, HIFU ect will never have zeros because we still have a prostate. I suggest we form a new club, The LOW and Zero Club. Most of us have chosen our treatment to avoid the side affects of surgery so I propose the qualifications for membership be a LOW and stable PSA and ZERO side affects.
I apply for charter membership with a PSA of 0.2 and no side affects.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 2/24/2010 3:11 PM (GMT -6)   

JT....yeah, I've been feelin a little low about never being able to be in the coveted Zero Club so I'm glad to see you have started something for the rest of us (kinda like Festivus, the holiday for the rest of us on Seinfeld).  Anyway, my membership check is in the mail...I'm at 1.0 and still falling toward my nadir and the zero I have is related to SE's.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/09.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/24/2010 3:24 PM (GMT -6)   
Both you guys have done excellent without surgery, and set a good example to your treatment choice for others to study and hopefully follow. Yeah, you deserve a club of your own, fair is fair.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


JerryB-UK
Regular Member


Date Joined Jul 2009
Total Posts : 39
   Posted 2/24/2010 3:24 PM (GMT -6)   
Count me in.  0.4 in mid-February 2010 and no side effects.   Next one in 3 months time.
 
Jeremy

Age - 67
PSA – 7.8 ug/L. in February 2009
Gleason – 7 (4+3).  T stage – 2b.   Prostate size - 52 cc
July 2009 - ADT (Prostap) for 3 months to shrink prostate with a view to brachytherapy
September 2009 - prostate reduced in size but flow still to slow to allow brachytherapy.  Told that surgery is only option
30th October 2009 - Focal HIFU with Mark Emberton in London UK


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/24/2010 4:50 PM (GMT -6)   
It's all good John I can't qualify for .2 or less, but have had really decent controll for 5 yrs.+ without the expensive hormone therapy type drugs and feeling best I have since being off those wonderful expensive-loaded side effect drugs of(ADT3)-they can be useful and worthy, long term you better look harder at the program. Went from $13000 a yr. approx. to under $120 per yr., with almost no side effects, better control and nobody cashin in on me. How does that balance on a scale? Walked that walk that uro-doc did not think was possible or atleast would not mention was possible for me, because???($$$)

I fired my uro-doc about 6 yrs. ago, he was overzealous(made errors too) and cashin on me with the ADT really well and would have had me stay on it forever. Much to his surprise he called me one day and asked why I wasn't coming in....I let him know I wasn't coming back...se la vie or hasta la vista to him. Best thing I ever did, then found an excellent onco-doc whom has no agendas and has really made no money off me all these years and he even bad mouthed the drug companies as rip off artists (this is not heard from to many docs..usually they support the machine well). Might need club #3 & #4 for another group of us (lol). M-i-c-k-e-y M-o-u-s-e now there was club, especially if you had your ears on....(LOL) :-)
Youth is wasted on the Young-(W.C. Fields)

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