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dogyluver
Regular Member


Date Joined Sep 2009
Total Posts : 35
   Posted 2/24/2010 1:37 PM (GMT -6)   
My husband had a radical prostatectomy in Aug.09. He has had very little success with Viagra even though he had only taken it 2 100mg. he didn't like the side effects so he only took 50mg. and that didn't work. He has also tried Cialis 20mg. with about a 50/50 success. We are now considering a penis pump. Has anyone tried over the counter pumps and what are the success rates vs prescribed pumps and does insurance cover these.
Thanks for any input.
April 09 PSA 3.2
May 09 DRE enlarged prostate
July 09 PSA 5.2
July 09 Biopsy 5 out of 12 malignant
Gleason score: Primary 3, Seconary 4 Total 7
August 24, 2009
Radical Open Prostatectomy Andocarcinoma of the prostate
% of 4 and/or 5: 1-25%
% of 3    76-90%
Androgen deprivation effect: Negative
Apical involvement: Positive
Apical marginal involvement: Negative
Extraprostatic extension (EPE): Negative
Margin: Negative
Bladder Neck Shave: Negative
 
Areas of involvement: Right and Left lateral, posterolateral and posterior and left anterior apex and mid prostate
Principle area of involvement: Right and left lateral, posterolateral and posterior apex and mid prostate
Focality: Multifocal
Volume: Medium(100 Sq mm)
Ejaculatory Duct: Negative
Seminal vesicles involvment (SVI): Negative
Vas deferens N/A
High Grade PIN: Positive
Neuroendocrine differentiation: Negative
 
Pathologic Stage: pT2c NO MX


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 2/24/2010 2:10 PM (GMT -6)   
There are a couple of guys that have purchased a VED from the Adult shop and use it for therapy. Just to get blood to the member. If you have some specific questions are want to talk to a guy that has one I will give you his number as well. My e-mail is active just click on my name for the address. Good luck. I purchased the one at the Dr's office. Insurance did not cover the cost.. If I had to do it again I would get one at the adult shop. They do the same thing.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/24/2010 2:40 PM (GMT -6)   
I and several others here have ordered these from this store and I haven't heard of any complaints. I prefer the manual one myself- no noise and better control for me, at least. Both still have the $10 off coupon. These are as safe and effective as the $550 jobs, in my opinion. These pumps have the advantage of there being spare parts available, if they should need repair.

Manual operated
www.vitalitymedical.com/Product/Encore-Impo-Aid-Manual-Vacuum-Erection-Device-OTC-44010001.html

Battery Operated:
www.vitalitymedical.com/Product/Encore-Impo-Aid-Battery-Vacuum-Erection-Device-OTC-VTUE.html
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 2/24/2010 4:18 PM (GMT -6)   
I have the Erect-Aide and it was prescribed by the Dr, I think it was covered at 80% by insurance.

Is you husband also taking L-Arginine with the ED pills. The NO greatly increases blood flow and was Dr's ordered right after surgery
Stats:
Age: 52, PSA (2008)=1.9
Biopsy on 01/09/09, Gleason Score = 3+3
One (1) out of twelve (12) cores was positive, plus external nodule found
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Post Op Path 3+3
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, <0.01 - 3 months post-op
PSA 1/10 undetectable, <0.01 - 9 months post-op
Trimix provides 100% erectile function


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 2/24/2010 4:34 PM (GMT -6)   
I use the Oncore battery operated VED. It works fine for me.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/24/2010 7:41 PM (GMT -6)   
I've used the Encore Battery model also almost a year now.

It's been good to me as the Meds have not really done much yet (except some fleeting nocturnals).

Since your husband has not used one yet and it's been more than 6 months it might be a bit of a chore (and some pain) to get things back up to fighting shape. after being dormant on the couch all that time.

I know for me even after only about 1 month 'off' from surgery it took a half a dozen times with the pump to wake up Willy's sorry butt and get him to stand at attention quickly and not grudgingly.

But after that he was always well trained.

Also I like the Osbon ergonomic rings the best. Have had a set of 3 for 8 months now -- still going strong and not stretched out. The ones with the Encore and most other pumps will stretch out after a month or two. Osbon's rings are pretty expensive -- but worth it.
Age 59, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
11/2008 Biopsy: 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- (no effect yet 02/2010).
04/01/09, 07/07/09, 10/01/09, 01/15/10 PSA <0.1
08/09-09/09 MUSE@1000mcg (alpro ache) @500mcg -- less ache.
10/09-11/09 TrimixGel@(500/300/100mcg): 60, 70,80%,
02/10 TrimixGel@1000/300/100mcg - 80-90% - (with cialis) - just @ usefulness.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 2/24/2010 10:34 PM (GMT -6)   
I use an adult store model and that works well for me. Like most of the cheapies, it doesn't have a good way of applying the constriction (rubber bands). I have found it possible to use standard office rubber bands slipped off the base of the tube, and after some practice, that gives results good enough for intercourse.

I suggest a cheapie is fine to start with -- and I agree with James that a manual model is better because of less noise. If you find that has some potential, then you can upgrade to a more expensive model.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/24/2010 10:51 PM (GMT -6)   
hey piano,

the buzzzz of the battery powered model is what gets the missus running over to see !!

it's a good thing!
Age 59, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
11/2008 Biopsy: 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- (no effect yet 02/2010).
04/01/09, 07/07/09, 10/01/09, 01/15/10 PSA <0.1
08/09-09/09 MUSE@1000mcg (alpro ache) @500mcg -- less ache.
10/09-11/09 TrimixGel@(500/300/100mcg): 60, 70,80%,
02/10 TrimixGel@1000/300/100mcg - 80-90% - (with cialis) - just @ usefulness.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 2/25/2010 4:32 AM (GMT -6)   
Jim -- I was more concerned about avoiding questions like:
"Daddy, why is the house shaking?"
"That's Daddy's VED working"
"Daddy, what's a VED?"

Or you could try half truths:
"That's Daddy trying to frighten a mouse out of his hole"
"Oh goody! A mouse -- where is it?"

Or you could try complete lies:
"That's Captain Kirk trying to beam Daddy up to the starship Enterprise"
"Daddy, can I come too?
"Yes of course darling, just step into this closet, and don't come out for 10 minutes. Now where's Mommy?"

Think I'll just settle for a quiet VED :-)
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 2/25/2010 8:47 AM (GMT -6)   

James:

The price at your site looks very reasonable, compared to what Ford Hospital recommends.

I sent you an email with a few questions.

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights.

Next Event: First post-op PSA on 3/1/10


grelax53
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 3/2/2010 11:43 AM (GMT -6)   
I bought an Encore pump online was not fairly inexpensive an come with both a manual and and electric pump. The lid on the electric one that covers the batteries tends to pop off I have not tried to contact the company yet to get it replaced it is probably just a defect with the one I bought. Mostly I think they work ok with some practice.
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