Useful Resource for deciding on Prostate Cancer Treatment

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David Jenz 123
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/27/2010 10:55 PM (GMT -6)   
Hi all,


Have read some of the posts up here. I just wanted to share with you a really useful resource which i've just read, and its given me a lot more comfort on my chosen treatment. I have PSA 5 , gleason score 7, and my doctor has suggested I have surgery. I know that there are a number of treatment options, and I wasn't sure whether I had been recommended the best treatment. I was going to get a second opinion, but I read this book instead, and it answered a lot of the questions I had. It talks about the pros and cons of each treatment and backs it up with the statistics, and I havn't found something with this detail anywhere else. Its also written for patients - so really easy to understand.

The only downside is that the book does not talk about cyberknife or proton therapy, but these are really new treatments, so there is probably not enough stats on how these compare to other treatments anyway.



Based on the information I read in this book, i've decided to go ahead with surgery, and am waiting on my operation date.



This guide has just come out and has all the latests stats and data available on the established treatments available (both surgical and non-surgical). You can get it at:



Hope it helps you too!



Dave.

Dave, first, welcome to the forum. As you can see, you have attracted some skepticism as to your intents. The reason is we have people coming on here, posting for the first time and spamming us with something to sell, and we do not tolerate dirty rotten spammers very well, hence your reception so far. I am gonna assume you are straight forward in your intent. I am editing out the link to the book, for now, as it is practice here to not allow any first time posters to link to anything that may be commercial until we get to know them better and can better decide their intents. So, thanks for the post, thanks for sharing your information with us, stick around and post a few times, get to know the guys and let them get to know you, and then we'll see about getting that book link back into the conversation, ok? Hope you do stay and participate, sharing your particular experience with us. Thanks, James C.

Post Edited By Moderator (James C.) : 2/28/2010 7:11:13 AM (GMT-7)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 2/28/2010 1:24 AM (GMT -6)   
MODERATOR, YOUR ATTENTION IS REQUIRED.
 
Gotta love it -- first post and we have a sales pitch -- doesn't pass my smell test
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/2/10


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 2/28/2010 3:36 AM (GMT -6)   

And all for the low,low introductory price of only $17-00. Who moved the rock that allowed escape of another lowlife.

Bill


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/28/2010 4:58 AM (GMT -6)   
That is quite pitchy looking you need to reply back to disspell the possible appearance of this post. Even though myself and others heavily endorse Dr. Strums book- A Primer on Prostate Cancer-which does cover all treatments and doesn't seem biased. I would also tell anybody getting any major treatment to get muliple opinions and for alot of reasons, the ones you would not find in books for example:

Through the interview processes with various doctors using various protocols, you can ask alot of questions and maybe see, feel, smell possible bias, agenda and truthfulness, sincerity, compassion, etc.....Those can never come through the same as in person and face to face. Depending upon whom you see, might hear and witness something that you never knew about from a book or other patients and you may need to verify it thereafter using internet and searching, could also make a big difference in ones particular case, this medical issue is more individualized than it seems outright.
 
Good nose Mel and Billy...the smell test although unscientific is computed through a well built computer (called the brain). LOL  (I got giggle bites too)

Post Edited (zufus) : 2/28/2010 4:02:13 AM (GMT-7)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 2/28/2010 7:28 AM (GMT -6)   
- such a tease - no mention of name of wonderful book nor of the doctor in his posting - just the website - and only US$17.00 - if you buy one now do you get an extra book free with only the cost of shipping? -
- it is terrible that we have to distrust so many statements that might be sincere - but in fact aren't.
- I only used my shamwow for a month and it is gathering dust somewhere in the house...
BRONSON

-p.s. I admit I did go to the link - I am a product of my media-saturation upbringing -
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 2/28/2010 7:54 AM (GMT -6)   
I agree that this post does not pass the test of sincerity on all levels. I too took at look at the site and the excerpts appear to be a compilation of articles that we all have read at some time or another.

It took me about 2 minutes to find the following link that probably is just as easy to read and is much more inclusive because it addresses options that are stated as not being contained in the book;

http://www.prostate-cancer.org/pcricms/node/141

Those of us who have been through the PCa maze and are trying to assist those just beginning their trips are duty bound to protect them from folks like this poster.

IMHO,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/28/2010 9:18 AM (GMT -6)   
Where I come from, a rat always smells like a rat, no matter what clothes it wears.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 2/28/2010 1:00 PM (GMT -6)   

Interesting that even on the site, no author is mentioned.

LOL

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/2/10


Magicianatx
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 2/28/2010 1:14 PM (GMT -6)   
Concerning helpfultools and aids in making treatment decisions, I did find the Nexcura Prostate Cancer Profiler Tool very helpful. I'm sure they are other website decision tools that are just as helpful, perhaps others can post their favorites as well to help the newcomers.
Diagnosed: June 2009
Age: 54
PSA: 8.0
Gleason: 3+3
Surgery, open Prostate: Jan. 4, 2009

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