Boy, this is one story that brings back bad memory. I feel so sorry for your husband. It's almost a repeat of what happened to me. I was on the original catheter for 30 days after surgery. It was taken out, almost nothing every came out, it was late in the day. Went to bed, woke up in severe pain, as by then, I had total blockage. As soon as my uro was
open, my wife rushed me there, and of course, they installed a new cath. Its hard to explain the pain to someone when you can't urinate at all. Your bladder is full, is backs up to the kidneys, and besided the feeling of wanting to explode in the bladder, the pain travels up your back and through your hips. You will either panic, or keep having feeling of severe panic, you think you are going to die, pain levels can easily hit 9-10 if you are full enough. I found pacing back and forth was remotely less painful than sitting while waiting. It's the one time you are glad to see a catheter being inserted into your penis, you would do anything to relieve the pain. Once it gets to the bladder, and urine starts to rush out, the pain abates almost as quickly as it started. Once emptied, you feel like you will live another day. Dramatic account? Not really, been there done this too many times.
The second time they took it out, on a Friday, Uro closed early. I didnt make 4 hours on my own. By the time wife got home from work, we rushed to local ER, only 2 blocks away. Between waiting and how ineffecient they were at this little hospital, took another 3 1/2 hours of sheer pain and hell. Even they talked by phone to my Uro with specific instructions on what size foley to use and how to thread it since I was so soon from surgery, they did it all wrong which caused me even more pain and agony. This was a week before Christmas.
That catheter stayed in a month, as I was not going to have my entire Christmas ruined by any more catheter attempts, and I was so sore from my surgery.
I will add, that my blockages had nothing to do with passing clots or debris, that is uncommon, but not unheard of. Mine are caused by strictures and closings at my bladder neck.
I can relate to what your husband went through, I hope and pray he doesn't have to repeat that episode. I write this as I am still on my 12th catheter 16 months later, awaiting Tuesday 5th surgery to remove still another stricture or blockage.
Good luck to the both of you.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days