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Zimmer
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 2/26/2010 5:41 PM (GMT -6)   
Surgery on the 24th in London....returned home to-day....Everything seemed to go quite well with the surgery, hospital and care which
I received from St. Joseph's and Dr. Chin in London Ontario. Surgery was scheduled for 3:00 p.m. but got in 1 hr early and was in recovery
until 8:30 then got to get to my room and watch Canada vs Russia Hockey game, felt good enough that I was really only in 1 full day from open surgery.....now the catheter is a whole different story, I am having a lot of trouble getting that thing to stay in one place especially the overnight
bag.....I am finding the leg bag way better and the hose is so much more flexible than the fuel line they have for the other, if anyone has any suggestions as to how to hold the hose in place as to not ripe it off your penis, I have even tried duck tape with no luck.......Zimmer
Diagnosed Oct 2009 during annual routine physical at age 58
PSA 4.37
10 biopsies - 3 positive all on one side
2 samples at 1%
1 sample at 3%
Gleason 3+3
Scheduled for Pre-op London Ont Feb 2nd St. Joseph's London
Decided for open RRP surgery Feb 24th St. Joseph's Hospital London Ont.
with Dr. Chin.......


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 2/26/2010 5:44 PM (GMT -6)   
Welcome to the other side. Glad that you are doing so well. Do keep us posted. Next thing is Walk Walk Walk Walk. Can't say it enough.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 2/26/2010 5:49 PM (GMT -6)   
I'm glad that your surgery went well and that you are home. The night bag hose is really stiff, if you have some velcro straps to hold it in place. I just kept it tape to my thigh at night. During the day i had sweats that had a opening that is like in tightie whities and just let it hang out that way.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/26/2010 6:49 PM (GMT -6)   
zimmer, glad and thankful you are not only on the other side safely, but back home. sounds like you are doing great for an open surgery guy like me.

just make sure that you don't like down and fall asleep with a leg bag on, the risk is having the urine suck back through the catheter itself and back into you bladder. Your urine is only sterile while its in the bladder, the second it exits the catheter, its not. You could get a serious infection in both your bladder and kidney if it back up inside you.

what i found works best, is they make an adhisive Y holder, the Y on the cath of course for your thigh, that has a swivel joint, that moves with your movements, they work great. I can get you a brand name if you want one.

walk walk, and rest rest

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 2/26/2010 7:36 PM (GMT -6)   

Zimmer

Glad that everything went well for you in London.

I will second Jeff T's advice to walk, walk, walk, walk.

I hope you got the clip for the hose for the night bag.  I got the night bag at the hospital.  There was a simple clip on the hose that clips on to your clothes. 

I slept on the couch until the catheter was removed because I was afraid of doing damage if I tossed at night.  Attached the hose clip to a cushion.

Using the clip helped anchor the hose.  Forgot to use it once.  That's all it took to remember every time after that!!

As David says, don't use the leg bag at night.  You wouldn't want to get an infection!

Skeener

 

 



Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 2/26/2010 11:03 PM (GMT -6)   
Hi Zimmer,
 
Welcome to the other side. Now just take it easy for a few weeks and give your body a chance to heal. Do as much walking as you can comfortably handle, but don't over do it. The 'tubing' can be a bit of a challenge, but as long as the cancer is all gone, it should be just a bit of a nuisance. You'll get used to it to some degree.
Wishing you a quick and complete recovery.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 2/27/2010 9:29 AM (GMT -6)   
Zimmer,
I wrapped a bandage (or a tape) around the tube to secure it to my leg and prevent it from pulling it out of my penis.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/27/2010 9:44 AM (GMT -6)   
Glad to read that you ate on the other side, home, and having a 'normal' recovery period. Take care of yourself, drink water, walk, flush out the baddies, repeat as able.... smilewinkgrin
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 2/27/2010 12:19 PM (GMT -6)   
Eh Zimmer, good to hear all went well and you are back home. That alone made me feel instantly better.

One good thing about any cath problems is that by the day it comes out, you'll have all the little problems associated with the darn thing, fully figured out!
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to therapy effects.
 
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
 
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
 
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
 
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment is on Friday Feb. 26 with
Dr. Glenn Bauman in London.
 
First PSA test since surgery on March 30th.
 
Next appointment with the surgery Doc is April 13.
 
.


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 2/27/2010 1:33 PM (GMT -6)   

Glad to see youon the other side of this thing.  Now take some time to heal.  Good luck to you.

 

Mika


age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's
Retired again after 36 years February 1, 2010


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6946
   Posted 2/27/2010 2:36 PM (GMT -6)   
Zimmer,

Glad to hear you are home with one less part.
I used the big (night) bag all the time. The various tape patches and holders failed for me, as I had bladder spasms and leaked a lot - the urine washed the patches off faster than I could put them back on.

My best alternative was some light-weight elastic bandages - one was a J&J "Coach" brand, and Walgreen's has a house brand - one wrapped around above, the other below the catheter Y joint. Get two sets - after the shower, hang one set up to dry. You might get 2-3 uses out of one.

At night I put the bag in a squatty bucket on the floor, and clipped the hose to the bedside. I packed my sides with a couple of pillows to keep from rolling over on the tube.


Nothing to look forward to, but I was fortunate to have the catheter removed after a week.

Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 2/27/2010 9:03 PM (GMT -6)   
I had a TON of trouble with the catheter attachment things provided initially in the hospital, which amounted to small adhesive squares with velcro loop things for holding the tubing. They didn't hold very well and also came off my leg all the time. Finally a nurse brought me a regular around-the-thigh catheter strap which stayed place very well and allowed me to give my self some slack in the tubing so it wasn't tugging on my penis. Finally I felt like I could walk around a bit, and get by at home.
At night I placed the bag in a sturdy trash can right by my bed. Still hated the thing and had trouble sleeping, but that was mainly because I couldn't roll around.
When I showered the leg strap needed a little help, since it would loosen up when wet, so I would add a bunch of surgical tape to it just for the duration of the shower. I also tried protecting the strap with plastic wrap in the shower.
Also to relieve the irritation at the tip of the penis, my doctor gave me a little tube of lidocaine gel which helped when it got really sore.
Before long it will be just a memory. Best wishes.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


Zimmer
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 2/28/2010 1:48 PM (GMT -6)   
Day 3 of being home and getting a bit better every day....have a home care nurse that has comes in every day so far to change
the bandages over the staples and drain hole. The Catheter is getting better thanks to Purgatory and his tip about the Catheter Stabilization device which has a swivel that sticks to your upper thigh and clamps on the hose and holds everything in place ,it is so much better than anything else I tried, the home care nurse was impressed with it as she is unable to get one for her patients, I got one from a nurse relative that works in Detroit which is across the river from us as we live in Canada. Next date on the schedule is March 9th back in London to get the catheter out and get the results of the Pathology reports from the Doctor...thanks for the well wishes everyone...
Diagnosed Oct 2009 during annual routine physical at age 58
PSA 4.37
10 biopsies - 3 positive all on one side
2 samples at 1%
1 sample at 3%
Gleason 3+3
Scheduled for Pre-op London Ont Feb 2nd St. Joseph's London
Decided for open RRP surgery Feb 24th St. Joseph's Hospital London Ont.
with Dr. Chin.......


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 3/1/2010 7:57 AM (GMT -6)   
Hi Zimmer,

Glad to hear that you are back home and doing so well. Getting used to the catheter will become quite routine after a day or so. When I was in London, they gave me an extra leg and overnight bag which helped. As David said, don't sleep with the leg bag. It is a sure way to an infection.

Good luck on your catheter removal. It is quite uneventfull in the pain department except for the sudden flood of urine on the floor and my feet. Once my feet were dry I regained composure, all was well. Headed straight to Tim Hortons for a large double double and headed home eh?

Take care and be well,
Regards,
Bill

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/1/2010 8:38 AM (GMT -6)   
Hey, Zimmer,

Nice to have you among the wonderful gang over here on the other side.

I used the clip to attach the thick tubing to the bedsheet on the side of the bed, and then just left the bag on the floor. Worked perfect. While I had the bag I found sleeping with several pillows behind me so I was sort of sitting up, and a big huge pillow under my knees, pretty much matched the way they had me in the hospital bed and it worked well.

After getting the hang of the bag I found it wasn't totally without merit. I was able to drink countless cups of tea at bedtime and sleep the night through. First time in years I'd slept 8 hours and more without needing to get up to off load.

Drink, walk, drink, walk. It's not long until football camps open and if you're going to quarterback the grey cup you need to be ready.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6946
   Posted 3/1/2010 9:20 AM (GMT -6)   
Sleepless just put the bag on the floor - I did too, for one night. That was the night the valve to the bag stopped up with debris, backed up, and I woke up with a stopped up bladder. After that, I hung it upright in a squatty bucket so that it stayed upright. Note not every mop bucket will do - you want one that has a wide bottom to not be pulled over if you move the tube too much. That too took a bucket failure one night to learn.

Not saying everyone will have the "extra excitement" of a bursting bladder at 3 a.m., but if it does happen, expect #10 pain and urinary tract infections for a couple of weeks to follow. Been there, done that.
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