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bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 2/26/2010 5:22 AM (GMT -6)   
hi everybody .had my cath out yesterday 9 days after robotic op, now wearing pads feeling like a sumo wrestler well looking not exactly feeling.good control during day only leaked slightly a few time prior to hitting the loo,and can control flow although its nowhere near as strong as pre op .is this normal.my main problem was at night ,i got up to pee 4/5 times but each time i felt the need there was extreme pain in my willy until i started to wee.is this normal or could i have an infection has anybody experienced similar problems. also had path lab report which showed margins clear as are seminal vesticles,gleason from3/4 to 4/3 weight 62g.best wishes to all barry
PSA Aug 07 was 3, Mid 08, 3.5, mid 09, 7.27

First biopsy july 09 - t2a on left . 11 samples taken from 6 blocks. 4 blocks show positive for adenocarcinoma. 1 block 10%, 3 blocks 5%, overall gleason 3 plus 4. No perineural invasion seen. Seminal vesicles clear.

End Oct 2009, bone scan all clear, MRI shows 6mm lesion on bottom left and rest of gland diffused image. Late Nov 2009, a template biopsy of 32 from 20 sites adenocarcinoma, gleason 3 plus 4 at 10 sites; unfortunately spread over both left and right.


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2217
   Posted 2/26/2010 5:42 AM (GMT -6)   
Barry,

I was told to phone the hospital if I had any pain.
You have had a major invasive procedure you do not need to be in pain.

You should be on antibiotics now, so they should be in your system already to fight any infection. But I think the standard antibiotics are to tackle bladder infections. If you've got a touch of urethritis you might need something else as well/

It may just be that as the foley was slid out something got irritated. or that it is getting used to being wet again.
Is the pain any less if you pee when in the shower or bath?

Best to ask the professionals I think.
Alfred

bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 2/26/2010 6:39 AM (GMT -6)   
hi english alf thanks for your thoughts .be great to have a chat in the chat room or over the phone.i am in brighton ,where are you barry
PSA Aug 07 was 3, Mid 08, 3.5, mid 09, 7.27

First biopsy july 09 - t2a on left . 11 samples taken from 6 blocks. 4 blocks show positive for adenocarcinoma. 1 block 10%, 3 blocks 5%, overall gleason 3 plus 4. No perineural invasion seen. Seminal vesicles clear.

End Oct 2009, bone scan all clear, MRI shows 6mm lesion on bottom left and rest of gland diffused image. Late Nov 2009, a template biopsy of 32 from 20 sites adenocarcinoma, gleason 3 plus 4 at 10 sites; unfortunately spread over both left and right.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 2/26/2010 10:25 AM (GMT -6)   
Initial internal pain for me turned out to be irritation of the sutured part of the urethra (urine samples showed nothing abnormal). It was pretty raw for a while, and each time I passed a bit of scab material it got worse again. Then it degenerated to urinary tract infections (even worse). Merits a call to the doctor regardless, because you don't want a UTI.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/26/2010 10:34 AM (GMT -6)   
This situation definiitely requires a quick call to your doctor. There is no way we could give you sound medical advice under the circumstances. That pain needs to be understood from its source, then your doctor should be able to easily treat and relieve it.
Good luck to youl.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 2/26/2010 1:19 PM (GMT -6)   
I seem to recall experiencing some pain, so I don't think it is that abnormal. I guess it depends on how you gauge the pain. Mine was never worse than say a "2 1/2"
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/2/10


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 2/26/2010 1:54 PM (GMT -6)   
You wrote "can control flow although its nowhere near as strong as pre op .is this normal"

This seems quite common. I started with a flow of about 20% of pre-surgery and am now up to 60% which is livable. My doc explained that when he connected the bladder to the urethra he intentionally made the opening a bit smaller because it widens a bit over normal healing. Give it time, but tell your doctor at the next check-up. He knows what he did and can put your issues in perspective.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day
9 mo. PSA 0.00 -- 1 light pad/day ED remains

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