Home from the hospital... ouch

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/2/2010 4:10 PM (GMT -6)   
Did not snow overnight or when we left the house, so made it to the hospital on fine.  2 hours of prep/waiting, 1 hour surgery, and 2 hours plus recovery time.  I met with my surgeon first, to go over some last minute thoughts/strategy.
 
When I woke up in recovery, was in major pain, easily 8-9, also woke up to find out that I have two catheters again, ouch.  I had to stay longer because they had to give me morphine 3x to get the pain stabilized.
 
Dr. said I was basically close up entirely, but since I was put under, he got me opened fully, using all of the dialatio tubes.  He said since the SP hole  (suprapubic cath) was 5 months old, he needed to kind of ream it out, and clean the edges.  He wasnt originally going  to put a foley (penis) cath back in, but in the opening process this time, there will be a lot of oozing and bleeding for a few days and thought it would be better.  As soon as I recovery some and heal some from that, he gave my wife the ok to remove the foley.
I will see him again on the 15th, and will start testing the bladder neck, by blocking the SP cath.  If my own flow doesn't work or work well enough, I will be able to switch the SP back on again at home.
 
Once again, the pre-o, operating room, and recovery room nurses are true saints there at St. Francis in Greenville.  The OR nurse said that I was extremely raw from radiation damage.  So that is a concensus of opinions from all those that have been able to see up in that region.  It also explains the unusual amount of pain I have been going through the past 5 months.
 
My surgeon spent some time with me after in recovery, he has spoken to a collegue of his in Atlanta, that has dealt with some really bad chronic stricture cases.  No decision is being remotely being made, as we are all hoping that today's fix, when healed, does the trick, but if it doesn't, his friend advised basically to perm. by pass the bladder neck in the future, and instead of having a perm SP tube, to have a more complex op done, where they use some part of me  (will have to ask for details later, as I was under morphine when we spoke), and they would create a by-pass  around the bladder neck, and I would perm. urinate to a removable bag.  Not the same as a catheter.  The other dr. said it eliminates the chance of bladder  cancer from long term cath time, and would allow me a more normal life, i.e. could take baths, hot tub ,ride bikes or motorcycles, etc.  But it would be a lifetime change.
He did say it would be less risky and dangerous in compared to another of complex methods.  I would rather hope this today ,fixes me, at least for a few months at this point.
 
So I introduce you to catheters #13  the foley, and #14 the SP, but co-existing inside my boxers as I write this, lol.
 
Got plenty of meds to take as needed, and was told to stay off my feet mostly the next 48 hours.
 
The reccovery room nurse, who happend to be the entire hospital's systems Nurse of the Year, told me that my uro/surgeon, is probably one of the most compassionate doctor's she has ever worked with in her nursing career.
 
Thanks to all my supportive brothers here and our dear sisters too.
 
David in SC
 
 
 
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/2/2010 4:16 PM (GMT -6)   
David, glad to hear you are home safe and sound but sorry to hear that the "twins" are back! I sure do hope this surgery does the trick for you.

I imagine that your bladder is pretty abused at this point so be kind to it and to yourself.

Heal well, my friend.

Sephie (and John)
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 3/2/2010 4:18 PM (GMT -6)   
Glad your home, now rest and take care of yourself. Hopefully this will do the trick and you won't have to endure a risky surgery. Sorry about all the pain and hardship you have been through your a real tropper for hanging in there.
 
Take care  Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/2/2010 4:28 PM (GMT -6)   
Thanks and a big hug to you Sephie, and John. Despite all this, still scheming a NYC trip, but now would probably be a fall event.

Thank you too, Bro. Neal!!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 670
   Posted 3/2/2010 4:30 PM (GMT -6)   
David, it sounds like the whole "blocking one cath to test flow" is an infection risk but I am sure you are old hat at this, and know by now all the things you need to be concerned with.
I hope this is finally your successful surgery!
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09, 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/2/2010 4:48 PM (GMT -6)   
David: Have been thinking of you all day long. Happy that you have made it home. I do hope that this is the fix.

Stay in touch. If there is anything I can do please let me know.

Your Cajun Buddy.
Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/2/2010 4:49 PM (GMT -6)   
David,
Glad the surgery is done.  As I saw mentioned one time, pain is good--means you are alive.  Breathe through each moment.  Prayers continuing.
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
Feb 2010 wil be followup PSA


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 3/2/2010 4:51 PM (GMT -6)   
Well your at home take the meds and rest and hope for the best maybe the doc picked up on some new information that done it this time
Deerhunter
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see!!!!!!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 3/2/2010 5:13 PM (GMT -6)   
David,
When I said "May all your plumbing work to specifications." I never meant for you to get a military grade redundant system! On the bright side, at least it's not Aerospace, flight safety critical grade, triple redundant.
Relax and heal my friend. Drink water... lots of water.
Jeff, too

Post Edited (Worried Guy) : 3/2/2010 3:57:53 PM (GMT-7)


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 3/2/2010 5:16 PM (GMT -6)   
Wow David. I just cant believe all the stuff you are going thru. Worried that the snow might have kept either you or the surgion from getting to the place on time. I had an appointment 65 miles out of town last Friday and it was snowing when we left and the local police were suggesting that if anyone did not have to get out, STAY HOME. Not this soldier. Off we went. Only a dozen cars and three transport trucks either upside down or in ditches and the weather did improve for the trip home.

Just could not take the chance by staying home, not knowing when the new appointment date might have been.

When I read and sometimes re-read your reports on here, I have to appreciate my own situation, not great just yet and I have some time to go, but like you, I'm determent to lick this thing.
.
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
 
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
 
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
 
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
 
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
 
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 20)
 
First PSA test since surgery on March 25th.
 
Next appointment with the surgery Doc is April 13.
 
.


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 3/2/2010 5:23 PM (GMT -6)   

Thanks for the quick update.

I don't know what to say. I guess hopefully things will flow soon.

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/2/10


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 3/2/2010 5:26 PM (GMT -6)   
I am pleased to see that you're over the first part of this hurdle David. I was extremely sorry to hear of the accompanying pain though...........  hope that quickly fades away. As you can see you've got global mojo being fired at you for a speedy and, this time, very successful recovery. Boy that nuking really does cause you some grief so any tumour cells (which are more vunerable than normal cells to being nuked) should have been well depatched to their oblivion. Thinking of you as always, so take care and a good recovery.
Bill


1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm

Post Edited (BillyMac) : 3/2/2010 3:49:44 PM (GMT-7)


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/2/2010 5:26 PM (GMT -6)   
Well, David, delighted to hear you're back home ---- and I trust have seen the last of this hosptial, the doctor, and that nurse, as wonderful as they all might be!

Seems to me I remember you heading out to cut a three/four acre lawn two days post surgery last year. No grass this time, okay? And, if it snows, no shoveling. I'll come with the front end loader and clean your drive.

Keep on top of the pain with those meds.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/2/2010 5:57 PM (GMT -6)   
My, what a wholesome response. The combination of 3 zaps of morphine at the hospital and at the hospital's reccomendation of taking the Loratab when I got home, I passed out for a few hours! That felt great, was up almost all night worrying about the weather and the surgery.

Thanks Jeff, Cajun Jeff, dear Care Bear, Deer Hunter

And worried jeff, yes on the water, since my original bout of radiation to my throat/neck, i typically drink a min. of 3 liters of pure water a day, so use to the water routine

jerry, i'm with you, i have said all along this journey, PC is not going to take me down without a H*** of a fight from me.

Mel, thanks my friend

Billy Mac, always the right word, you are good at that. Wished we lived close enough to visit

sheldon, thanks for the offer. for all the talk of snow, it has snowed most of the day, big wet flakes and no accumulation or sticking, wife had no trouble driving me home from the hospital, no different than say a normal light rain on the road. we dodge another winter storm here.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 3/2/2010 6:27 PM (GMT -6)   
David, I'm glad that you're home and hope that this recovery is much less miserable than you have experienced in the past.  It's about time, I think.  It's your turn for success and I truly wish it upon you.  As an aside, it's too bad that Bill can't spell (tumour?).  he he  Maybe it's because he lives upside down.
 
If you could get your plumbing fixed and I could get my back fixed we could ride motorcycles like we used to do.  But I doubt that we'd have as much fun.  It helped being crazy.
 
Best to you my friend, just the best - Bill
I first came here in fall of 2006.  Did radiation.  Am fine.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/2/2010 7:01 PM (GMT -6)   
Bill, so glad to hear from you. Hope you been up in the air plenty since we last spoke, didn't see you at the last chat night.

Let see Bill, I was 55 right before I had to sell the Triumph, and even up until the new owner took her away, I was still making plenty of 130 MPH plus runs. Still crazy, just don't have the toy right now.

Don't pick on my good mate, Billy Mac, he can't help things like that, lol.

Thanks for checking in on me. This corrective surgery has left me with the most immediate pain, but hoping it doesn't increase.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 3/2/2010 7:07 PM (GMT -6)   
Welcome home, David-----------a sincere wish that this procedure does the trick. Sometimes that saying about the darkest hour being just before the dawn rings true
Nestle into the pain meds for right now, and turn your brain and emotions off for a while. (easy for me to say)
 
Hang in there and keep us posted
 
Arnie

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7087
   Posted 3/2/2010 7:12 PM (GMT -6)   
David,
Glad to hear that there was something that they deemed fixable, and, that at least for today, it is done.
Get some sleep, and some rest. I'll try to send along some western sunshine - plenty of that, but still close to cold.

spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 348
   Posted 3/2/2010 7:19 PM (GMT -6)   
Glad you got throught it David, take it easy, watch some football (the real stuff, not American:)
Hope your recovery is uneventful and leads to some permanent solution,
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 3/2/2010 7:31 PM (GMT -6)   
David,
I'm happy that you are home safe. I hope the surgery will produce good results this time. I hate to think of you having to go though another surgery. God bless you.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/2/2010 7:32 PM (GMT -6)   
David, glad your home. Rest and take the pain meds. Constipation is not as bad as severe pain. Hope this surgery does the trick. This said as I sit here sweating my stricture surgery next week and suffering from nasty bladder spasms. Nothing seems to help with the spasms. We must be remotely related. Seems like we have the same screwed up plumbing. Rest and get well. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
* 03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place. Surgery scheduled for 03/11.


pigeonflyer
Regular Member


Date Joined Nov 2009
Total Posts : 85
   Posted 3/2/2010 7:42 PM (GMT -6)   
ouch david, you will come out of this one (pain wise) as like the last one. hope this one says it all. like p hitting the toilet. there is no dignity in enduring the pain. get some good meds. wish you the best. i care about your situation. neil
50 years
da vinci on 9/28/09
gleeson 3+3
psa before surgery 5.1 oct/09 psa 0.06
cather out on oct 5, back in on oct 5
two more trys for cather out, still in .
cather out nov. 13/09
cystocope nov.13/09 , cather back in , out again on nov 15/o9, was taught to self cath, still pluged with scar tissue but no cather. have to self cath 6 to 8 times a day. scar tissue removed on jan. 11 2010. no cathing and totally dry. 


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 3/2/2010 7:47 PM (GMT -6)   
We hope and pray the fix is in! Perhaps they got some new info this time too with the nurse remarking about the "rawness" seen today. Talk about rawness, I've come into my own, only in an area a few inches away, due to the other common side effect from radiation.

Rest up and think positive and we will too for you!
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/2/2010 8:04 PM (GMT -6)   
thanks arnie, 142, and EdC

mike, thanks too, there is no football outside of the NFL and the New England Patriots, sorry.

thanks to, jake my man

neil, today when they gave me a triple scoop of morphine, i needed it, you didn't hear me say no. i am a big believer in proper pain managment

squid, it is scary our simlarities with this issue. even though i take ditropan 3x a day, to help control bladder spasms, i agree, when i have them, nothing stops them. now that i have two caths in side me again at the same time, i know i am in for some big ones, already fearful of that, i am suppose to be able to have the foley-penis cath out in as littles as 3-4 days, or at the most till the 15th. Through all of my now 14 catheters, there's no getting use to the pain of an intense bladder spasm. hang in there brotehr, and may your next corrective surgery do the trick, i am hoping for you ,as i am hoping for myself from todays surgery. hang tough.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 3/2/2010 8:04 PM (GMT -6)   
David,
You had a Triumph? Cool! I still have my Kawasaki 500 Mach III Triple - H1E two stroke, crotch rocket. I take it out on the 4 days of the year when it isn't snowing and scare the cr*p out of myself. I did not get a chance to ride at all last summer.
Jeff
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