Good news today

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craig10
Regular Member


Date Joined Feb 2010
Total Posts : 117
   Posted 2/24/2010 9:05 PM (GMT -6)   
For the first time since my dx 2 weeks ago some good news came today. As a part of my staging, my prostascint/mri fusion came back all negative, no cancer metast.anywhere was seen. Neg pelvic, abdom. and full body scan. Neg. pelvic lymph nodes and vas def.'s. While I know nothing is as definitive as a post surgical patho disection of the prostate, it feels good to get any good news. I meet Dr. Kamachi, surgeon from City of Hope next week to talk about robotic surgery and another uro for a full second opinion...I want to feel some hope--- you guys know what mean.... still have an Aureon report outstanding....but I am starting to feel hopeful that perhaps I have got this thing early....
age 55, married, kids and grandkids
2008 psa 4.7
2010 psa 5.5
biopsy 2-10 -- 3 of 12 samples positive ca 60% 25% and 20%
perineural invasion not seen
location rt apex
3+4=7
waiting for second opinion, Aureon report and prostascint scan and treatment... scared.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 2/24/2010 9:07 PM (GMT -6)   
Craig: Yes we hang on to every positive thread we can get!
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/24/2010 9:12 PM (GMT -6)   
This is very very good news to read, congratulations. Keep us posted.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/24/2010 9:23 PM (GMT -6)   
I'm with David --- good news to read, thanks for sharing!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 2/24/2010 9:24 PM (GMT -6)   

Hi Craig,

It always helps to share good news.  It is good to be hopeful, too.  I am expecting to hear more good news from you in the future.

Dan 

 


PSA 01/07 1.2, PSA 01/08 1.9, PSA 01/09 2.5
BIOPSY 02/24/09  PCa DX age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03
Followup PSA 05/28/09,08/20/09,12/08/09 <0.1
 
 


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 2/24/2010 9:42 PM (GMT -6)   
Yes it is always a mood booster when you get good news. Keep us updated.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3802
   Posted 2/24/2010 9:59 PM (GMT -6)   
Craig -- thanks for being the bearer of great news. i am hoping the very best for you!

ed r.

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 2/24/2010 11:16 PM (GMT -6)   
Craig,

You're on the right path and you're going forward. Progress is good, keep it up! City of Hope was a good experience for me, but go with what is best for you.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009 still undetectable!


craig10
Regular Member


Date Joined Feb 2010
Total Posts : 117
   Posted 2/24/2010 11:33 PM (GMT -6)   
DJ Bear Guy--- Who did your surgery at COH? Thanks for the good vibes guys-- means the world to me...
age 55, married, kids and grandkids
2008 psa 4.7
2010 psa 5.5
biopsy 2-10 -- 3 of 12 samples positive ca 60% 25% and 20%
perineural invasion not seen
location rt apex
3+4=7
waiting for second opinion--
negative prostascint/mri fusion for ca in body scan, pelvic scan, and neg scan in pelvic lymphs or vas def's bi-lat
meeting next week with surgeon at City of Hope...


defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 2/25/2010 6:53 AM (GMT -6)   
Great news - and sharing it gives us all a ray of sunshine!

skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 2/25/2010 7:43 AM (GMT -6)   

Thanks for sharing.  Great news to read first thing in the morning.

 

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 2/25/2010 8:39 AM (GMT -6)   
Craig,
Sometimes I get depressed with all the bad news so it is always refreshing to hear the good ones. Thanks for cheering us on.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


craig10
Regular Member


Date Joined Feb 2010
Total Posts : 117
   Posted 2/25/2010 9:02 AM (GMT -6)   
Thanks for the well wishes fellas--- means alot.
age 55, married, kids and grandkids
2008 psa 4.7
2010 psa 5.5
biopsy 2-10 -- 3 of 12 samples positive ca 60% 25% and 20%
perineural invasion not seen
location rt apex
3+4=7
waiting for second opinion--
negative prostascint/mri fusion for ca in body scan, pelvic scan, and neg scan in pelvic lymphs or vas def's bi-lat
meeting next week with surgeon at City of Hope...


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/25/2010 1:07 PM (GMT -6)   
Always nice to hear scan is clear, but actually it really means nothing found or detected(still good but)...which in order to be detected by any USA scan needs to be pretty sizeable (e.g. 1-million cells approx. and less will slip under the radar and not be picked up). Not what anyone wants to hear, wonder how many docs mention and point this out???? Your numbers seem reasonable enough to good outcome(s),but with PCa it is far from exact sciences is the truth of the matter.

Is your other uro-doc surgeon a referral or friend of the other guy?? I was referred too by my own uro-doc whom does surgeries but never told me he did, he didn't have the guts to mention surgery to me, as he knew in my case it would be for nothing (terrible stats)...well his pal writes it on paper and says to me: 1% chance of incontinence and wrote done curative surgery. Glad I got more opinions... like-Dr. Menon, whom refused to do surgery on me..as he knew I would fail being cured, so he was not interested in the money aspect as 1st priority (that was a surprise). You can imagine how pleasant it was to hear those two opinions that are diametrically opposed.

Ask your doc(s) if they ran any nomograms or Partin tables on your stats and see what their response is, do not let on if you do or don't know about such. Might be interesting to hear back what is said. Hey I hope you do very well and anybody that faces a major treatment, hope that truth, full disclosure and reasonable assessments are given to all patients as their birth rights!
Youth is wasted on the Young-(W.C. Fields)


craig10
Regular Member


Date Joined Feb 2010
Total Posts : 117
   Posted 2/25/2010 10:25 PM (GMT -6)   
Zufus-- I got the Sturm book and am right with you on all of that----I got the second opinion guy and surgeons myself....My uro sent me to a seeds guy--- after alot of looking and reading I don't like the reduced salvage options....... I met with the second opinion guy next week----I have read Sturm pn Partin and the pca nomograms--- I actually did not have enough variables to work the sloan kettering nomo myself--- frustrating..... craig
age 55, married, kids and grandkids
2008 psa 4.7
2010 psa 5.5
biopsy 2-10 -- 3 of 12 samples positive ca 60% 25% and 20%
perineural invasion not seen
location rt apex
3+4=7
waiting for second opinion--
negative prostascint/mri fusion for ca in body scan, pelvic scan, and neg scan in pelvic lymphs or vas def's bi-lat
meeting next week with surgeon at City of Hope...


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/26/2010 6:02 AM (GMT -6)   
Well done I am impressed with your whole analysis as a new layperson (whom won't be uninformed based upon what you are doing right now)....now if others follow your example that are newly diagnosed the world will have better informed patients, likely some better results and happier patients in many cases. I hope you don't think I am harping to much on issues...but having seen some patients make very uniformed and regrettable choices is not fun to witness and if I can make a friggin difference in this system, before this PCa gets me I will proceed to do just that...darn the torpedos and political correctness.

In Strums book (2nd edition)- I am the dude on the inside cover whom is quoted as saying:
"This book trumps them all" (back in 2003 or so...this book was sorely needed by many and only needs some minor updates, the contents within are priceless for patients).I met Donna P. the co-author on forums from www.prostate-help.org and other places...she is doing other works now, she inspired Dr. Strum to put the book together is what I heard, Terry Herbert is on the back cover he is the moderator of www.yananow.net and a great PCa icon for us to share informations. I also knew a couple of others on the books covers, from those days back then.
Youth is wasted on the Young-(W.C. Fields)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/26/2010 7:38 AM (GMT -6)   
This is very good news to read, Keep us posted.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

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